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Hi everyone-Just wanted to reiterate how much of a help this board (and the kind, caring people here)- have helped me. :) Thank you all so much for this.Anyway--Now that i'm back from Mayo Clinic (I am going back this Autumn -just to "follow up"...I've always felt....seeing a Dr. ..any Dr...esp...

OK- Back from Mayo Clinic--got a 'clean bill of health'....after a very thorough battery of tests! So, I ignore the muscle contractions....& cramping!But---on "rare"...occasions....I get (ONLY when lying down....)--those darn...."diaphragm"...strong muscle contractions! :eek: I hate these...

Just a thought after reading sooo much about BFCS.What is "the"...defining criteria between...BFCS...& "Isaac's syndrome"-? :confused: Is it--1) the pain(or 'burning' sensation)- of Isaac's? 2) The excessive sweating of Isaac's? 3) blood tests...(like "voltage gated potassium channels")4)...

Hi everyone- :) I was persusing my blood tests taken at Mayo Clinic.One of the tests was for an enzyme called Creatine Kinase....or CK.I discovered it is usually elevated in many neuro muscular disorders (breakdown or degeneration of muscles)--AND also elevated in that A-*-...that may of us...

Hi Everyone--Like Jennifer--I, too, was considering taking a 3 or 4 month 'break" from the forum. However-since you people here are not only helpful , supportive- but also very knowledgeable--I wanted to post this question here. :confused: I should have asked the Mayo Clinic neuro--but as is...

Hi again-hoping everyone is doing fine. :D) Again-Let me express my thanks to this site & all the wonderful, helpful people on here.I feel the "summary" of "BFS in a Nutshell"- should be a 'must read' for ALL BFS people. ;) This site is ..."helpful", many, many well informed people & people...

Hi everyone--posting this again here--& this post got no responses...and very few "looks" in the other section! I'm HOPING...I get some responses.....with others who have something like this....or with some ideas!One thing...I wanted to mention....after my Mayo Clinic post---was one symptom..I...

One thing...I wanted to mention....after my Mayo Clinic post---was one symptome..I still find "puzzling"...& a wee bit..."worrisome"---(tho i should mention first--I did tell my neuro here....& at Mayo--both seemed 'unfazed'...by it.....but was wondering if ANY of you BFSers.....ever get...

Dear fellow BFSers--Writing this from hotel lobby acroos the St--from Mayo Clinic..in beautiful down town Rochester Minnesota-! :) I came here with very high expectaton of Mayo Clinic--my dear people--Mayo Clinic far surpassed my highest expectations-!Not ONLY does Mayo have the best Drs...from...

Has anyone here been helped at all (relief from cramps/fasics) with the med, Neurontin (generic "Gabapentin)?Just thought I'd ask--! Thanks- Christian

Hi everyone--Today....as I prepare to fly to Mayo Clinic..(in MN)--this Sunday.....I am both HAPPY.. :) ..to be seen by the best.....AND SCARED! :( As things are rt now....I am getting Sooo...much minor ..'cramping'-! Also.....myoclonus..& just some twitching...(fasics)--! IF....I were to...

"Free at last, free at last......"---Today...I JUST changed neuros! :D) (He's in the same group....MUCH nicer guy!...just that it is difficult changing Drs......!)Yesterday...me and wlfe went to my now..."former"...neuro...."Dr. Ego"-! :LOL: He came in....did not look up at me...(i said to...

Gonna see my neuro today-I wanna get this one thing resolved-! On here, a few people say, "Oh, it could be Isaac's syndrome, which is on the BFS continuim!Well, after some research, it looks like "Isaacs Syndrome"..is not 'benign' at all-! :eek: It is part of something called "Paraneoplastic...

Dear fellow BFSers---Below is an e-mail i wrote to my neuro....followed by two "medical reports"..on, "Diaphragmatic/Resiratory Myoclonus"-!Today--for the second time...in 10 days---I was laying on my back in bed....and before falling off...woke up gasping for air!What i NOTICED was....the...

Just the last few days..or...been experiencing a strange, 'quick'...'momentary'...feeling of vertigo--that comes & goes...with 2 or 3 seconds! Like i'm gonna 'pass out'-! (But i don't)---Then....today....my head been feeling kinda "off kilter"--! Can't explain it--(gonna see neuro this...

Hi everyone--Below in an excerpt from an article on BFS---I like the sentence that says .."the vast majority of cases clear up spontaneously in a few days or weeks.."--! Gee--I HOPE this is true--! I guess these people (where it clears up so quickly)--just don't bother to come on here- :) Is...

During the time I've been dealing with this BFCS--(I know this may sound 'different' to some of you--or maybe not!)- Anyway- I've noticed a lot of "soreness"...in the muscles of my ribcage...& sometimes...lower back . :( The kind of soreness you'd feel after a workout. My cousin says, it...

Has anyone here tried, with any succcess, the prescription med, "Skelaxin"?My neuro had presribed it for me...(800 mg...3 times/day) but, for some reason, I'm afraid to take it (i respond negatively to many meds)---It's a 'muscle relaxant'- & supposed to stop 'cramps'....& settles down...

Hi friends--I have a terrified friend, who is still waiting to be approved to post-(Robynn)-For the last 4 months-she has been terrified by ankle clonus and 'brisk reflexes'-and muscle spasms...and fasics-- :( Neuro has done mris (Brain & cervical spine)--blood tests..and have assured her--she...

Sometimes I get so...'disgusted', discouraged..& frightened! I've found this wonderful sire with all the nice supportive, helpful people. Now, I wonder if I even have BFS...(or BFCS)...at all? I hope this IS what I have..! In that case..I can live with it!NO---I am NOT talking about the...