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Hi all,Thanks so much for your posts and PM's. When I posted this, I didn't really expect anyone to say anything that would cheer me up or change my perception that this new symptom was bad news, but hearing some of your experiences has really helped. I am more optimistic heading into my GP...

Thanks for the words of encouragement. I should probably give a bit more info as to why I'm thinking this is MS and not BFS.* Tingling/Neurologist visit: Never mentioned tingling as I didn't have it before then. He can only go on what I told him. The only part of the clinical test which I...

I posted a couple weeks ago about my face tingling - well unfortunately it has not subsided and has spread to my mouth/tongue. For about 2 weeks now my face has been tingling and I am constantly itching it to remove the imaginary hair that is causing this sensation. Of course, there is nothing...

Joanne,Absolutely fantastic news!!! I am so happy for you!! Hopefully you can now put this dark chapter behind you and start enjoying life to the fullest again. One of the main reasons I've hung around this site over the past few weeks was to find out how you made out. Now that I've learned...

Maria,It's really great to hear your twitching has dropped off and you are feeling much better about life. Many thanks for all your advice on dealing with the anxiety part of this condition. I'm sure it will be helpful to many here. All the best for continuing good health and recovery.Chris

Hi Maria,Good to hear from you. I believe (hope) your idea may have some validity. After my positive neuro appointment, once I "accepted" that I was OK, it seemed like the twitching let up, but never really disappeared. The significant visible twitching definitely has subsided as I have not...

Hi all,As you may recall, I was given the clean bill of health by my neuro a few weeks ago, and have been doing great until....I have had this face tingling/itching for several days now. It's not twitches like we get elsewhere - more like there is a hair on my face which I have the urge to...

Joanne,Great news on your neuro visit!!! Told you they would give you the all clear! I understand your lingering doubts, as I have had them too (and still do), but once I decided to accept the dx, I have had the best couple weeks of my recent life. The dark clouds and fog have cleared and I am...

Bedan - thanks for your post & advice. You're right in that I did leave the neuro's office with a bit of doubt. I wanted to be upfront about that with everyone because it is the reality. I think we all have that & I think it is best to admit to that as I think it is healthier than pretending...

Joanne,I am SOOOO sorry to hear that your appt got cancelled. I was sure this was going to happen to me too...I almost feel guilty that mine went ahead and yours didn't!! I can't even imagine how I would have coped if I had to wait another couple weeks.I guess the only advice I have is this...

Hi All, I promised a report on my neuro appointment - and here it is...I GOT THE ALL CLEAR!!! I have officially joined the BFS club!I didn't realize what a top doc I got referred to. He is a sr. professor of neurology at one of Australia's top med schools, so I was confident I was seeing...

Joanne/Sandra, Thanks for the kind words and support. Feeling pretty good about tomorrow now.Sandra - I'm from Sydney. I saw that you have a LOOONNGG wait for the Neuro to come up from Melbourne. I thought my wait was bad! Hope you can hang in there OK until the big day comes. I don't...

Hi allI posted a few weeks ago in a blind panic about my BFS (or worse) symptoms onset and the unbearable delay to see a neuro. Well, about 50 panic attacks later and I am only 24 hours away from what I hope will be the beginning of a return to something more closely resembling a normal life...

Not sure if we really want to go there. I found that if you use the search feature and do some digging you can find all sorts of info you might be looking for. But I think most people here need reassurance, not confirmation that the needle in the haystack of someone who thought they had BFS...

Yeah this sounds very familiar. As I've paid attention to my body over the past couple months I've found that what I thought were purely random twitches seem to be more correlated with use. When I 1st wake up in the AM, I have that great initial, fleeting feeling of no twitches. Once I start...

JoanneI completely understand what you are going through right now as I too have my 1st neuro appointment on Friday. These last couple weeks have been hell. I recently sold my business and have had WAY too much time on my hands to obsess and spend lots of time on the internet. I have had so...

I can echo the previous post - I have had tinnitus for several years (dx by a ENT specialist). Since my BFS symptoms spiked, I have also noticed a significant increase in my tinnitus. What was a low-grade, consisent background buzz has turned into a much higher frequency (and apparently higher...

Paul/Maria, Thanks so much for taking the time to respond to my post. Your advice and words of wisdom have definitely helped me lower my anxiety levels over the last day. Maria - I'm so sorry to hear about your Mum. I didn't know much about ALS/MND before this all began, but I now understand...

Hi all,I'm a first time poster, 43 y.o male from Sydney Australia. I have been visiting this site for about a month now for info and support. My thanks go out to all of you regular posters who help people like me through the tough times.My story: For as long as I can remember (several years?)...