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Hey folks,I thought I'd check in since I used to post here a whole lot, and I finally got a diagnosis this past December. The doctors told me I have something called Post-Irradiation Motor Neuron Condition. I've also seen it called Post Radiation Motor Neuron Disease. I had cancer when I was 12...

Hey folks, Just wondering what's been going on here in the past few years. Have there been any stories of people getting to the bottom of their twitching? I remember there was one guy many years ago who found out he had calcium deposits pushing up against his spine, which were causing his...

Hey folks--- I hope everyone is doing well. I don't show up on these boards too much anymore, but I'm still kickin and still twitchin. Not really sure what I have, but at this point I'm pretty sure I'm worse than regular BFS, but much better than ALS. I'm guessing it's some neuropathy somewhere...

Hi there--I recently went to a hand doctor to see if he could explain some of my symptoms. He ordered an EMG to test for ulnar neuropathy and here's how the results came back:"Nerve conduction studies in the upper extremities and right leg are normal, with one possible exception: left ulnar ADM...

It feels like I've been on here for too long to be asking a "do you get this type of twitch?" question, but my right hand continues to bother me. My thenar muscle has long been problematic, but now the hypothenar area of my hand (area under pinkie finger) is going nuts. Most of the day it is...

Hi all--I was wondering if any of you folks were also cancer survivors. I licked my lymphoma about 15 years ago (holy *beep* I feel old...which is a good thing I guess) when I was 12. I knew that as time progressed, the chances of the cancer returning decreased, but the long term effects of...

Ok, so I saw a new neuro yesterday who specializes in ALS. She saw my twitches and said "we don't see those type of twitches in ALS patients." On one hand I wanna be like "are you sure? cuz I'm pretty sure that even though it isn't the most obvious, presenting or important symptom, I've read...

Ok, as much as I try not to worry anyone else on this board, sometimes I crack and come here when I really feel like I need help and support. I totally need that now. I started twitching in November of 06 and about 6 months later I was playing baseball and my pinkie finger "died" afterwards...

Heeeey good folks of twitchville---It has been a while since I've been on here. I still twitch, but I just passed my two year anniversary and it really doesn't bother me anymore. I notice the obvious ones, like a hotspot in my left thumb that's been partying lately, but overall I just don't pay...

Hi folks! I hope everyone is doing (relatively!) well here; it's been a long while since I have posted but I have a new question that I thought I would try to get some input on.As a quick recap, I have been twitching for 19 months. I still twitch, but don't really notice it all that much...

...and I'm still here! I haven't been to these boards in a while, but I thought I would just check in and say hi. I was here quite a bit when my twitching started in the Fall of 06. Just to let folks that are still freaked out about als know; I was twitching for a year and just getting used...

Hi Folks--I recently had TONS of blood work done by a new neuro I've been seeing. She is an ALS/MND specialist. She has found the dent in my thenar muscle, weakness in my right hip muscle that I didn't even know was there, hyperreflexia and seen my fasciculations. She says it is NOT ALS though...

I saw a new neuro today that specializes in ALS and peripheral neuropathy. Overall I think it was a really good appointment; she thought that my overall exam was excellent. She was very attentive and thorough, which was a definite relief. She was able to find some weakness that I wasn't even...

hey everyone. Today I had my second EMG, my first was about a year ago, about 3 months after my twitching began. I have not been doing well lately; I've had horrible and incredibly painful sore spots all over my body and more disturbingly, I've developed a tremor throughout my body. So many...

Hey there folks, I know I haven't posted much lately but I figured this is one of those harmless "you too?" questions... Do you guys get "real" weakness when your hands get really cold outside? Even as I type this, I recognize it's prolly a dumb question. I probably have gotten this my whole...

bad thumb good thumb: Just some background info--- my right hand has always been the most worrisome area for me. This part of the muscle (that appears with palm down) twitched 24/7 in a very fast, rhythmic pulse that I couldn't feel (only see) for about 7 months. It stopped recently and...

haha, okay here it goes (I posted this in the questions forum too) bad thumb good thumb: Just some background info--- my right hand has always been the most worrisome area for me. This part of the muscle (that appears with palm down) twitched 24/7 in a very fast, rhythmic pulse that I...

Hi folks, I know tingling and parasthesia are pretty common amongst bfsers, and a month or so ago I was surprised to come across so many people that get tingling hot spots as well. Right now I have one in my knee, the same place I've gotten them in the past. It has a characteristic that I...

Hi everyone. I am on my 11th month of twitching. Because of this, my initial anxiety about als had pretty much dissipated over the past few months. However, I have been experiencing some frigging very-alsish things that have me concerned again. Namely, drop foot. I haven’t been tripping...

it's weird. As soon as you don't have anxiety, you have a rational reason for why you don't have it. But when you do have it, rational thinking doesn't always help, you know (though it does sometimes...) For example, at the onset of the Iraq war, I was pretty convinced some terrorist *beep*...