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  1. J

    Mathematical Insight into HPA Dysfunction

    As several of you may know, I am a mathematician by training and you may be wondering wtf does this have to do with BFS? Well, I was very intrigued by TwitchBFS's post about HPA axis dysfunction and after thinking some more about how "suddenly" severe twitching comes on and often persists...
  2. J

    One Year BFS Journey: Reflections

    On 6/26/13 (a few days ago), I came across my one year journey with BFS. Overall, I am in much better shape emotionally than I was a year ago, when I would go 7 days in a row without sleeping. A year ago, my twitching was pretty mild, but I had the worst sleep-onset jerking imaginable, which...
  3. J

    Anxiety Symptoms: Reassuring Explanation

    I came across a very reassuring thread in another forum. One poster (he shows up on page 2 and goes by the name "itoldyouiwasill") has a very gentle, yet straightforward way of explaining how our symptoms (sensory and twitching) are indeed physical manifestations of anxiety. He uses a clever...
  4. J

    My First Twitching Video

    Ok, so this is my first twitching video. Look in the lower right hand corner to best see the twitch.
  5. J

    Dangerous Ingredient in Common Products

    Watch out for this ingredient in many products, ranging from toothpastes to soaps to deodarants. I accidentally brushed my teeth with some toothpaste tonight containing this ingredient and then I spent the next hour in bed wondering why my twitching ramped up and both of my feet felt like they...
  6. J

    Stomach Twitching for a Week?

    Does anyone else get a lot of stomach twitching? Mine has been twitching and thumping away now for close to a week, every few minutes.
  7. J

    Exploring TMS for Epilepsy and Dystonia

    Transcranial Magnetic Stimulation (TMS) is a modern treatment approach used to treat more severe cases of epilepsy, and most recently, dystonia. TMS is briefly described as follows:Transcranial Magnetic Stimulation is a noninvasive technique that uses electromagnetic currents to alter the...
  8. J

    Worst BFS Twitch - Woodpecker-Like

    Ok, there are thumpers. I get these all the time. But a little over a week ago, I experienced one of the worst twitches I've ever had in my 5 months of BFS - what I can only begin to describe as a woodpecker-like twitch in my ankle. This twitch came on STRONG, like a thumper, but it just kept...
  9. J

    BFS in a Stingray: Fascinating Discovery

    Check out this video of a stingray's flesh twitching...so humans aren't the only ones with BFS, lol:
  10. J

    Neck Jerking Nightly - Need Help!

    I am not afraid of my twitching, although it is quite annoying, but I just can't wrap my head around this other symptom I've been having since July which is getting much worse as the weeks roll by.At night, my neck jerks left to right multiple times per night and recently, started jerking back...
  11. J

    Reducing Widespread/Violent Twitching

    Threads like this have been done before, but not recently, from what I can tell and the more recent info about this, the better.For those of you for whom frequent/widespread/violent twitching is your main problem, have you found any medications or medication combinations that have worked to...
  12. J

    Sleep Disruption From Intensifying Twitches

    I've noticed lately that as my twitching intensifies and spreads, the quality of my sleep has deteriorated as well, to the point where I need medical help. When I manage to fall asleep at night, I always fall into a very light, dreamy sleep that only lasts 30 mins - 2.5 hours max. Then I wake...
  13. J

    Klonopin for BFS: Experiences and Updates

    Ok, I know this topic has been done before in the past, but it's been awhile and I'm looking for some new experiences and updates from people who have tried Klonopin to help with their bfs symptoms. I am at a point where my BFS is so horrifically bad that I am risking losing my job and placing...
  14. J

    Twitching Painfully with BFS?

    I am only three months into this BFS mess and I was wondering if anyone else out there gets very hard and violent twitches all over that actually cause pain. I get these painful ones in my calves, feet, above the knee, quads, shoulders, arms, hands, neck, face, lips, and eyelids both at night...
  15. J

    Identifying Potential BFS Flare Triggers

    I was wondering if you guys had any ideas what causes your BFS to flare up and spread into new regions of your body as well as intensify existing ones. Perhaps this could help some of us to better identify and avoid potential flare triggers. I've had a very, very rough three months now with...
  16. J

    Extra Adam's Apple - Strange Click?

    Does anyone get a strange click in their throat near the Adam's apple when they raise their head up...almost feels like there is an extra Adam's apple in there? Very weird symptom that started for me after my one dose of Ambien on July 30 and I still get it all the time.
  17. J

    Rapid Progression of BFS Symptoms

    I have been searching for answers about what I have for a few months now. I know that I don't have ALS, MS, or anything sinister, but I am wondering if the unusually fast progression of my BFS symptoms points to anything else. I will detail the progression below and I look forward to hearing...
  18. J

    Dealing with BFS and Sleep Issues

    Ever since having BFS, my sleep has been absolutely miserable. Not only do I get twitches at night in every imaginable place (head to toe), but I also get really annoying and frequent myoclonic jerking which makes it impossible to fall asleep or stay asleep often. And it keeps getting worse as...
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