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Well Hello ABOUTBFS!I figured I would touch bases since May 2009.I am still alive! I still twitch and have been looking into the connection of flu shots with BFS.Very interesting...If you got the H1N1 vaccine back in 2009 and starting twitching please let me know on my facebook page:God...

*** 1 YEAR ***Well, as promised to the day, I am back at the forum one year since my first twitch.Here is the quick and dirty:1. I know what it is like to panic, uneedlessly about bular-onset ALS. BFS can make your tongue twitch too!2. I am still here, no musle atophy, twitching like a madman...

JRO - Thanks for the heads up.I talked to the neruo about the immune relation and he discounted the possibility?!? :oops: Anyway, The Lyme test came back negative, my standard bloodwork all set and even had a CPK which was normal.One curisouty I anted to run by the forum though. I have been...

Where to begin?Well Since I posted last, things calmed down a bit. I want on a diet and exersise regimen and lost that 35 pounds. (I'm hovering at about 175 to 180) yay! Anyway. After a HORRIBLE allergic reaction to PPD, the chemical in dark hairdye, and a week of the hystimenic reaction to...

I hope this is OK with John,Now that Facebook is being used as such a took for communication, I wanted to use it to reach out to MORE people possoble suffering from this affliction.I created a group on Facebook and here is the link:Anthony invited you to join the Facebook group "BFS - Benign...

Well - Things have gotten a bit worse for me, but I keep telling myself that the neuro exam, emg and exam were all clean! I just started karate with my son after being inactive for about 1 1/2 years and I don't know... My sore legs, combined with the fasciculations in my calves and legs and...

:D) :D) :D) :D) :D) :D) You guys are the best!Thank you for taking the time to reply to my post with such supportive information. God knows that there is a wealth of negative information out there!Well - I went back to karate with my youngest son after taking 1 year off and gaining 35...

I am a 37 year old guy that has had the worst two years of my life. About (a month?) ago, I started to notice muscle twitching in my right bicep. I thought it was "cool" and didn't think anything of it. Well, I started to notice that my right eyelid was (getting stuck? twitching?). I did the...