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A number of people here on the site have been diagnosed with Essential tremor (ET) and BFS and there is some interesting information about the two conditions to be found on Wikipedia. I know it's only Wikipedia, but I have found that site very helpful in explaining many things and this issue may...

The Neuropathy Association is an organization that provides resources for people with peripheral neuropathy conditions. While they mainly deal with conditions such a progressive diabetic neuropathy conditions or CIDP, they also have articles and resources that address autoimmune related...

I am currently in my forth week of Lamcital and had a follow up appt. with Dr. Tahmoush today. I found out more about how how Lamictal is supposed to work and additional information about when BFS is an autoimmune condition. This is how I understood what he said. Hopefully I got it right. -I am...

With this condition I keep waking up way too early which I know is common, so I was wondering if anyone here has found anything else helpful for that because my overnight Neurontin is just not cutting it anymore. I'm getting overtired and frustrated. Thanks in advance for any help!Sir_Trouserz

Raindrops on roses and whiskers on kittensBright copper kettles and warm woolen mittens…And this article by John Newsom-Davis. Since we have some new members that may not have seen it, I thought I would repost it because it's the best article in regards to explaining an autoimmune cause for some...

I believe that Dr. Tahmoush told me that J Newsom-Davis was the person who discovered VGKC antibodies and their connection BCFS in autoimmune cases. Here's an article Newsom-Davis wrote that discusses a little more about it and his belief it was important to test for them (hint hint anyone going...

Well, today is the day I start taking Lamictal. With any good luck, it will help alleviate some of the frustrating symptoms of this syndrome. With any really bad luck, (on my part anyway), you will never hear from me again and all I can say is don’t try this at home. I have been feeling...

Hello,also Im back. Let me remember myself - Im 22 yr old, twitching for almost 8 months.Well - I have exams time but I dont feel stressed. My twitching has rapidly increased, I think its every minute. My back, arms, thumbs, calves, thigs, butt..everything. Almost every time I stretch my hands...

A friend here gave me a copy of this study and it's pretty interesting. The information is put together a little differently than some of the others:Department of Neurology, Mayo Clinic and Mayo Foundation, 200 First Street S.W., Rochester, Minnesota 55905, USA. Neuromuscular hyperexcitability...

Some history on the description of autoimmune peripheral nerve condition:Acquired Neuromyotonia in Childhood: Case Report and Review. G Gonzalez, G Barros, ME Russi, A ñez, C Scavone’s Hospital, Montevideo, Uruguay.Recently characterized as an immune-mediated channelopaty, Isaacs' syndrome (also...

Here is one study that looked into some possible genetic links for this condition:Inherited neuromyotonia: A clinical and genetic study of a family. A Falace, P Striano, F Manganelli, A Coppola, S Striano, C Minetti, F ZaraNeuromuscular and Neurodegenerative Disease Unit, University of Genova...

"peculiar worried pinched face" may = "patient is anxious" in IndiaNeuromyotonia: clinical profile of twenty cases from northwest India. A Panagariya, H Kumar, V Mathew, B SharmaDepartment of Neurology, SMS Medical College, Jaipur, Rajasthan, India. OBJECTIVES: We are presenting 20 cases of the...

Well, I couldn't let Basso's twitching weiners get the last word could I ?! :LOL: If you go to the zoo, you can check the animals listed here if you are looking for the familiar signs of PNH. According to : an integrated database of human genes that includes antibody studies as well as a great...

Kinda sad really, but demonstrates some additional and very similar animal related issues(myokymia). This may conclude our animal series unless there is more to be found at a later date. The Veterinary Record, Vol 155, Issue 24, 769-774Copyright © 2004 by British Veterinary Association...

Hi PlayfulPants,It sounds like you must have been under a great deal of stress physicall and emotionally with all of that, so that does take it's toll. I find anything like that does increase symptoms. The exercise intolerance associated with BCFS makes sudden surprises like a challenge. When...

They actually do. Between the cats and the mice with BFS/BCFS/PNH/etc., that could have put a whole new spin on "Tom and Jerry" don't you think?! Myokymia and neuromyotonia in a cat Heather R. Galano , VMD Natasha J. Olby , Vet MB, PhD, DACVIM James F. Howard Jr , MD G. Diane Shelton , DVM...

Well, sort of. :D) An illustration of the VGKC antibodies at work in the autoimmune process. Acquired neuromyotonia: Evidence for autoantibodies directed against K+ channels of peripheral nerves Paul Shillito, MRCP 1, Peter C. Molenaar, PhD 2, Dr Angela Vincent, MRCPath 1 *, Katherine Leys...

I'm glad to see Steve answer this one Tess because I knew I was in over my head. In my case my neurologist said my EMG was normal, but I was still diagnosed with BFS which was confusing. I would be interested in knowing more about the clinical differences found between Isaac's syndrome and BCFS...

I had an appt today with Dr. Tahmoush, coauthor of Cramp-fasciculation syndrome: a treatable hyperexcitable peripheral nerve disorder. The foot cramps I have been getting were very painful and I needed a new course of treatment. My visit with Dr. Tahmoush was identical to 43RichyThe43rd’s, so...

Neuromyotonia: A diverse disorder.(Invited Commentaries) Byline: John Newsom-Davis Peripheral nerve hyperexcitability at its least severe causes muscle cramps and fasciculations termed the Cramp-Fasciculation syndrome by Tahmoush et al. [1] In more severe cases myokymia (visible muscle...