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  1. M

    Numbness, Prickly Sensations, Twitching Worries

    This is very typical of lumbar disc disease. I can guarantee an MRI will show either a herniated or a bulging l4-5 L5-S1 disc.
  2. M

    Facial Sensations with BFS: Need Advice

    I have had BFS for 10 years, so I have had my fair share of odd symptoms. However the strange sensation below my lips is a new one. I noticed it while drinking some water with dinner. I could see the muscle twitching. I no longer see the twitch, but still have an odd sensation in the area and it...
  3. M

    Unexplained Muscle Twitching - MRI Needed

    My BFS started 10 years ago, all W/U were negative. This time it feels different to me. It started with a funny in the are beneath my lips. I looked in the mirror and saw the muscle was twitching. Freaked me out so i made a neuro appt. He did an exam, ordered some blood work(lyme, ANA, ESR...
  4. M

    Exploring Possible ALS Symptoms

    I actually have a few syrinx in my cervical and lumbar spine. I was told that in my case they are congenital and not to worry. They can be associated with Arnold-Chiari malformation, which would require attention. I was also told by the neuro-radiologist that with the incresed sensitivity of...
  5. M

    Weakness?

    It is really strange that I feel there is some weakness in my lower chin and yet the Neurologist said no way after the exam. Perhaps I am just more perceptive?
  6. M

    10 Years with Neuro - BFS

    Back from the neuro today. I have seen hime for 10 years. He diagnosed BFS at the time. In the past 10 years I have gone to him each time I thought I had some weakness and atrophy. It averages about every 2-3 years. Each time I get an exam and an EMG. Today I saw him for the acute onset of a...
  7. M

    BFS 10 Years, Mystery Twitches?

    I can only see the differemce in the muscle by puckering my lips. i can't see a difference by smiling or just looking at my face. The only reason I even noted this , is that the twitches in the muscle first stared when I was drinking a glass of wine. It was a very sudden sensation and has not...
  8. M

    Twitching Shoulder: Fear or Progress?

    I have had BFS for 10 years. I get random twiches and often I can get the muscle to twitch by flicking it. My neurologist noted this many times and said it is nothing.
  9. M

    BFS 10 Years, Mystery Twitches?

    I have readly accepted the BFS diagnosis, but always have the fear of the more ominious disease in the back of my mind. Especially when a new symptom like this appears out of nowhere. Really feel like my muscles may be weak below my lip.
  10. M

    BFS 10 Years, Mystery Twitches?

    Thanks for the feedback. I have lived with BFS for 10 years, this just feels differnet to me. The area that looks differnt, feels differnt when I drink or speak. However, I do realize how powerful the mind is and how we can focus on a specific area until it feels strange. Hopefully it is nothing...
  11. M

    BFS 10 Years, Mystery Twitches?

    I have had BFS for 10 years. Went throught the entire work up a few times, all negative. A few weeks back while drinking a glass of wine I noticed a strange sensation on my chin, right benath my lips. sure enough the muscle was twitching. On closer examination, when i would pucker my lips...
  12. M

    My story with a new odd symptom?

    I started twitching about 10 years ago. being a health professional I immediately thought the worse. I saw multiple neurologists and had all the testing required to put my mind at ease. Every few years it seems to start again or I think I see some atrophy and another round of testing allays my...
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