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Gelianna,Wasn't there someone who posted that they knew a person with *** that twitched years before developing *** ? Do you remember reading about this? Or am I imagining this?Leigh

hey guys,I am not doing very well mentally and could use some support. I have been twitching well it started in my toe in July of 06 and then went all over. I feel like I am going down hill , I have ANOTHER appt in 3 weeks with one of the top als docs in the country and just can't but help...

Hey guys I was wondering if we could get an idea of how many people cramp and where it is most prominent and also do you have other places that you get cramp like feelings but it actually has not gone into a full cramp yet. I get full cramping in the arch of my left foot and sometimes a littlle...

I have a question, is there anyway to go back AND PULL UP PMS FROM LAST YEAR? i WAS LOOKING FOR ONE OF MINE AND IT ONLY GOES BACK TO DECEMBER....IF YOU CAN COULD YOU PLEASE LET ME KNOW HOW TO DO THIS.THANK YOULEIGH

Gelianna ,Yes I have had 8 emgs and out of the 8 2 were done by the top *** doc in the country, and one of them this past september showed polyphasic in my left calf ... It is weird that the other 6 were normal by my regular neuro and the last one was done in December and it showed nothing ...

Hey guys,I am kinda freaking out I have been twitching 18 months now and went to see one of the top neuros in the country and the first time all good the second time they found a rare polyphasic fasic in my left calf ... But he diagnosed me as Benign fasiculations... Has anyone else had odd...

What does a polyphasic unit mean does anyone know?Leigh

Can anyone give any info on Parkinsons or experiences to rule this out maybe from you neuro .... mine say I do not have it but I was curious it seems several people on this board have family members that have this and just wondered if anyone could educate me on this. As am still concerned...

Hi seanI do not have a flat foot but have my left foot and toe that twitches and cramps alot and yes I have had 9 emgs and 1 said neuropathy but the others did not , I have had my foot done about 4 times. Leigh

Andy,I am so HAPPY FOR YOU.....I know you have been worried and I am so glad it turned out GREAT, now go celebrate and don't look back....Let us know what your neuro follows up with I wonder if he will mention bfs.....Leigh

Hey guys I had a question. In my right arm when I rest it by my side it does not tremor but if still down by my side and I slightly turn it to the right it will start to tremor. Does anyone else get this or know what it is. Also if I use my hand just a little bit for anything and then go to...

I have been twitching 17 months now. And get ready for this I have had 8 emgs and ncv so many mris I can not even remember and entire stack of bloodtest . I have seen the top *** doctor in the country. But I still have times when I get nervous.Leigh

hey guys,I was wondering how many people experience buzzing with this CRAZY STUFF? I have experienced it in my right leg and left leg and left foot. Does this have anything to do with Parkinsons? I read a post where someone said they looked it up and it was related to this. I do not want to...

Val,I said what I did because I know the anxiety this stuff can cause. I have been to one of the top als docs in the world and Trust me there is a test for ***, it is called an emg and ncv and I do believe if anyone is worried like I was you NEED to have peace of mind. I would request this...

Val,I said what I did because I know the anxiety this stuff can cause. I have been to one of the top als docs in the world and Trust me there is a test for ***, it is called an emg and ncv and I do believe if anyone is worried like I was you NEED to have peace of mind. I would request this...

Val,Have you been to the neuro , and have you ever had an emg and ncv study? Because I Know when I have been so anxious I know that this forum has been very supportive but I think you need to go to the neuro and request and emg and ncv because it sounds like you are having symptoms for quite...

Val,Have you been to the neuro , and have you ever had an emg and ncv study? Because I Know when I have been so anxious I know that this forum has been very supportive but I think you need to go to the neuro and request and emg and ncv because it sounds like you are having symptoms for quite...

Flatcoat, I am very happy for you. I knew it would be just fine. Thanks for keeping us posted I just wanted to check in on you. God Bless Leigh

Hi double D, Did you ever get a diagnoses? I was just curious how you were doing. Thanks LEigh

Hey guys, just wanted to know if anybody has experienced any numbness with bfs?? I have some in the arch of my foot and curious if anyone else has experienced any. Thanks God Bless Leigh