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Thanks folks, it hasn't been easy but the truth of it is that everyone that talks about mindset being one of the biggest factors in improving the symptoms is right. I'm not going to lie and say every day is peachy but every month seems to get a little better. Staying away from the internet (on...

Happy Anniversary to me. Still have some minor twitches and tremors but everything is much more subdued than it used to be. Small victories!

Hi Trustme,I too experience similar issues. For me is started with the buzzing and twitches and the tingling and numbness came on later. The way you described it is almost identical to what I feel. It has been almost a year (it will be a year next month) and I too saw a couple of neuro's and a...

One other thing - the neuro mentioned "maybe" BFS but also thought I had essential tremors which I thought was a strange diagnosis an not encompassing all of the BFS-like symptoms.

I've been dealing with BFS for over 9 months now - I have had two clean EMGs (in the last 60 days), clean MRI (with the exception of Chiari 1) and other tests came out fine. Generally, have had small fine tremors, jitteriness, internal tremors, zaps, pins and needles, some dizziness and brain...

Ok, so I've been pretty mellow about things but after all the body twitching for the last 8 months, buzzing, vibrating, pins and needles and other stuff - I've dealt. Today my eye started twitching like crazy - even when I can't feel it (which usually I can) I can still physically see it...

Has anyone experienced a flare-up or increased activity with symtoms after having a few too many the night before? Is this common? I don't drink often but there's been a couple of times where I have been out with the guys - had a few more brews than normal and had a really rough morning the next...

Donnastar,I do - I'm still not too far removed from when I was told it was just anxiety but even though I don't believe that I have an anxiety issue, I do know that I experienced some when I wasn't in a good place with what I do have. The therapist helped put it in perspective and also helped...

Thanks Donnastar! It's funny - I only talked to the therapist because the first set of Drs didn't know what it was and thought it was anxiety. I was willing to try anything. Looking back, the only anxiety I had and sometimes still have is about this health issue. I really don't dwell on it...

Hello all, I am new to the forum and I'm sure many of you can relate but it was a relief to see that there were so many people experiencing what I have been going through over the course of the last 8 months. Before reading some of the posts, It felt like I was going through this alone and that...