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I just wanted to welcome you to the board Irene. I find it interesting that you have had BFS for most of your life. What has your experience been like?? When were you dxsd with BFS?? What symptoms have you experienced with it?? Sorry for all the questions, you are just the first lifer that I've...

Well I can tell you for sure that you do not have bulbar. Without going into too much detail, people around you would know something was wrong before you do with bulbar onset. It almost always starts with very slurred speech that others hear you doing but you wont, your brain will be telling you...

Yes extra twitching is very normal when you stretch or flex anything with BFS/BCFS. Even sneezing will usually set off several twitches all over. Stretching upon awakening in the morning will cause this as well. You will find there are a few things that increase twitches, but all of this is...

At the very most, all you have in your left arm and else where on your left side is called dis-use atrophy, and any one can get this who used to work out and then stops or if someone has an illness that has them bed ridden for a time, or someone who has had a cast on for some time. It can happen...

Man oh man, you got it and you got it good, :D) Its good that you are going to see the Neuro because you will get some relief from your anxiety just by getting some questions answered, and YES do take a list so you dont forget to ask something that is really important and you kick yourself...

Hi and Welcome, you sound like you will fit rite in here....This board is fantastic for info on this condition and the people here are truly fantastic souls....I hope this site will help you as much as it has helped many of us....I would also like to invite you to visit our chat room....its late...

Well we all know how I feel about the sharing thing. This post by Stayingstrong is proof of why its important for us to share and post about our symptoms, because you never know who you may be helping, or saving there sanity for that matter. This stuff can be hard to deal with alone, especially...

I've got it Simon, and I havnt taken a single med for over 3 yrs so I know its not from anything like that. I dont really have a theory on this one, but I can tell you that it kicked in just after my other symptoms did back in February, but some days are worse with it than others. So good to see...

I can not believe the bull *hit I am reading on this thread.....It honestly pis8es me off and saddens me at the same time....It makes me sad because this site at one point saved my life and others I'm sure as well would attest to that....But that was 5 yrs ago...We had some really great, caring...

Very wise words from "elliottok" and I completely agree :)

I've had BFS for over 4 yrs now and I have had ankle clonus since it started....and also hyperflexia in all four limbs and also jaw...I'm still fine...If anxiety is bad enough it can absolutely cause someone to have ankle clonus although it is not REAL ankle clonus..more like a psuedo...

Guys dont have the same fluctuations in hormones like women do and hormone fluctuations can have an affect on the nervous system... so it only makes sense that women would notice an increase in neurological symptoms at that time of the month.. Those are my thoughts any ways when that time of...

I had ankle clonus...My doctor found it when all my BFS was just starting and I was a complete train wreck...From what I can tell on your video I would guess that what you have is Pseudo Clonus as Chrissi suggested....It tends to look like the real deal but TRUE ankle clonus would be a product...

Thank you Bart for taking the time to come back on here and clarify...It will mean a lot to a lot of people I'm sure....And I'm very happy to hear that you are doing so well.take careML :)

Great post Trae...and happy to hear you are feeling good and doing so well...You were a big help to me back in the day simply because we shared similar symptoms.Keep in touch and take care Trae :D) ML :D)

This completely sounds like BFS in every way..and with every symptom you listed....U have way too much sensory symptoms going on for you to even be considering ALS as something you should worry about...ALS is a Motor Neuron Disease..Which means its attack is on the motor nerves..those are the...

There are different things that can cause adult bed wetting...dont be embarrassed...nobody here will judge...Your human rite...**** happens...Anyways..it would probably be best to see your doctor to be evaluated on this..in case you have a UTI (Urinary Tract Infection)...Bed wetting is generally...

CONGRATULATIONS!!!! :D) Hope you feel some relief now... :D)

Floyd and Mw are both absolutely correct...Nearly everyone here has had to deal with a hotspots or multiple hotspots...I have had a lip twitch go on for over 3 months..and a hot spot on my leg that lasted nearly a month...They are common and very very normal for BFS..And a horse voice has...

Good luck today..but u dont need it....trust me...If your clinical exam was good..your emg will be good... :D) You'll see ML :D)