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4 years and 3 months ago I began the twitching nightmare. My next door neighbor had ALS SO imagine my horror. Today I have a twitch here and there but no longer worry. You're going to be fine. I promise.

Hello All especially all the newbies. Just stopping by to say Hello and to say all is well 3 years later. April is my anniversary month. It was 3 years ago I worried beyond comprehension about my non stop twitches, numbness, and so forth. I had every test known to man ran 2-3 times only for it...

Hello All especially all the newbies. Just stopping by to say Hello and to say all is well 3 years later. April is my anniversary month. It was 3 years ago I worried beyond comprehension about my non stop twitches, numbness, and so forth. I had every test known to man ran 2-3 times only for it...

I thought I would check in and say hello and provide support for those who are experiencing the twitching and the host of other neurological ticks. My twitching began April 2010. It started body wide and now is more focal. I usually have a hot spot. My twitching is usually on the left side and...

I am embarking on my 2 year anniversary with BFS. April will be two years. For the last year my BFS has been quiet. Lately, I have been having base of the skull headaches on the left side and the left side only followed by left arm biceps and triceps twitching. The twitching has been all day and...

I know we all don't have it but it is our worst fear. It looks like now that they know the absolute cause and they will soon have a treatment! God is Good! WOW!

I know we all don't have it but it is our worst fear. It looks like now that they know the absolute cause they will soon have a treatment! God is Good! WOW!

My left foot and leg have always been my primary area for twitching now its more so in my foot. Lately my left foot has been burning in the arch. Not a skin type feeling but a deep muscle burn. It feels almost like it did when I would lift weights. No I haven't done any exercise so this is a...

I have noticed when I get steroid shots I don't twitch for a few weeks. Today it's in both feet and up and down my left leg. I am also having a new sharp burning pain in the foot. I have now been twitching for 15 months. I was told Sunday that my 3rd cousin has ***. UGGG. So anxiety looms. How...

ok.. I have been in a remission again. Very little twitching maybe the normal twitching that everyone has from time to time. However the last few days my tongue is tingling around the right side close to the tip of our tongue. Many of us experience other neuro symptoms beside twitching with this...

I am from the class of April 2010 where my symptoms started out as stiffness and cramping in mid April only to turn into violent widespread twitching. I UNLIKE many of you thought it was BFS just like my dad who had been diagnosed in 1994. I was all to familiar with BFS and recall vividly the...

That most of us are mid 30's and Caucasian. At least we all look Caucasian from our profile pictures and we are in our 30's or were when this thing started. It just makes you wonder if we are predisposed to this disorder due to race and age. My neuro thinks my problems stem from my great...

For those of you who are new or those who have not read my post before. I began twitching a year ago all over and I mean all over. Butt, ribs, arms, hands, feet. My twitching tapered in July and came to a complete halt in December after I received steroid shots for another issues. Not sure if...

ok. I am about to commit myself.. This BLEEP is driving me insane. I have always had pulse twitching. Meaning heart beat twitching. It pretty much went away and I moved on with my life. Recently in the last month I have had a rippling twitch in my left foot. It will start right below my big...

So I have been twitching almost a year. It pretty much stopped and now I am only twitching in my left foot. Has this happened to any of you? Widespread twitching then twitching in one spot?

I have had this planned since the massive foot cramp episode but thought I wouldn't tell you until after my visit. SO here it goes. He did an EMG and nerve conductivity test on my left foot and leg. THe one that has been twitching and cramping. He had me push up and down on my foot during the...

The last few days my left foot has been twitching alot. I bet tonight in the last hour its twitch 30 times. My twitches had all but gone away but resurfaced the last couple of days. My question is Do any of you all have toe cramping and foot twitching? Its been really bad the last few days. I...

7 weeks of barely any twitching... Sigh. My left foot is going nuts and making my toes jump all over the place. April will be one year.

Just wanted to stop in and see how you are doing. I am doing well. I thought I would post an update since I haven't been by in a while. December 27th, my derm removed a mole he thought looked bad but it turned out to be precancerous versus melanoma. Shew. I had to wait 1 week to find out and...

The doctor put me on Neurontin and Clonazepam. These are both anti-seizure meds. Anyone else been put on these?