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Please don't put words into my mouth. Or sentences. Whatever. I'm not trying to rewrite the Mayo study (which, for accuracy's sake, does not say BFS never turns into ALS). The Mayo study stands. Nor am I saying that I side with my neuros. But like it or not, they aren't just a couple storefront...

Yes, essentially they were saying I'm at (however slightly) greater risk for ALS than the average person because of my twiching (which they have both diagnosed as benign). So they are saying to me, my twitches are benign. But I have slightly exaggerated odds of getting ALS. Considering they are...

I posted my info with what my neuros said in this branch of the forum. I'll read some replys but I'm not going to be around much longer, I don't like what dwelling on these issues does to me. Voice of experience.

I started twitching in Oct. '98 and since then have had episoded of tongue and chewing fatigue that come and go. I'm also hypothyroid and had CFS which confuse things up a bit. First of those neuros, in Indiana: gave me the EMG within a few months of start of twitching (using a fancy new...

Well I aknowledge I was rather selfishly vitriolic and I'm sorry to those I offended. What can I say, almost five years of this myself and Carol's story still scared me a bit too... I do recognize how important Aaron is to this forum. I have no intention of becoming a regular here, either. But...

I've been getting a LOT of cracking joints the last three months or so. I recently was told my thyroid meds had been raised too high and I was pretty hyperthyroid, wondering if that might be why.

Hi renee, When my synthroid dose is changed a whole .025 it also goes hyper or hypo depending on direction. For me, it needs to be alternated, one day with the old dosage and the next day with the new dosage etc. So if I'm at .150 and hypo, I still take that one day but the next I take .175 and...

Kerri, I didn't know you twitched that little! Hey no worries, I've read that fear of ALS is its own kind of hypochondria... even people who don't twitch can latch onto that particular disease and not be able to let it go... Sounds like you ought to put this whole issue to bed, for good. You...

My endocrinologists have been unambiguous about the TSH labs (which don't differ that much from lab to lab). My first endo told me "yes yours are technically considered normal, but they're not what they SHOULD be." I moved to Italy a couple years ago, and the one I see here at a university...