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In a while, it will have been 10 years since I started this whole BFS thing. Started suddenly, I still remember my very first twitch in my elbow. In retrospect, I had had facial twitches that went for days even a few years before that. Anyway, my fasciculations have been widespread, mostly in my...

First of all, I do know I caused this to myself...this is a warning for everyone struggling with BFS and letting it rule their life.I have had BFS for nearly 8 years, mostly in my upper body, including the tongue. Being a neuropathologist, I knew too much and could not simply let it go, I...

I had a swallow study (not videofluoroscopy, just the esophaeogram) done a month ago which found slight motility problems. I went there because often when I drink, I feel pressure in my throat as if the liquid was stuck.Unfortunately, I noticed lately after drinking, especially water, my voice...

Improvement in chronic muscle fasciculations with dietary change: a suspected case of gluten neuropathy.

Following all ALS research news (Hardvard), the latest findings are exciting. To make it short - diseased neurons are hyperexcitable, firing more often and hence become more vulnerable to damage and death, which eventually occurs as the folded proteins build up in the cell and thus increase the...

Having chatted with prof. Carvalho today, he mentioned there is a new project the goal of which is to map the ALS patients genome which would finally enable researchers to understand the MND.I contributed 50 Euros, could be more or less...I contributed to Portugal (prof. Carvalho's...

I just saw a post on the other forum and fits what I am experiencing last day - my tongue/jaws are getting terribly tired eating a meal that required a bit more chewing (meats, chocolate bars). I was eating one and afte a few seconds, my tongue felt really tired. It slowed down and I can barely...

For the last few days (7 year anniversary, btw) I started getting strange pains that do feel like cramps but do not cause any muscle contraction or hardening as far as I am aware. Typically the hypothenar eminence (belwo the pinky finger), biceps, abdomen..its strange kind of pain. I am a bit...

Been a while since I posted to this section. During the last week, I noticed I bite my inner cheeks and sometimes lower lip every time I eat. Due to my profession, of course I immediately thought this is m.buccinator weakness (which presents like this). But I can drink using a straw, I can...

People often post they have tongue twitching and blah blah..right, this is how real fasciculation of tongue looks like. Hope it helps newcomers and those who really have them. It is easily distinguishable from normal tongue tremor and movements, as you can see - there is no pulling or slow...

In the article, I have not read that and I am not a native English speaker but I am quite sure that by "Stress" they do not mean psychological stress! By stress they mean the strain caused by the functioning of the cell with its metabolic waste etc. There is no way that could link psychological...

Today I got a response from prof. Carvalho, stating that he has too few results for the BFS study - many received the form but most people never replied back.Guys, we are complaining doctors know nothing or too little, we are scared because there is no solid evidence in literature or papers to...

So just reaching 6,5 years. I stopped all medication and things are..well hard to say...some days are not that bad, are generally not nice. In the morning, I wake up and with the first movement my arms, shoulders and back start to twitch. The quads join often. During the day, these (shoulders...

I have noticed that when I flex my hamstring on purpose (or e.g. press my lower leg to my rear thigh as in kneeling), the hamstrings nearly immediately start to cramp. I have no cramps at all (sporadic) but can easily induce them by simple muscle stretching.Anybody with this?

Last week or two I noticed my biceps, triceps, shoulders and chest (on the sides, in the middle around the ribs) twitch really often.Like several times in 5 minutes. Below the waist it pretty calm with occassional twitches around the knee. Has anyone here having (despite e.g.calf fasciculations)...

2 months ago I posted about my grandfather (91) having diffuse, widespread fasciculations in his lower legs, involving especially tibialis anterior and not the gastrocnemius. After 2 months, his "foot drop" seems to be either better or he did not have it before. His fasciculations are not...

I know a majority people here have fasciculations in the calf muscles - m. gastrocnemius. But does anyone have frequent fasciculations in other muscles, e.g. m. peroneus longus or brevis? In short - in the outer side of your lower leg, rather in the front than in the back (where gastrocnemius is).

I was doing very well lately but now I am totally down, broken. I know BFS can be inherited, there are some cases. My grandfather (father of my mom), I noticed he has prominent, diffuse fasciculations in lower legs. Maybe in other places, I did not look. But he cannot much lift one foot..while...

A few days ago, I said I had had no fasciculations in lower legs so far (during 6 years!). Yesterday I also mentioned to my doctor that my fasciculations are not diffuse - affecting the same muscle in multiple places at the same time.Guss what? Today I woke up with diffuse fasciculations in my...

I am going through quite a bad relapse and I still feel that I am bit different than the rest of you/us. My fasciculations are most severe in my arms, shoulders and trunk. They are not continuous but nearly everytime I move them, my biceps will twitch. The same for shoulders so it is often like...