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Hi Everyone, After 18 months of twitching I have finally been told that it can not be a degenerative disease. I was told by my neurologist a year ago to wait - if I hadn't developed further symptoms within a year then I'd be in the clear. I saw the same neurologist last week and he didn't...

Hi All,I haven't been here for ages, mainly because I've been twitching for 18 months and stopped worrying about it a long time ago but also because I was diagnosed with something which really is serious. Boy does it stop you worrying about twitching!What is interesting is the way the twitches...

My chiropractor has been giving me different types of advice in the hope that a holistic approach will help my bfs. Today we discussed sleeping positions and when I told her that I wake up on my tummy she said that's really bad. She suggested a body pillow to stop me from rolling onto my back...

Can somebody give me words of wisdom to sort out my head? I have just about got to the stage where I am accepting the fact that this condition is benign and now I've found something else to worry about. I sometimes think that my only illness is health anxiety - nothing else. I have developed...

Anybody know anything about peripheral neuropathy and it's relationship to bfs? I know a guy who has just been diagnosed with it. He has no twitching but does have numbness and tingling. He can't feel one foot at all. Nobody on this board seems to have been diagnosed with it yet there seems to...

Anybody had problems getting their GP to believe them? I went to mine with a totally unrelated issue the other day. He wasn't the understanding one who has looked after my BFS worries as he wasn't available. He read his computer screen while I was talking and I could see him building a 'neurotic...

I have been a healthy individual for most of my 52 years. My husband calls me 'sturdy girl'. I have watched my friends age with far more difficulty. I have sailed through the menopause and have white water kayaked my way round Europe....... Until BFS! All of a sudden - bam! I started twitching...

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Since going on this forum I have been amazed by the difference between the treatment provided by the US healthcare system and ours! I can't believe that they can visit a neuro emergency room! Beats a 4 hour wait in the local A and E to see a junior doctor! After 3 neuro visits (which I had to...

I posted a while ago with a question about numbness in the foot - I have numbness in my heel with prickly sensations in my foot and lower leg. I get them in the other leg as well but not nearly as much. I had replies saying that people did get this but that it goes away. It hasn't! I've had it...

Anybody got numbness in the heel? I get wierd feelings in one heel all day and I can't feel the back of my heel where it touches the floor. I've more or less been told to go away and wait as far as the twitches are concerned and the neuro ignored the numbness. He stuck pins in my foot but not...

Not sure I've spelled it right! A friend gave me a card for a local practitioner. Anybody tried it?

Has anybody found magnesium or anti oxidant supplements helpful? Doctors have drawn a blank and told me to wait a year so I'm looking for natural help. Apparently dark chocolate is high in both! Worth a try! I can think of less pleasant cures! Will try it and let you all know if it helps!

I had my third neuro appointment this week. I have had a clear EMG and blood tests. I have twitch all over constantly for 6 months. I saw the only neuro muscular specialist in our area and he still wont diagnose. He used phrases such as 'almost certainly not ALS' and 'probably' BFS. He said that...

New to this so seeking reassurance. Has anybody suffered with numbness in the feet? I have it just behind my big toe and also on one heel. Does it go away?

I'm new to all this and have found this web site really reassuring. I think that every muscle in my body has twitched over the last 3 months and I've been through the ALS worries like everybody else here! I had a clear EMG and the twitches subsided for a while - they then took about 6 blood...