Search results

it's been months since i last posted, i more or less went on my merry way, still twitching insanely e.t.c the last two weeks though have been really rough, wether it's me obsessing (which is likely) but it is pretty obvious that there has been SOME kind of change in my muscle tone, when i...

my tongue has been twitching NON STOP for over 3 months now... you're lucky

ah well back again LOL the last few days the twitching has driven me to the point of complete insanity, it's constantly in my legs, when ever i move them it's there, thumping and rippling away, they're always indented type twitching too, i've convinced myself there is atrophy in my inner calf...

first symptoms for him was that he felt like he was throwing his legs around, cant remember which one, but it was more pronounced than the other, and profound weakness, then atrophy, it was months and months before any twitching came, and even then it was only in the foot that was affected and...

that is atrophy, his hand went from normal to that in a month or so i'll remove this post if admin deems it necessary .

jeff, have you been stripping paint off a house or near somewhere that has a lot of paint around? antimony was used in paint extensively in the last few decades, what do you get into contact with daily? any places you go that has you near a chemical plant or anything like that?

think about the possibility of gaiing muscle mass WITH MND.... muscle fibres die off, which in turn your nerves that are still active recruit other muscle to do the job, that muscle would increase MAYBE for oh, i dunno, a few days until those nerves carked it and that muscle would die, after 2...

dude, relax, i went through a few days of not being able to swallow...because i had hit google again and went into a spiral of worry-about-nothing-syndrome. only reason you cant do it is because you are making yourself not do it :p

you wouldn't have been able to do them in the first place.. there is a little gap of time where there is a slow (few months max) of not really noticable strength loss, but during that time your leg muscles would be wasting away so you would be posting about that :p

right bicep will visibly jump quite a lot when i get my thumpers, i dont take any notice of them now though. although you should have seen it 30th december last year when i was standing at the end of the asle watching my very soon to be wife walk up in her wedding dress.... nerves me thinks hehe

possibly referring to CK levels, which are usually an indicator or either muscle damage/heart attack heavy drinking in some cases, dont worry too much, depends what he calls "high" Case and point, I mowed our LARGE back lawn a day before the blood test (which if I had known I was going to have...

IS DRIVING ME FLAMING :mad: THAT IS ALL..

to quell your fears.. my father's tongue (he has middle stage ALS) will quiver like water in a crystal glass when you run your finger around the rim, when it is resting in his mouth, it is absolutely bizare to watch, I too have a twitching tongue, but thats only when it's sticking out. If your...

that I can move a 29inch TV (very heavy one) much easier than I ever have before so what am I worrying about HA!.

this is so true, yesterday i spent the WHOLE day comparing my calf muscles because I was absolutely convinced the right one had changed on me and gone all small compared to the other one, I even went as far as walking around a clothing store with my fiancee, and ducking into a changing room to...

this is my biggest concern, my calf muscles are going to town on me, i've stopped counting how often they do it a minute because i loose cout kinda thing.. the good thing is though that they are twitching far too rapidly for anything like ALS to be a factor, and I dont have weakness, just a...

tyn2chill, i live 5 hours away and basically am not able to relocate to be there, his pallative care has been sorted out for when he needs it, he has in house support for when he needs it, so he's doing well.

he is 64 this year, he's had MND dx since dec 15th of last year...

achey is good :) means nothing worse is wrong LOL but it's a huge pain in the pervervial

NB: this post hasn't been edited for spelling, or meaningless rambling so I apoligise forth with.. seeming this post is about someone who has ALS, I'll post the things I have noticed with my dad, and his progression: I am posting his blog page too so I hope he wont mind: anyway, I asked my...