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Hi all,I know I have many concerns about what might be wrong...but I had long neglected the thought that I may be experiencing the symptoms of ALS that begins with the vocal chords...So as you know from other threads, I had some symptoms besides all over twitching since Sept 2014, back in Dec...

Hi all,I posted in another thread with a fellow twitcher who also complained of swollen lymph nodes.Basically since last Tuesday I noticed a proper marble sized lump in the left side of my neck. Then on Saturday my neck became really sore on this side from my ear to my collar bone and my back...

Hey all,I know i mentioned before how my hot spot area is my left leg. Well after 3 weeks of a sore foot, following 2 weeks of a sore knee shortly after the twitching began, neither the foot or knee hurt anymore.I had mentioned how I noticed that my left knee was thinner [more curved on the...

Hi all,I wanted to know your thoughts, understanding of this...I have read that being HIV+ can cause a kind of neuropathy that can cause twitching/ spasms. I had unprotected sex with a long term casual partner from a country where HIV is on the rise. Although he is a from a diplomatic family and...

Hi all,My foot is definitely showing something wrong. I've taken pics now which demonstrate this...Can someone please give my a second opinion on my left foot? It's much more curved than the right and hurt along the arch where this curve is showing. Everything I look up doesn't sound...

Hi guysLike all of us experiencing these horrible twitching/cramping symptoms, we still have to get on with life...at the moment my work is extremely busy so i've not been eating, sleeping or drinking as well. For a few weeks, the twitching in my left leg had calmed down a lot [no more 24/7...

I have a question about the babinski reflex...one thing- can we illicit this test on ourselves? I'm interested as my left foot [the one I always worry about] has a big toe which droops lower than the rest of the toes. It's not a toe drop because the right foot has a big toe which droops a little...

I think part of what make BFS/ BCFS or the "hope" that it's just BFS/ BCFS is that you have to wait for so much time to pass before you can feel you're "in the clear".I read a neurological study that said for the 7% of ALS patients who presented with only fasciculations as their first symptom...

Hi all,I never really look at my tongue, but read something about how ALS patients with Bulbar onset never feel the twitches in their tongue and that it looks like the tongue is quivering over a bag of worms.I looked at mine brushing my teeth last night and this morning, and whilst I know a...

Hi all,I don't know if you guys know much about this neurological disorder...I was wondering if my symptoms are indicative of asking for a test for this...Obviously I have all over twitching, but it's really fixed in my left leg and foot. This has been for the past 2 months. My calf muscle is...

Hi again all,Since I am a new twitcher [almost at 2 months] I am still trying to come to terms with the variety of symptoms I am experiencing.I know cramping can be a symptom of BFS, and I've had a few since this started [mostly after exercise in the leg which twitches most] and sometimes in the...

Hey all,I just wanted to ask how common this type of twitching is with BFS? I keep trying to tell myself these new random twitches are more symptomatic of BFS than ALS, but I always struggle to deal. It's been a week now since this twitching began and after the trailer for "Youre not you" aired...

Hi all,As many of you know, I have been twitching since the beginning of September. It is constant in my left leg and occurs sporadically in my right leg, abdomen, shoulders, biceps and left eye. I had a lumbar MRI = Clean and had an EMG in my left calf only after about 4 1/2 weeks of twitching...

Hi all,I know from reading BFS in a nutshell that aches and pains and cramping often come attached to BFS.I was wondering to what extent the pain can be felt though? I got a normal EMG result this week after 5 weeks sold of 24/7 twitching in my left leg. Over the past few weeks, however, the...

Hi all,Still awaiting a neurologist's accurate translation of my EMG from over a week ago...frustrated is not the word!I just wanted to ask, in the mean time, that whilst I know BFS can be accompanied by pain...I don't really know how to describe the pain I am experiencing.Like I said, my left...

Hi all,Still no EMG results...after the test being one week ago. I've been running a strange kind of apathetic yet emotional roller coster. I know there's little I can do to hurry up the results...other than wish for there to be a competent Chinese/English speaking neurologist somewhere in...

I thought I posted this but it seems to have disappeared...Ok, well nothing thorough has come back to...basically the doctor got my report loosely translated by a Chinese colleague [i live in beijing and the report has been sent to hong kong for a neurological specialist to translate].So far...

Hi all,I just wanted to vent my fears...I had my EMG test on Wednesday...I am still awaiting the results because I live in Beijing and everything needs translating. There were only technicians doing the test so they couldn't say anything about the data they were collecting.I was so nervous...

Hi all,I'm a little freaked out again. My EMG is tomorrow so hopefully in the next day or so I will know more...However, over the past number of days I've been experiencing very sore aches and pains in the muscles in my left leg- the one which twitches constantly. I hoped this was just a typical...

Hey again...I'm always full of questions...So naturally when we all suspect ALS we start doing the strength tests etc- hopping on our toes, holding stances on our tip toes, walking on heels etc.Do any of find this causes you twithy limbs to become more painful?Like I said, it is all located in...