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I am not an active member anymore because I feel mentally better. I accepted I do not have ALS or any other horrible illness. But I still have the complaints of twitching, tiredness, strange feeling in my muscels, cramping... But after my second EMG (which was OK) I promissed myself not to worry...

Today I have had an EMG and first this neuro did not want to do this because I have been twitching for so long (almost 2,5 years). But I told him I wanted to do this to have peace of mind. So because I have a lot of neck twitches he did two in my neck and one in shoulder. It was difficult to...

Hi all, Since 2 month I am reading again all post on this forum. My complaints started in august 2004. I have a flare-up which started 3 month ago I think. I was never a day (or an hour) without a twitch but now it is much worse. And what scares me now that the last three month it is a lot in...

Are facial twitches indicative for bulbar ALS? I twitch for 11 month now, starting in my hands but it seems most of it is in my neck and face now. Also the muscles in my face feel very tensed. When I have the muscles in a certain position, it will twitch! Swallowing is not really a problem but I...

I have a lot of neck twitches at the moment. I am twitching for almost a year but I fear these twitches in my neck because I have stiffness/tired feeling in my neck and cheeks. I have no problems with eating and drinking but swallowing problems for 10 month now. Is it a good sign that the...

No Eric, no unexplained fevers. They tested for Lyme but was oke. It sounds strange but I hope that the fasics are caused by B12 deficiency. And yes, I have had numbness in my hands and arms too, but that is much better now. Eve

I am so happy that my exam with the neuro was okay. He did not want to give me an EMG because he thinks I am fine. He thinks the symptoms I have are caused by emotional problems. I am not sure if I agree on that (totally) but the fact that the exam was okay is for me a sign I have to stop...

The above was read by me

Another question. I had for month a fatigue in my left arm/hand. The last few weeks it was much better. I had more problems in my neck/face area. But now it came back in my left arm/hand. I still can do everything, but afterwards the arm/hand feels very tired. Is this normal in BFS? Eve

almost all day I feel those twitches in my lips and othjer places in my face. I do not think it is anything to worry about. Eve