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Yes - just one more nerve related problem! I searched this site and found TWELVE pages on it - it seems many of our members had shingles before BFS, and often at young ages. It will be difficult to find those of us who may have developed shingles AFTER bfs. But, of course, I think I did. I...

hi all -- wanted to update you on my visit to Mayo clinic as I sit here now, yesterday, and Friday. I had thorough clinical exam by med student and neuro. He said quite sure no ALS, MS, PD, myasthenia gravis or any such thing. But ordered more tests anyway "to confirm" he was right. Had EMG...

Dear all,A year ago (a little over a year into this at the time) I had a paraneoplastic blood assay done. Every single blood marker was ZERO...except one. The VGKC ab was 10. I know, I know, this is a negative result but still. Those anti-bodies were present. I haven't been able to really...

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I found especially the anxiety and nutrient malabsorption photos most applicable to those of us here :)

Does anybody have any experience with this or knowledge? I am becoming suspicious of parathyroid issues because of excessive salivation I have no trouble swallowing my saliva but I'm definitely producing more. I don't know how it might be related to thyroid but I'm also suspicious of thyroid...

Last night just after or as I was falling asleep, I woke suddenly to what seemed to be a gunshot going off right by my face or inside my head. I saw a bright flash of light and a REALLY loud noise. It was so confusing because my husband slept right through it and I couldn't understand how he...

I wonder if we should all take a break and come back on October first and update how we are feeling after not reading or contributing to the boards. I support your seeing a psychologist (CBT) and a psychiatrist. I started in January and the most helpful thing he has done (he has had many...

Earlier today Twitchydoc wrote this:"I find it quite interesting that according to Eisen, BFS may be reccessively inherited - which is confirmed by Matt and probably me, as my grandfather has had fasciculations for at least 12 month (I noticed last summer)."I thought it would be interesting to...

So, I just found and old prescription bottle for Minocycline 100 mg to be taken twice per day. I counted and I took 32 of the 60 pills in the bottle. I discontinued taking it because I had a few episodes of "angioedema" -- severe facial swelling and itching and oozing. Nice. I can't say I...

Hi everyone,After this condition began and I read up on it, I told myself I am "safe" after 6 months and definitely at 8 months. Good news is, I do think that I am!! Bad news is, I think I'm worse symptom-wise. I do have good times, but the flare ups are horrible. Just this week new symptoms...

It seems several of us have been diagnosed with this. I have been looking into it and it seems it is not always a simple diagnosis. Those of you who have it confirmed, or who have been tested for it...can you please share what was involved in your diagnosis? I have found three different tests...

Really stinks. I've been working on this so hard and thought I had come along way and today I feel like I'm back at square one. Can anyone else relate to this? Now I have had a little bit of a bloody nose a little bit of a swollen cheek, some swelling in my cheek, and swelling around my eyes. I...

Hi all, Just wondering if any of you yawn frequently? Just came across something when looking up "hyperexcitability" that says frequent yawning is a sign of ALS. I used to yawn constantly as I exercised in the morning. It has been at least a year since I noticed this ALL the time but is...

Stumbled upon this. Just a repeat of what has been said here, but maybe from another credible voice. Also info about Carpal Tunnel and EMG

Hi everyone. I am writing this post as my contribution to the board for any future members who search these words here in this search engine or maybe any other search engine. For several months I have been absolutely CONVINCED I have atrophy in my wrists, more pronounced in one wrist. I was...

Anyone know why a highly respected neuro clinic uses techs? My tech was a secretary they offered to give training. Also the difference between needle and surface EMG ?

Hello all, something new and wondering if anyone can relate. I have always considered myself an easygoing laidback loving and friendly person. Except when it comes to my health. Ive had a series of stressors over months and it has culminated in the twitching. With this, my nerves feel...

I am relatively new to this. I thought I was doing really well the past few days, progressively better over the past couple weeks. I was still twitching, but barely noticeable, and sleeping quite well. Weeks ago I had the buzzing, vibrating, tremoring, and twitching so much that sleep was...

Hi all,I have done some searching and cannot find a satisfactory description of what progressive weakness looks like. Being unable to hold a cup or tripping to me indicates some paralysis, but what would the stages of first perceptible weakness to first indication of paralysis look like? And...