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Anyone ever done this while awake? Like to the point you can't breathe for a few seconds? I was just sitting there and swallowed and choked on my saliva. Was coughing and struggling to breathe for about 20 seconds. It was terrifying. Been having some bad days. I'm so tired of this. I think I'm...

I guess I qualify as an old-timer now. This month marks 5 years since I saw/felt that initial funny twitch on the sole of my foot. Was getting ready to go to a Christmas party. 5 years and tons of different weird symptoms and anxiety problems later, I'm still doing fine, and I had an EMG today...

My tongue has been sore for two weeks. I think it's because I was overusing it by self testing. I think I made it worse by inadvertently doing things to make my mouth excessively dry (baking soda toothpaste, not hydrating etc). I've fixed those things now. I've been trying to rest my tongue but...

Anyone have this? I don't know if it's what I'm experiencing, but I notice lately that my left arm will involuntarily relax itself, like when I'm leaning on it. Then it'll tense back up like I want it to, then it'll relax itself again. I don't think it's loss of strength per se because I can...

Has anyone ever had their free copper levels tested? (In other words, have you ever had the following 2 blood tests: ceruloplasmin, and serum copper.) Free copper can be calculated based on those values.I have a theory about some of the major symptoms that we experience and it would be very...

Is that possible? I noticed a giant dent in the very back right side of my tongue. I also see a couple of small dentsin front of that one. Everything i see about teeth marks is always on the front of the tongue, but mine are in the back???

Been noticing this issue lately in tandem with my soft palate issues ... whenever I bear down (hold my breath) slightly, for instance when turning in bed at night, or leaning over, or holding back a laugh, or picking up my kids, I tend to let some air leak out and so my vocal cords make a...

How do you guys cope with anxiety until tests are done (assuming they come out good)? I've got appts next week but I am going to be a nervous wreck until then, and even then what if they come back bad? This mental pressure is just too much to bear.

For all you math and statistics whizzes out there ... I'm trying to calculate the chances of getting bulbar-onset ***. Anyone know if I'm doing this right?The approx. incidence (chances) of getting *** are about 1 out of 100,000 (ranges from 1-4 depending on who you read, but it doesn't change...

Has anyone had a feeling that their soft palate is sagging down while they lay down at night, closing off your airway? It's a very distinct feeling, like there's a blockage that prevents air from going out your nose, so you have to breathe through your mouth instead. It happened this morning...

Hey all, long time no see. I was able to beat my fears for a good long while, but it seems like once a year every year, I go into full-on panic mode for several weeks/months. It's that time again...Lately I've been getting this rattling sound in my sinuses/upper throat when I talk. It's when...

I posted my EMG results a few days ago. I finally got a call back from my neuromuscular specialist. Just like the EMG neuromuscular specialist had said, no sign of ALS, despite the polyphasics, insertional activity, MUPs, etc. He said that it was overall a "very good" EMG, that he was "not...

So I got a copy of the report. It's a doozy, with all kinds of scary words, but I'm starting to realize that these scary terms don't automatically mean something bad and that I need to trust the neuro who has been doing nothing but reading EMGs day in and day out for 15 years to know what she...

So I just finished and promised I'd come back with results. The nerve conduction was fine. The emg had some abnormalities like the one from two years ago. I heard the doctor mention crd's, polyphasic potentials and reduced recruitment to the assistant doctor, so I took mental note and asked...

This is weird. I noticed a twitchy kind of feeling in one of my toes today....but it isn't a real twitch. Instead, the toe moves to the side by itself and then just "holds" the position on its own for about 10 seconds, then releases, where upon the toe gets back in line with the other toes...

Anyone else's hand or fingers tremor when making a pinching motion (applying pressure between fingertip and thumb)?

I was diagnosed with bfs 3 or 4 years ago. Constant twitches mainly in calves and soles of feet. No pain or other symptoms though. I have a follow up EMG every year and I just had my latest one. The tester said nothing much has changed and cant see too much to worry about, but he said he thought...

I feel sick to my stomach. I have noticed lately that when tapping my feet, my right foot is slower and more awkward than the left. The left foot taps fast and smooth, while the right foot is kind of awkward and all over the place. Sometimes I can get it to tap nice and smooth and fast...

I'm usually skeptical about things like this, but through God's grace I've been cured of a disease (with certain medications) that previously routinely killed people in their 30s, so I try to not be entirely closed-minded. But has anyone here heard of NP001? The various ALS forums seem to be...

Sigh. Never thought I would freak out and post on here, but my anxiety is sky-high and I want some clarity. I'll try to keep it as short as possible.About February 2010 I went through probably the most stressful period of my life. Shortly thereafter I began having a lot of symptoms ...