Search results

  1. B

    Twitch Persistence: Common & Long-Lasting

    Yes, I had a twitch in my left hand below my pinky for about 6 months. Then it faded away, but occasionally acts up. I also had a persistant twitch in my left elbow, but it went away after about a year and a half. The moral of the story is that hot spots are common. Remember, your nerve endings...
  2. B

    Never Taken Lexapro - Anxiety Relief?

    I've never taken Lexapro, but was on Celexa after I began having fasciculations. Helped with the anxiety.
  3. B

    Neurontin for RLS: Benefits & Side Effects

    I've been on neurontin off and on for a few years, mainly when my Restless Leg Syndrome flares up. Right now, I am only taking 600 mg twice a day, especially before bed. I don't really have any side effects. However, neurontin is best taken 3 times a day, in order to maintain a constant level...
  4. B

    Time for BFS Recognition: Picketing Neurologists

    Instead of all us BFSers meeting in Las Vegas, why don't we find out where the next convention of neurologists is and stand outside with picket signs demanding that they pay attention to BFS? Just because BFS doesn't kill you doesn't mean they should ignore it. After all, lots of people have...
  5. B

    Sharp Wave Causes Other Than $#@

    Marcin What are the other conditions that may cause the sharp waves if not $#@ ?
  6. B

    Guests

    Dee Dee - The question is whether information is false or is it just taken out of context? Is a statement a general statement or a specific case? The human body is incredibly complex, and everyone's body operates differently. Why do some people survive cancer and others don't? Websites, books...
  7. B

    Observations on ALS and Related Neuron Diseases

    The following is my opinion, and is not meant to offend anyone. It is just an observation and a comment. Several recent posts on this website have addressed the occurrence and prevalence of ALS in relation to other neurological diseases. Some people have jumped on others, accusing them of...
  8. B

    Dr. Richard Olney: Neurologist Seminars on Neuropathy

    Dr. 43RichyThe43rd Olney, a neurologist at UCSF medical center and a specialist in ALS is giving a seminar in my town on Wednesday about chronic neuropathy. If you live near Davis, California, it will be held on Wednesday, February 9th at 3 PM in the Blanchard Room of the Davis Branch of the...
  9. B

    3 years since first twitch!

    Congrats on 3 years. I'm going on 4. Whoopee! :LOL:
  10. B

    No More EMGs: Relief for Hypothyroidism

    Lovely - No more EMGs. You don't need them. I had an EMG and NCV done 3.5 years ago. Right foot, leg, arm and hand. Normal. Still see a Neuro, but mainly for symptomatic relief. I've been on thyroid medication for hypothyroidism for over 2 years from my GP. But my Neuro found that my thyroid...
  11. B

    Dealing with Fear: A Journey of 4 Years

    Fear is an insidious thing. Just when you think you have it beaten, destroyed, vanquished -- it rises from the ashes to haunt you again. I'm going on 4 years and when a new symptom arises, it always creates anxiety. The fear is less, but it never goes away. Fear is like a shadow. It is there...
  12. B

    3.5 Years Twitching - Need Advice

    Hello all! This post is directed to veteran twitchers, but if anyone has anything to offer, feel free. I've been twitching for 3.5 years, with generalized twitching, exercise intolerance, muscle soreness, however my feet have been twitching constantly for over 3 years. Unfortunately in late...
  13. B

    Constant Foot Twitching & Cramping

    Barb - I've had twitching in my feet and calves for over 3 years. It is constant and increases when I am active. In the evening, when I take my shoes and socks off and sit down, I feel like I have worms crawling in the insteps of my feet. When I bend my big toe downward, the arch cramps...
  14. B

    Confronting BFS in 2001: Twitching & Tiredness

    When I first started having BFS symptoms in June 2001, I had that same big twitch on the pinky side of my left hand. It would go off constantly. I would sleep with my hand stuffed between my thighs so I wouldn't feel it twitch so much. Eventually it calmed down (after about 4 months!). As for...
  15. B

    Learning About Neurontin for RLS and Diabetes

    You can learn more about Neurontin at I was on Neurontin for a while and found it effective for my restless legs syndrome (RLS). My father-in-law also takes it for pain for his diabetes-related peripheral neuropathy.
  16. B

    Neurontin and Klonopin giving fairly good relief of symptoms

    A couple of years ago I was on Neurontin for Restless Legs Syndrome (RLS) (those creepy crawly sensations and leg jerking as you fall asleep, also known as nocturnal myoclonus). It helped me, but eventually I stopped taking it when my RLS subsided. I didn't notice any difference in the...
  17. B

    exercise intolerance

    Karen - I try to keep active, since I really stiffen up when I'm not. In my experience with BFS, my symptoms wax and wane. Right now, it has flared up. I try to run 5 km (about 3 miles for the metric-challenged crowd) three times a week, but haven't since late August. My calves kept cramping...
  18. B

    Thumb Twitching: Nerve Irritation or Parkinsons?

    The thumb is a common spot for twitching, since it does a lot of work. Nerve irritation can cause that. I wouldn't worry. Parkinson's is typified by a tremor that has a specific frequency. If you've ever seen a clip of Janet Reno talking and can see her arm, you would see it. There is another...
  19. B

    Acceptance of Mortality: Choice Matters

    Just thought I'd say that. It seems that there is a lot of tension here. We are all mortal, whether we like it or not. We can either obsess about it and let it ruin our lives, or accept it and move on with a positive approach to what remains of our lives. Between stimulus and response, we as...
  20. B

    Hands and Feet Constant Buzzing

    Kerri - My hands and feet buzz all the time. The duration of these episodes is about 10 seconds. Really annoying!!!!! :eek:
Back
Top