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I haven't been on this site for a long time...but when I needed it, it was a God send for me. --- I started having symptoms of BFS about three years ago. Of course, I googled twitches and about hit the floor when I read everything that could possibly be wrong with me. I truly, truly thought...

I've had symptoms of BFS for the past 16 months now. I'm not new to this board, and I haven't posted in awhile, but I thought I'd share something... my 12 year old son and 10 year old daughter have been experiencing twitching for the past few months too. They basically knew nothing of my...

I've had symptoms of BFS for the past 16 months now. I'm not new to this board, and I haven't posted in awhile, but I thought I'd share something... my 12 year old son and 10 year old daughter have been experiencing twitching for the past few months too. They basically knew nothing of my...

I have reached my one year anniversary!! A year ago I thought that the world was coming to an end. I had horrible twitching from head to toe. I thought that I definitely had ALS and I thought I was definitely going to die. I rehearsed speeches to my three children in my head...what would I...

Hi guys...I have my six month "follow up" with my neuro next week. Honestly, I'm wondering if it's even worth my time going. My twitching is pretty much the same as it was six months ago. Some days a lot less, some days a little more. However, I have no weakness or atrophy at all, and I'm...

Mine have stopped for a day here and there but then they always come back. My primary care doctor has never seen my twitches, and neither has my neuro. :( Maybe we should all just move into a neurologists office! :D)

suddenly stopping a medication will cause some sort of withdraw .. depending on the med.. i dont know why you stopped taking it but you should have tappered off the drug... this is exaclty why you feel like this... increased anxiety with withdraw will cause the jerking and many more things.. it...

Hang in there. I know it has to be tough. In some way, we're all in this together. You've been through a lot more than most people I know, but I truly believe that everything happens for a reason, and maybe even the fact that you're sharing your story with others and helping them through your...

Congratulations! Now you're definitely ONE OF US!! :) Welcome to the oh so fun club of BFS! :D)

What?? That sounds crazy! Too much exercise? Swallowing water from Mexico? I hope someone has some insight into that because that is really odd!!! :eek:

You are right!!!! :p :D) :D) :p

I've had that feeling before...not exactly sure how your situation feels, but mine felt as though the arm wasn't weak, just heavy and weird. It went away in a few days.

My EMG was a little uncomfortable, but not bad. I wouldn't say that it actually hurt. My neuro talked to me through the entire thing...after each little test he told me that it was normal...maybe it's because I was so scared I was crying through the entire thing...but either way, he was great...