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Oh and my Neuro asked me if my twitching bothered me. I answered not as much as it used to. She said that ALS twitching does not bother people with ALS, they usually don't feel them.

Ok so my greatest fear is coming down with Bulbar onset, I have been going through this fear for about a year now (you can read all about it at the "My experience with BFS" thread).it started out stupidly, i was reading about ALS, and came across the "in about 25% of cases is starts in the...

Thanks Linda. I pray every night for a cure for ALS, I pull up the news every morning hoping I see some headline that a cure has been found. I know it's a long shot, but I just don't see how life can be as sweet as before with knowledge of such a cruel and horrible disease is out there. I used...

Thanks Roger for your inspiration.Ever since my brother in law's diagnoeses, my life has not been the same, I used to enjoy life for the most part, yes I suffered from mild depression, and I had phobia's, especially of death and choking on food(this one being mild) I remember I used to go to bed...

Thanks Roger for your inspiration.Ever since my brother in law's diagnoeses, my life has not been the same, I used to enjoy life for the most part, yes I suffered from mild depression, and I had phobia's, especially of death and choking on food(this one being mild) I remember I used to go to bed...

Oh and yes I twitch, not as much as I used to, I do twitch in my knees, but mostly my arms and calves, sometimes my butt cheeks, and other places, but only like a couple times a day, and them seem to be random. No other issues. I can walk on my heels and toes, I haven't choked on anything...

My story did not start as most of yours. My story starts one afternoon a year ago, I was at work when I received a call that would forever change my life. My mom called me crying, to call my sister because she had called and something was wrong. I call my sister and I hear the news that turned...