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Hi I am Karen and I was a regular poster 10 years ago. I have to tell you guys if you have had a eval by a neuro, please move on with life!!! Some of you may not believe this but I was on this site probably 24/7 10 years ago. Gary can attest to that fact, I think. And guess what!? I totally...

Hey there how the heck are you? I was just checking in. It amazes me how many still come here. I hope everything is good for you. Things are going pretty good for me. I had some major work stress last year that sent me into an anxiety tail spin but when I twitched I never once thought I had ALS...

I noticed you replied to my oldie with question post and you are in KY. Where? Would love to meet a fellow twitcher. PM me your e mail if you like. I tried to e mail you but it said I was not permitted to. Thanks.

I haven't been on a long while and I am not worried about my twitching but since I know for a 100% fact that mine is from anxiety I have a brand new sensation I would like to ask you guys about. Recently I had an abnormal EKG and I was put through cardiolite stress test, echo and holter monitor...

Hello everyone, I just wanted to stop in and say hello. I don't really recognize anyone other than Gary but I didn't spend a ton of time searching for familiar screen names. Hey Gary, how are you!?!?!? I am a 4 year veteran. Well actually I am a 16 year veteran. I started back in 92. It subsided...

Gary, Great to hear from you! I am doing wonderful! I just have a really hard time looking back on those dark days and believing my state of mind at the time. It's amazing and sad to me actually but I am doing so well now that I try to just accept it for what it was and not think about it too...

When I was in my darkest days I posted about a local radio DJ here in Louisville that "had" ALS. I even e mailed this guy giving him support, offering my help and admiring him for his courage and will to go on. Today one of our local TV investigative reporters broke a story that this man who...

Hello everyone, I hope everyone is doing well. I was doing absolutely great. Feeling good with minor worries lurking once in a while and then a bomb shell! I found out that a 32 year old friend was diagnosed with a stage two brain tumor! He has still not been giving a prognosis after two...

Hello friends! Just checking in. Some of you know me, some don't. I don't read post because I am one to find one little thing that I hadn't thought about in the future and it makes me doubt myself and my progress but I wanted to give you an update and say hi. What a past two months I have had. I...

Hello everyone. Hope you all are doing well. This may be a fluke but on Saturday I did a ton of shopping and walking. Sunday morning I woke up hurting and twitiching a lot. I did a complete stretch program from neck to feet and the twitching went away almost immediately and the pain is non...

Okay if I can get over the fear ANYONE on here can so if you have been told you don't have it then move on. It's been one year for me and I don't think I have "it" anymore. Now let me say this. I will never in my life twitch again without thinking about "it" but not from a standpoint that I...

I everyone. Just an update on me. I'm hanging in there. I pay little attention to my twitching at this point. I do have days where my legs feel like jelly still. That bothers me but not really from an ALS stand point any longer. My ear is still driving me nuts. As I said in another post I was...

Since last Tuesday I have had on again off again dizziness. I was diagnosed with an undetermined inner ear problem in June of this year but they said they were not majorly concerned because my MRI was clean. I get sweaty a lot prir to it and then it hits and it's usually brief but enough to...

Clarification: My neuro said that I personally did not have NMT based on my EMG findings. He did not say that you did not have it. Nor did I say you didn't have it. I think it was your first post that I showed him to see if he thought I had it. I wasn't asking him to confirm your own personal...

Realease your fears and take a deep breath. My last post was a ..... joke!!!!! A terrible joke, yes, but I believe you ALL need to fight against your terrible fear to get als. Reading your answers (in particular Alonzo) I believe you all are rabbits, weak. You are obsessed, you don't live your...

I have to ask how did your picture change from female to a man? Just curious! :D)

Hell all. I had the EMG in my right arm. he poked me 5 times. He said it could not have been more normal. I asked him what the heck could be causing all the pain in my wrists, hands and leg and he said it could be the tension in my body, could be fibro. I asked about BCFS and he didn't really...

Hey, I was reading old posts today and came across one that said you went to BU? Did you mean Boston University? My husband was there from 89 till 93. If if was Boston when were you there? What's your last name? I know it's a large place but stranger things have happened! His name is Rob...

Well I almost made it!! It is 10/31! I have not had a good week! I had to come back. In the past week my right arm, wrist and fingers have started to hurt a lot and feel tight, stiff and funky. Then about two days ago the twitching has really amped up! All over! I did go for a second opinion...

Yesterday I cleaned out my daughter's toy box and it wiped me out. I felt as though I needed a cain to get up from the sqatting position but I really had no real trouble getting up or walking. Then later in the day I took a nap with her. Ever since I got up from the nap my lower back is in...