Search results

I just wanted too say hello ...its been 6 years now since I was introduced to the worst health anxiety scare I've ever known which is this BFS ...there has not been a day go by not one ...that I have not had hundreds most of the time thousands of twitches ...random and EVERYWHERE ...yes even my...

Hello all I have been twitching for 5 years now and was cleared several times by nurologists this was over a year ago ..just this morning the right tip of my tounge started twitching when relaxed and not sticking out I can see it twitch in the mirror should I be worried ?

Hello all,It's been quite awhile since I've checked in here's a little follow up... so in 2009 I started getting twitches with turned into every day all over and has been that way for 5 years although Either they quit bothering me as much or decreased some... also have tremor and what I hate the...

I been twitching everywhere everyday for over 4 years now this place saved my life ....stay strong newbies and read all the old posts

Hello everyone its been awhile since I have posted. I believe I joined this site in August of 2009?Anyways I have been threw the ringer with this malady they call "Benign" I have been to 3 different Neuros haf 3 EMGS (not complete studys just a few pokes here and there) MRIs ANA EVERYTHING...

Twitching everyday everywhere still alive

Hey yall I have sure had my time with all this.. I have had all the tests and all normal actually more tests then most !! Just recently i have started getting.tongue twitches and small fleeting bug like feelings they are twitches in my legs kinda concerning me wanna hear some feedback Brian

Hello everyone I am just checking in saying hello to all the old timers and new timers hah!...Still twitching 2 and a half years now 10 neuro appts and 75 or more doctor appts later Im still alive can still run lift heavy *beep* play guitar sing ect ..as a matter of fact thats what I have been...

I have had twitches everywhere and everyday for over 2 years now ...I do have a question though I have had a twitch in my right hand in the eminence hypothenar muscle which is the muscle that controls your pinky or the muscle on the knife edge part of your hand ...anyhow its been intermittent...

Hey all just checking in and saying hello 2 years 3 months here

Hey all 2 years down still twitching and everything else besides having food poisoning right now im ok and just checkin in see ya at the 3 year mark

Well I am a full time college student anmy classmate shared today that she was diagnosed with als two years ago started with falling she showed me the curvature of her atrophying hands. She also has had the muscles in her intestine die from this which is rare as a symptom but it happened too her...

Hey all not worried its anything sinister but been having corner of the eyelid twitches for 3 days straight anyone else experience a hotspot in eyelids

Ok so I finally seen one of the top neuro muscular disease specialists in the world not some quack in asia or somewhere she did a thourough emt 3rd one mind you a strength test and the whole nine yards its been 21 months she said I have never ever heard or seen anyone developing als after 21...

Here I sit 21 months later still scared still twitching still cramping still self checking still have perceived weakness and all kinds of other stuff but even though I felt every step i just climed 40 steps. Of stairs without stopping I still open jars and carry things. Around. Hmmm. Everything...

tongue twitches are coming been having weird sensations in my tongue for awhile now and think I just had a small one I dont know if I will be prepared for this

Ok so after over 20 months of twitching and cramps and aleepstarts and tremors and vision problems and pains and fatigue and buzzing and dizziness and fear and 4 nuero visits 2 emgs a ncv all the blood work and I mean all of it 6 ct scans a mri full eye exams 75 er visits 20 family doc visits...

whats the deal here I have been under the impression that ever since this board has been up that no one has ever heard of anyone developing a MND after being diagnosed with BFS I mean that No one has ever been diagnosed with bfs and then go back in and have them say I am sorry but I think it is...

ok so seriously how many of you can relate too this wake up feel a couple twitches here and thereget up wonder if today will be differentget little tingly sensations all over sometimes in my tongue tootwitch here twitch theremind wondering about the way I am feeling are my legs weak today my...

It seems like this support group has really died down a lot since I was first a member here nobody replies to anybody's messages hardly at all or anything like they used to maybe I am wrong but it just seems that way to me i have asked over and over about this cramp thing that I've been having...