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Happy new year all! Its been years since Ive been back here. I started twitching, 2007 from memory and was in a terrible state at the time. Long story wont bore you with it but mum had ALS and all sorts of fears about my twitching consumed me. Once I hit rock bottom I started working on my...

I think the key to you getting better is to work on your anxiety. I had the same problems as you back in 2008/09 but am now fully recovered. Looking back it was my reaction to the twitching the anxiety that was crippling. I seeked helped from the anxiety centre (look them up on the web). It took...

I am sorry it is so uncomfortable for you at this moment.... There is one thing that sticks in my mind and that is the intensity to understand. Many things in this life we cannot understand. A pain I know. But in some ways I wonder if just reinforcing this stuff in writing about it kind of makes...

That is great news! I rarely come back to this site but I also fully recovered about 2 and a half years ago. I twitched for 2 years and pretty much had the same symptoms as everyone else. I even had an EMG that was a little "dirty". From memory there was some deinervation (?? if that's the...

Hi thereYou are no different to the way many of us were at the height of our anxieties over BFS. I urge you to go , join up for I think $20 and there you will have a mountain of info as to what anxiety can do to you and also how to recover from it plus the process of recovery from anxiety. I...

inzTwoToneTunes, this is one of the best posts that I have ever read on this site. The mind is very powerful! I screwed up my life over the fact that I was "convinced" I had ALS and sorts of other diseases. The power of suggestion and persuasion is enormous and it equates to a massive amount...

I have read many of yuor posts and witnessed, through your words, someone who is getting much better and less fearful. You've invested a lot of time trying to help others and to me I see someone who is caring. I like your assertiveness. Your husband sounds like a real sweetie. happy...

I think the hardest challenge with BFS is overcoming the fears and worries associated with it. If you've been given the all clear by your neuro you have to somehow get over the fear that there may be something wrong. Your continued worries and fear fuel your twitches. They key to recovery is...

Yes I had much the same sort of results plus the buzzing that you mention. I also experienced much anxiety as a result. I have fully recovered and no longer twitch so be rest assured that your results are normal and not indicative of mndMaria

I had the exaxt same thing. You're nervous system is overstimulated and can produce these sensory symptoms. I wouldn't worry too much about it. Be indifferent towards them and you will find that these sensations will settle down.

Can I just say if that if these twitches are barely noticeable look at it as a postive thing. Don't analyse it as perhaps a symptom of MND. If you have no weakness maybe its signal that you are getting better. Trust me, I have recovered from my twitching but I went through a lengthy phase...

yes I did, every single night for months on end plus I would say all of your other symptoms for sure. The one and only cause for me was anxiety

I know you fear you have ALS but fear equals anxiety equals your body producing symptoms of an overstressed nervous system. Go and have a look at the symptoms of anxiety at and you will see that many of your symptoms are actually that of anxiety. I haven't gone back and looked through your...

My mum died of ALS one year ago. the neuro I saw offered me further testing for myself, not because there were potential problems for me but because he could see I was a nutcase! There was no evidence pointing to the fact that there was ALS in my familiy. Who the hell would know if there was...

Hi Christian,I started twitching August 07. I worked on my anxiety over this and have completely recovered from it May 09. I had counselling for ages and I practiced diligently what my counsellor told me to do. for me the key to recovering was believing that I didn't have an illness and that...

Thanks so much for posting this. This is so unrelat4ed to BFS for me but it may explain my dads condition. He is 80 and very frail. He was a welder for 55 years and he displays many of the mentioned symptoms, but not twitching thank goodness. His doctor even once said to me that his walk is...

I'm speaking purely from my own experience. My mum had ALS and I kid you not when it was first suggested that she may have MND I remember her neurologist saying to me that she was "fasciculating". I said to him "whats that?"and his reply was "twitching". Those words MND and fasciculating...

Hi Simon,I have back problems and about 6 years ago I had severe sciatica on my right leg. fast forward to 3 years ago when the twitching started, my EMG result said I had deinervation/reinervation in my right leg. This neurologist,at the time, was not aware of my fears or that I was losing...

If it were me I would definitely go to the doctor and find out about it. You never know it may just really help you. Just find out about any potential side effects and make an informed decision.

I understand that there are other causes for BFS. I'm not trying to suggest otherwise and I do understand that twitching can create or exacerbate anxiety. I just don't want anxiety as a trigger for twitching to be dismissed because this is what happened to me.