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Hey all,I have BFS since 2012 with twitches and pain. After one year, they were almost gone, I thaught everything was behind me and that I was cured.But 2 monthes ago I felt a big pain in my shoulder, day and night but mainly in the evening. Horrible pain especially when sit. I noticed that skin...

Hey,I would like to know if anyone knows how the docs can make the difference between BFS and Syringomyelia, without IRM. I mean, both can provoke fasciculations and pain.Any idea?

Hey,I'm a 11 months twitcher. Twitches have become bearable and I hardly hink about them. But now pain is my worst symptom, it's ruining my life. I have a lot of muscle pains, in neck, knee, ankles, calves and so on.My main fear is that the pain does not waxe and wane as it used to. Now the pain...

HeyI was going better when 3 weeks ago I started feeling aches in my neck (in the front and in the back). Then swallowing was kind of painful sometimes. And now for 2 weeks I have some swallowing issues. I mean I can swallow anything but there's always a feeling of some food stuck in my throat...

I don't know exactly why but I feel much better for several days now. I have almost no fasciculations. I mean I still have but not the non-stop ones. Just the small ones at random places.The pain has also really decreased. Last month walking had become a painful moment due to my achy ankles and...

HeyI have a weird soreness/aches in my jaw for 1-2 weeks now. I hate this it's non-stop. Of course no weakness, no troubles for eating or speaking. The pain is light but I cannot focus on something else. Hope this will leave someday!Anyone had this before?

Hey,I will try Powerade since Gatorade is hard to find in France. Is ther any difference between both for treating BFS symptoms?Second question: How much should I drink per day? It's expensive and disgusting ! Hope it works at least.Third question: For thosewho noticed any improve with Gatorade...

Heythis week end I've been skiing with friends. One of them had cramps in his chin each time he was yamning due to the cold (-2° C).Well just to say this is common on healthy people. I don't think he is afraid of ALS since he noticed this symptom! If I had this or other people on this board I...

HeyMy GP sent me for some blood tests because my muscles have became very sore for one month now. My CPK is at 202 (normal below 200). I didn't any exercise the week just before the blood test. My CPK was a 150 at the beggining of my symptoms 6 months ago.I'm quite worried. I know CPK can be...

Hey,I decided to stop drinking any cofee for 2 months now and chocolate and sugar for 1 month without any result. Today I decided to take a good expresso with a sweet pain au chocolat and then had a good diner with good wine and food and I feel so much better tonight. Almost no twhitch for 2...

I know that some BFS sufferers experience cramps at different degrees. I would like to know how the cramps appears? Is it suddenly while at rest during the day, during your sleep, during exercise, or after exercise? Or is it just that you can provoke cramps easily with some movements?I have some...

Hi all,Yesterday I had the bad idea of looking at the values of my EMG in order to see how normal they are. Conclusions of my EMG done after 3 months (I'm at 8 now) is velocities: normal,amplitudes: normal, everything normalBut I saw that I have 2 nerves (left ulnar below elbow and right median...

Hey,just to relate my last neuro visit. I took an appointment because I had many new symptoms such as non stop pain in wrist, cold sensations, cracking joints, vertigos, cramps. In my 1st visit, he made me an EMG and said: nothing to worry about. Just ionic disequilibrium, it will disapear in a...

It seems that workout and exercise tends to lower symptoms on some persons. It is also my case. I would like to make a little poll about this topic.1st question: How much exercise did you do BEFORE BFS?A) Almost neverB) From time to time (when time and motivation enough)C) Once a weekD) Almost...

Today I had a cram in my calf. I admit that I provoked it volountary because I wanted to understand why I have cramps during the nights but never during the days.So I had this cramp and during the same time I had hundreds of fasciculations on this calf. It was like many waves on my calf. Anyone...

Hey,first of all, let me thank all the vets here who keep supporting the new members like me.My widespread fasciculations started 6 months ago with 24/7 on some hot spots, and nightcramps. 2-3 months ago, they started to diseapear, no more cramps, much less fasciculations, and no more 24/7...

Hey,I think it would be a good idea to have a french speaking forum out there (and also other languages maybe). Indeed I found many french people who are not aware of BFS on french websites. Since many people are not good enough in english, they cannot go to aboutbfs to ask their questions.I...

Hey, I would like to know if aches are a typical symptom in BFS. I had an EMG exam last month which was OK and my neuro told me I had nothing to worry about but when I asked him about the soreness I have in several parts he semt surprised and didn't have real explanations. I have aches in my...

Hey,I have several symptoms for 3 months now, including widespread fasciculations, pins and needles, aches everywhere and many weird things. I think this is BFS but I've not been diagnosed yet.1 month ago, fasciculations increased a lot, especially in my left foot. My sole was twitching 24/7 and...

Hey,I'm a 28 yr old french maleFor 2 months and half I have twitchings all over my body. It started by my tympanum vibrating and few days after, I had fasciculations on arms, legs, lips, etc... (my ear problem disapeared since). Few days after I started feeling pins and needles mostly in my...