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Came across this. Article doesn't really tell us anything we don't know but since it mentions this particular site a few times then thought I would post it.By Margo White In Health What is benign fasciculation syndrome?We’re often, quite rightly, cautioned against using the internet for a...

HiToday I have just be diagnosed with REM sleep without atonia. This loss of motor inhibition is often an early sign of neurodegenerative diseases including ... I am terrified so so scared.I just want to give up.

A study which aimed to disprove that the presence of fasciculation in the neurological examination is indicative of amyotrophic lateral sclerosis.Basically it lists and examples a whole array of causes of fasciculation, with the aim of destroying the myth that fasciculation means ALS.There was...

Hi wonder if anyone can help. Been twitching widespread for over 3 years, had 3 emgs and all fine. I was really beginning to walk down the road to recovery, when I started to get throat twitches. Front, middle, slightly to the left, little flutters but definite fasciculations too rapid to be...

Dreaming I was only dreaming of another place in time....oophs sorry you caught me singing a bit there.Seriously, does anyone ever dream that part of their body is not working. I have a real fear of MND that I cant let go. I often wake up and in that half asleep moment am convinced I can no...

I read that it is common for people to develop widespread fasciculations after they are brain dead..... mmmmm does that mean there is a high chance we are all actually dead even though we have clean EMGs, clean clinicals and no weakness.... I am seriously begining to doubt my gp and neuro...

HiJust something to read if anyone interested. Here is a passage from the introduction to a recent article in the J of Neurology. I am putting it in because although it is something we all know, this journal (next to Nature) is the journal for publishing all things neurological. Peer reviewed...

Hello,When it comes to MND/ALS I am a bad researcher, I cherry pick the medical literature to feed my fears and often ignore those articles (and neurologists), which could offer huge reassurance. i.e. I polarise my evidence to fit my symptom profile, to convince myself that my fears are...

hello,Wonder if anyone has any insight to help me please. history of BFS for over 2 years duration ( 3 EMGs all with widespread fasciculation potentials, but normal in every other way, nerve conduction also normal. bout of tendonitis in foot, but no sensory issues until June this year , when I...

I know a lot of us have been told we have “ functional symptoms of neurology” (unexplained symptoms that are benign (hate that word) rather than a true disease. Thought you might find the following article interesting. It is the model a lot of neurologists seem to use today ( especially in uk...

Just wanted to ask anyones opinion please ........................because I was doing fine until 2 months ago. Background: 2 years twitching, buzzing, 3 EMGs all nomal except fasciculation potentials. diagnosed with BFS. I even have fasciculations in ear muscles, blocking my heaing at...

Hello my name is Helen. I have been around here for 2 years, I have BFS, and I live in the UK. As there have been many postings concerned the publication of articles claiming that fasciculation potentials MAY be one of the earliest changes in motor unit physiology in ALS I decided to email some...