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It's been almost a year and a half for me!! I cannot believe how fast the time has gone by. During this time I have had another bouncing baby boy named Benjamin. I just wanted to say hi to all of my old friends and introduce myself to those who don't know me. My twitching is about the same...

Hello everyone! I do not frequent this site like I used too, but as many have said before me, it was a saving grace. My BFS started when I was 6 weeks post-partum with my 2nd son. I had a myriad of tests perfomed, including EMG's. All tests were negative. There was a point where I didn't...

Sorry its been so long since I've checked in.... My computer was down for several months. I am still pregnant for those of you who remember. 15 weeks this week and twitching away. The twitching drives me crazy, but I keep reminding myself that I am okay..... How is everyone else?? Gary...

Joe, The very first neuro I visited tried telling me this was all in my head for several months. I refused to believe him and sought a second opinion. The second neuro immediately knew what I had and actually had it himself. (How ironic?) I also followed up with a neuro-muscular/MND...

Good morning!! Every so often, my muscles seem to become extremely sore for no reason. Today, my hands are killing me and I feel weak. This seems to be a regular occurrence since my BFS started. Anyone else?

I get that every now and then. I attributed it to anxiety, but I am not exactly sure. It was worse at the onset of my BFS.

Me too! Strange feeling.

Hi Smitty, I used to have that "rubbery feeling" too. Worse in my arms. I didn't want to hold my son because I was afraid I would drop him. That was anxiety related for me. Since my anxiety is under control, that symptom has stopped occurring.

Hey guys- Just thought I would check in. My legs are aching and I am twitching all over. It seems like some days, my symptoms are barely noticeable and on others my symptoms are raging. When the symptoms quiet down, I silently hope that this is the end of BFS. But low and behold, a few days...

lyme disease exists in your state,lyme disease is sexually transmitted from the father to the mother then to the child at birth,my son has lyme disease from birth and is seeing the number one pediatrician in the united states for lyme..dont try to ask your doctor about lyme as he will not know...

I really need some advice. I know in the past I have mentioned that my husband has experienced an increase in twitching since the onset of my BFS, but now my 11 year old son started twitching. I actually watched his right thigh twitch for several minutes last night. I am very concerned because...

I would like to say hello to everyone. It has been a while since I have posted. I am feeling much better these days. I was examined by an ALS specialist and cleared. I think that after three neurological exams, 3 EMG's, a myriad of other blood tests, EEG and MRI you can say that I am OK...

Amy, I completely agree with you. Sounds like reflux. Good luck with the ENT!!!

Yes. Sometimes the word brisk is misunderstood. 2+ symmetric are normal. The neuro. would easily detect a pathological reflex.

I am curious how many of you are experiencing muscle cramping/cramp-like pains. It seems like I am having a flare-up every week or so. With each flare-up, I experience muscle aching/tenderness/cramping. I also find that if my arm or hand is in a cetain position too long, I experience a...

Hi all!! Since I had a flare-up several weeks ago, it seems as if the twitching has increased even more. They are almost constant these days. I also feel like my arms and jaw tire more easily. I can still perform all normal activities, but I am plagued by this tired/burning/cramping...

I seem to deal with this for a few weeks at a time and think "I can handle this... This isn't so bad" And then out of nowhere, I feel like that's it. I am tired of being in pain. I am emotionally tired of twitching. I am tired of finding new symptoms and searching to find out there possible...

I have a question. Has anyone ever heard of someone having a clean EMG and later developing *** or having *** undetected on EMG? (The minimum of 3 extremities tested?) I have heard that an EMG can detect neuro diseases within 6 weeks of their onset and also that by the time someone has s/s of...

Does anyone have recurrent swollen lymph nodes? This has been happening to me since my onset of BFS. Currently, I have a grape sized painful growth behind my right ear. My GP just tells me to put hot compresses on it. This is the third month I have had this.

I thought I had a flare-up a few weeks ago, but now thngs have gotten much worse. I am twitching in my left thigh and right posterior calf constantly. My right calf has not stopped since yesterday and I am not exaggerating. I am very cocnerned. Before the twitches seemed to migrate, but...