Search results

I have been dealing with this condition since 2005. Currently have a flare of numbness, tingling and burning in my feet and lower legs. By far my worst symptom is muscle stiffness. Saw this treatment for muscle cramping in today's Wall Street Journal that might be worth investigating. I...

I had surgery to repair a tear in my medial meniscus on Tuesday and kept my 6 month appointment with the neuromuscular specialist on Thursday. He asked that I follow-up with him after my visit in January. I was tested for Stiff Person Syndrome in January and the enzyme test came back negative...

I haven't posted on here in awhile but my leg stiffness continues to get worse. I have had this condition for over 7 years now and for a time it seemed like my condition had stabilized but now its getting worse again. I started getting a really bad flare of stiffness in both of my hamstrings...

May 2012 will be my 7th anniversary of dealing with an official diagnosis of cramp fasiculations. I have had fasics in my calves 24/7 since and sporadically elsewhere. I get all of the sensory symptoms from my knees to my feet including numbness, tingling, burning sensations and pain. My...

I saw this today when I was looking at the Washington University Medical School website in St. Louis. Dr. Pestronk's clinic is where my first neurologists referred me after I presented with cramp fasiculations over 5 years ago. If you live near the St. Louis, Missouri area I can't recommend...

I am not a Glenn Beck fan but I saw this posted on his website today. The vocal cord/voice issue does not sound good. View Sample Home > Current Events & Politics > UPDATE: Glenn's health...Share 169 Print Email Comments UPDATE: Glenn's health... Audio Available: October 8...

Here is a link to an article on magnesium and magnesium/calcium ratios posted by a board certified OB/GYN.Swift_TaySwift20

Here is an article that appeared in yesterday's New York Times concerning peripheral neuropathy. It discusses both sensory and motor neuropathy and has some good information.Swift_TaySwift20HealthThe Many Ills of Peripheral Nerve Damage Sign in to RecommendTwitter Sign In to E-Mail Print...

Kit,I work in the healthcare field and have been notified we are to be the first immunized with the swine flu vaccine once it becomes available. My employer has not specified whether we can decline the vaccine and remain employed however I believe a previous hepatitis vaccine we recieved was...

ThIs new research from Washington University may eventually help those of us suffering from the neuropathy associated with this condition.Swift_TaySwift20

Here is a link to a story that mentions the AboutBFS.com website.Swift_TaySwift20

I just spent over an hour posting about my third visit to my neuromuscular specialist and when I went to submit this website completely deleted all of my work. It contained some very important information and I am so frustrated I will only give a quick recap of what happened.I have had BCFS for...

According to this article published in the New York Times today the actual cause of a muscle cramp has still not been identified. The third hypothesis in the article provided by Dr. Schwellnus however would correlate the best with BCFS. He states "The real cause of cramping is an imbalance...

Today's local paper has a story about Washington University in St. Louis teaming up with BJC to build a local biomedical industry called the BJC Institute of Health. Basically they will be applying research done at the University into possible treatment/cures for a variety of conditions. I...

Yes, my right jaw pops since the onset of this condition. My dentist checked everything out on my 6 month visit and said I had a tremendous amount of muscle tension in the muscles. I ignore it like everything else with this condition. Swift_TaySwift20

After having my GP test my reflexes and strength my recommendation would be to leave it to a good neuro. My GP told me als would present with reduced reflexes. Then he detected weakness that none of my neuros could detect. Six months later when I had my first visit at the neuromuscular clinic...

Well today was my second visit with the neuromuscular specialist that I saw at my 6 month mark. He wanted to see me at 1 year to check my strength and reflexes. He said he would not have to do another EMG this time and he didn't. He did a thorough check of my strength and reflexes and...

Here is a link into new research from Northwestern University into the cause of familial als. Two of the primary points are oxidation and protein aggregation for those with the SOD1 gene (familial type of als). Anyway oxidative stress seems to be a major component. For those who continue to...

This is for anyone who has come down with bfs symptoms over the winter. Something you may want to consider is to always try to keep yourself well hydrated. The reason I bring this up now is because the weather is getting warmer and I had to mow the lawn a couple of days ago. Last May when I...

Mel, You said you colored your hair last week. There is a chemical called "toluene" that is known to cause benign fasiculations. It somehow affects the voltage gated potassium channel of the nerves. I found this on the neuromuscular website where my neuro is located. I know there is a hair...