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I am really sorry that I do not find time anymore to come back to the forum more often. I have 2 Jobs now, 2 little kids, house and dog so..well....I wished my day had at least 50 hours.This is one of the still-alive-and-fine posts, I know all the newbies like :)I guess some of them habe found...

Dear BFS Veteran, I guess you remember the first months of your BFS. Congratulations you are over those terribly scary times now.This thread is here to see, what has helped you through these days.It would be great if you took a few minutes to answer those questions shortly. This will likely not...

I meant sticky note but i cannot change the title LOL. Anyway...I spend a lot of my private time talking to people on this board.I mean A LOT, time that is taken away from friends and family. I am so thankful for my understanding husband that won't moan if I am late for a romanic dinner ...

Recently Leanne and I have been burried under tons of anxious or even hysterical emails and FB questions about all this food stuff. I want to point out something here, I tried to bring across a few times before: this board exists since 2001. That is many many years. There were many many VERY...

You know my tremors and my twitches on cam , but I got a new video for U. As some know, I was diagnosed with chronic hyperventilation syndrome /spasmophilia which is most likely the reason for my BFS. Strange enough this seems to have been caused by an infection. Just today I learned that that...

Daniel, I honestly can say that I am so totally proud of you *hugs*. To the newbies: Daniel was really scared, I mean really really really damned scared when he got all this crazy stuff. He did weird things a lot that might have apeared a bit...strange maybe. But as he was such a kind and...

Wow..I am a piece of bacon. Even my hubby is astonished by the intensity of my twitching EVERYWHERE. :eek: I fell down the stairs yesterday , a really long way and now I am green blue and purple and a bit bloody all over (but OK, I look like after a bad bar fight but -astonishingly-nothing...

I just started to collect some benign twitching vids from the forum members. Hopefully people can find some reasurrance in those and are not searching on youtube and stumbling over ALS Videos. Ih you have some more, just send me the link I will add them.triceps: bicep:........tongue...

...it is already 3 weeks ago that I had my first EMG anniversary. Of course I was convinced I was dying, imagined my kids growing up without me and the usual stuff. A crying mess, my mum and sis had to come and take care for my kids. My Symptoms were enormous, of course I was twitching but I was...

might be that this is something that only worked for me , but I have ben telling it a lot to others and just thought I might put it down here. Of course this view is a good basis for discussion and I do not mind anyone telling me that in his view it is all BS and that reassurance is a lifesaver...

A full year of twitching now. You have made progress so much. U are setting new standards for 24/7-marathon-twitching and have become about-BFS.com's most popular video star. But also you have fought your anxiety so much and you are kicking that beasts butt for sure. And with your never-ending...

I guess it is all written above. I am just very curios because it affects myself and I know that there are some other people that share those issues.Me, all my life pre-BFS I was a a bit mote twitchy than the average person. PLUS I have had some exercise intolerance, from childhood on. Although...

As some know, I have just been going through a mean flare up brought on by a virus (again.. :rolleyes: ). While I was already able to calm down the twitching again, I am still dealing with arm pain/shoulder soreness and leg pain. A friend suggested kinesiological taping for me, which can be used...

6 months ago.....I felt almost disabled by BFS. I could not stand for a minute because my legs would kill me from pain, I could not lift up my arms to brush my hair because they were so sore and heavy, I could hardly walk because my legs were so shaky and tremorous I could not trust them...

Yesterday I started my therapy I have already told you about. It is called "multi modal" therapy because it has different ways of treating my BFS. Astonishing to me: although anxiety is part of this syndrome (like depression in Fibro), I am not having psycho therapy, although my doc is a psycho...

I started my therapy at the practice specialised on all this "weird stuff" we got today. After my first bunch of treatments I got to see the doc, and I told him about this forum and that there are thousands of people on here that suffer from the same stuff as I do. He took a look at the forum...

..if the the there are no unexpected probs popping up, I will start the therapy I have been talking about on next monday :eek: because someone cancelled. :eek: It will be very intense in 2 weeks and I have to keep doing some things later on at home. I will try to write a daily report of what...

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..No, not a neuro. I had 8 neuros (in hospital there was a whole group of then) or so telling me that -whatever I have-will not kill or disable me and one that said the last thing he would do is to try some more meds on me...(after my allergic reaction), I guess I am done with neuros...I saw the...

Do any of you guys get a ticking thumb? last night while trying to sleep my thumb was twitching like a ticking action. I awoke during the night same thing and then it got me wondering was it going on when I was asleep?No real bother but odd, I have had it before but I don't think it happened at...