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Since this all began over 5 years ago my left foot has had relatively constant twitching and sometimes cramping (usually at night). I have no weakness. What bothers me right now is it has never gone away completely. It always comes back at some point. Does this mean I have permanent damage...

So just for all those who wonder, what happened to people. We are all still here. My journey with this began 5 years ago. I no longer stress about the twitching. In fact I am pretty sure I would miss it if it was gone. I still get it all. Including the night time cramps in my left foot...

Just wondering if the is BFS related or something else. My index finger hurts pretty bad whenever I pinch my index finger and thumb together (pinch grip). It's making things like clipping my finger nails painful. It's isolated to just that finger. Of course I have had some minor twitching in...

As long as I remember to do so each year I will post here to reassure everyone that I am still alive. It's now been 4 years since it all started for me. And to be honest I don't rightly care much about BFS anymore. I don't pay attention to it. I don't search the internet for answers. I...

So I am making my annual, yep I am still here and I am fine. One of the things that bothered me early on was that you would read peoples stories and the would mysteriously disappear. I now know that is because they moved on with their life. So I find it important to check in and say I am...

Honestly I try to avoid this area like the plague anymore. I am a 2.5 year twitcher. My question is for those who have cramps. I have having nocturnal cramps but only in my left foot. I have had them for probably about a year, but they were rare, so I didn't pay much attention. Recently...

Since the fall I have been getting cramps in my left foot only. No where else. I have a lot of buzzing, twitching that moves the toes, and soreness in thie foot as well. I have had the bodywide twitching for over 2 years. Anyone else experience cramps in just 1 foot? What bothers me is the...

I posted several days ago that I have reached 2 years. I left this page many many months ago because I needed to get away from the thoguhts of these horrible diseases. for me that was the only "cure." I knew if I stayed I would click on every link, every article that tried to convince me that...

It's been a long time since I posted here. I made a decision many months ago that I needed to leave this site for my own mental health, but also for my family. I was distracted, disengaged, and overall just not fun to be around. I have now been twitching for 2 years. It all started for me...

After careful consideration I have decided to leave the forum. I beleive it is in the best interest of myself and my family. for me I got over the fear of ALs some time ago, but I think reading all the stories about everyone afraid of what might happen keeps me in a paranoid state on some...

So I am now at my 1 year mark. I am not one of those people who can tell you down to the day when it all started. I know it was begining of May as that is when I called the Neuro for my appointment. I still twitch every day, but I don't stress about it anymore. There is one thing that all...

Just throwing this out there to everyone. I read posts on the regular basis where people question the results of their exams and tests. Now I want you to think about that logically. If this were true then EVERY neurologist we have all seen must not have been taught very well. Look at the...

Not sure if this has been posted here before, but this may helpe those (like me) that are unsure if this condition is real. It most certainly is, and is in this text book. STATES OF PERSISTENT MUSCLE ACTIVITYIntroductionThis is a confusing group of clinical states, all characterized by some...

This message is for those who are struggling to believe their neuros. You must start believing your neuro. They test a ton of stuff when you are there. They DO NOT need an EMG to rule out ALS. They only need the clinical if you pass the reflex test, and the strength tests, and don't have...

I had an epiphany today. I had never even thought of this. What is everyone's big questions. Can twitching occur before Clinical weakness. Even I have questioned this. Well something dawned on me.I think i am one of the only (if not the only) person on this board who has experienced real...

We are all worried about what might happen to us in regards to our twitching. Well a student at our high school just died today from Leukemia. He found out in June that he had it, and passed away today. He got 5 months. Just some perspective.Live life every day to the fullest. Twitching...

So I am quite sure I am past the really bad anxiety aspect of this, but was thinking of something that might help newcomers to the site. So here a few quick questions that should help. I expect a wide variety of answers.1) Are your twitches focal (in one spot 24/7), and if so where? Also does...

Some may have noticed I don't spend much time here anymore. There is a big reason why. I have discovered what I think is the meaning behind all of this for me. Here is what I think the problem for all of us is. We keep searching for 2 things. Why did this happen to me, and what is causing...

Just curious as to why the thread (posted by nocturnus) with the new article was deleted? While many were afraid at first, it would seem that it brought up some good discussion.

For those interested this was on the CNN site today. I know there is a lot of opinions about this, and what role the digestive system plays in our BFS. I know personally I have IBS type issues (although I am not diagnosed with anything other than possible GERD with heartburn). The article...