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Today marks 3 years of twitching for me. During those 3 years I've been through fear, anxiety, uncertainty and a thousand other emotions. I now know that this is not and will not become als/mnd. The twitches still come - tiny tongue twitches, big thumpers in my thighs, flickering in my hands...

Hi to all, I have a question regarding movement that I can see but not feel in my left foot. My big toe moves side to side constantly while my instep twitches non stop...there is also random twicthing on other parts of my foot...Is this indicative of BFS? Anyone else experience something similar...

I used to get this too - like there's a tiny man in your ear with a jackhammer. It went away eventually.

But you've been banging on about this for months and months and months already! Aaaaaaargh!

I have had hotspots last for 4 or 5 months, so you can chill. Anyway, I thought you had binned the idea of going to the neuro?

I happened to be speaking to a neuromuscular specialist on the phone this morning and took the chance to ask him a few questions. This guy works at a large teaching hospital and has huge experience. Q. In your experience, how common are benign muscle fasciculations compared to more serious...

With BFS you usually get isolated twitches in many different areas within a short period of time. For example, my right eyelid may twitch for a minute or so, then my right calf may give a couple of thumps, then a few seconds later I might get a twitch in my forearm. In ALS the whole affected...

I've had twitching all over for 2 years but for the last year (with 2 normal limb emg's) but the main thing that's been annoying me recently has been tongue twitching. It started out as a feeling of stiffening of the tip of my tongue. If I looked in a mirror I could see little dimples...

I guess that 2 years of twitching almost makes me an old-timer here! Well, 2 years ago yesterday I started twitching in my upper lip. Over the next few weeks it spread everywhere. I googled my symptoms and of course my life fell apart and I was convinced I had als. I saw a neuro who examined me...

grow up you crybabies, it is in your head!

these are new for me.. just started in the last two days. they are really light, rapid twitches on the sides of my feet. sometimes they are light and i can't feel them but i can see them..and sometimes they kind of tickle. they've been going 24/7 and its driving me nuts!!

jaw still twitching...they say it is tmj, but it has spread to the other side of my face...right upper check...right below eye, but in the cheek...constant for over a week, and of course i stick out my tongue and now i am seeing (not really feeling) twitches...i am freaked about bulbar...

So far, most of us with bfs have been worried about having als/mnd. Therefore, we have mostly seen neuromuscular specialists because they specialise in als/mnd. From my own research it appears that the only theory about bfs that has any evidence to back it up is that it is an auto-immune...

I had a second emg today - this was exactly a year after the first one. It was completely normal, of course. So I have bfs and not als. I've posted my story at I think I'll stay away from this site for a good while :) David

Pretty much a carbon copy of everyone else's stories, which I think is very reassuring. I'm a 41 year old who started twitching in July 2002. It started in my upper lip and hung around for a couple of weeks but I thought nothing of it. Over the next couple of months I started to notice odd...

Just a quick query with regards to sensory symptoms and als. Would someone with als get tingling and numbness? I have had both of these symptoms plus obviously the twitching in all areas of my body. Would appreciate your feedback on this. Thanks Nicki

Remember that this was a snapshot of patients as they walked in the door of the doctor's office. It does NOT take account of results of physical examination or emg. So, if you have seen a neuro and had a normal examination and/or emg then this stuff does not apply to you. This paper would only...

Uber, If you go back and read the Mayo Clinic paper it confirms that these sensory symptoms are very common in bfs. Sometimes by thinking about these things too hard they can suddenly feel a lot worse. It's not the kind of thing that lends itself to rationalising, so if you keep trying to...

Stop this, it's complete nonsense! You cannot take extreme anecdotal examples and extrapolate them to everyone else. There is excellent evidence that people with bfs do not develop als (Mayo clinic study). Sure, the very occasional emg may not pick up als in the early stages - no medical test...

Now when i read this well, a large proportion of twitchers may have some sort of neoplasma, about 20%! I read PNH can well be an early sign of cancer, most often thymoid or lung. This is an argument in favor of testing. It may detect cancer in an early (more curable) stage. But all in all, it...