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it's been months since i last posted, i more or less went on my merry way, still twitching insanely e.t.c the last two weeks though have been really rough, wether it's me obsessing (which is likely) but it is pretty obvious that there has been SOME kind of change in my muscle tone, when i...

ah well back again LOL the last few days the twitching has driven me to the point of complete insanity, it's constantly in my legs, when ever i move them it's there, thumping and rippling away, they're always indented type twitching too, i've convinced myself there is atrophy in my inner calf...

possibly referring to CK levels, which are usually an indicator or either muscle damage/heart attack heavy drinking in some cases, dont worry too much, depends what he calls "high" Case and point, I mowed our LARGE back lawn a day before the blood test (which if I had known I was going to have...

IS DRIVING ME FLAMING :mad: THAT IS ALL..

to quell your fears.. my father's tongue (he has middle stage ALS) will quiver like water in a crystal glass when you run your finger around the rim, when it is resting in his mouth, it is absolutely bizare to watch, I too have a twitching tongue, but thats only when it's sticking out. If your...

that I can move a 29inch TV (very heavy one) much easier than I ever have before so what am I worrying about HA!.

NB: this post hasn't been edited for spelling, or meaningless rambling so I apoligise forth with.. seeming this post is about someone who has ALS, I'll post the things I have noticed with my dad, and his progression: I am posting his blog page too so I hope he wont mind: anyway, I asked my...

Well, just got back from the doctor, he assures me that there is no clinical signs of weakness, or balance issues, my reflexes are bang on 100% He was honest with me and said he didn't know much about ALS/MND so asked if it was ok to get his medical books and then went through all the strength...

well as I mentioned in my first post, the doctor i went and saw was a total ass. So I emailed my dad's support person, who suggested i talk to a specialist up here, I phoned and left messages for a few days, getting REALLY anxious about not hearing back from them, so bad yesterday that I spent...

my fiancee twitches for about 3 mins just as she is going into her sleep cycle, always without fail I know when she is going to sleep, so dont worry about it, and someone posted the medical term for it too :p

Hi everyone from New Zealand My father's ALS diagnosis was roughly one year ago, and i've watched him go downhill slowly which has not been nice, he has been gentically tested and does NOT have familal type ALS so I'm hoping my problems are not related... I googled and promptly had a huge...