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I never thought i would see this day 4 1/2 years ago when BFS entered my life. About 2 months before my oldest daughter turned 1 came down with BFS. And like everyone else here I thought I was a dead man. I remember thinking at her 1st birthday party this would be the last time I would...

Mario once again you are 100% correct "greatest thread ever"

This week marks year 3 since BFS entered my life. (WOW it has really been 3 years....funny it turns out my neuro was right)I really don't have anything new to say that hasn't been said 1000 times before. I am posting this for those who are in the middle of the anxiety and fear. 3 years ago...

AcctYeah its painful...but at the join and the meat part of the muscle. Like if i hold four fingers up my thumb really hurts. The twitch is on the inside of the hand. The meaty part by the palm. It is so aggressive that my thumb moves. It is aggravated by me using my thumb. Like typing this...

DarrGood to hear from bro. How have you been? Have you heard from Robbie lately? We emailed about 6 months ago. He is still kickin and twitchin but moving forward with life. One of the biggest things i hate about BFS is when you start to get arrogant it kicks you the ass. I was doing well...

This weekend marks 2 years for me. And with it comes mixed emotions. When this BFS crap first hit me I was an emotional mess just like everyone else. I would come to this board and read stories of those who had come before me. I needed advise, support, and reassurance. (all of which I...

SimonGreat to hear you and your family are doing well. I agree with everything you said. I have cut out caffeine, started sleeping better, and just moved on with how things are. You were a major help to me and for that i say thank you. I have always felt your symptoms were most related to...

MarioGreat post. I hope it isnt your swan song!When i first came down with BFS 18 months ago and found this board i though you were mean. I said "why is this guy so direct and cavalier about his symptoms...why does he basically just tell people to stop crying and move on with life" I soon...

InvisableHang in there. Check out this post. It may help.

Thanks for the info. Has anyone's lasted more than a few days? It is so weird. It is just the tip of my middle left finger. I have zero reason for it. Possibley slept on it weird. Even my friend who is a MD said that numbness related to a CNS problem would effect more than just a small area...

I woke up today with a completly numb middle finger on my left hand. Any thoughts on this? Anyone else have sudden numbness? What does the data say about sensory issues (numbness) and AlS? I have always heard numbness is associated with MS?Any thoughts?

To Mario's point I congratulated my wife for 29 years of no als. Ha ha. U r the man Mario

wow i feel honored to have pulled the legendary Mario out of retirement to respond to my post (i really do appreciate you responding) I am glad you are doing well. 3 years! Do I say congrats??? I dont know what the protocol is for this crap. There is no question you are missed around here...

To the BFS class of 2011 and beyond. (i write this as much for me as others) I was very skeptically of this whole BFS thing and refused to accept this is what I had. Here is my story. It was 1 year ago today I embarked on one of the toughest years of my life. It was 1 year ago today I started...

Great ideaNow come to MN and hit up a Twins Game this summer. In all seriousness it is very easy to feel lonely with these symptoms even with this board. A person can read all these post and still feel "but that person doesn't have it like i do....or i know that i am different." Stay healthy...

Did anyone actually think that just because you have BFS means it is impossible for you to get ALS? My nuero told me that right after my CLEAN EMG. Direct qoute "you have as much chance of getting ALS as I do." Meaning this BFS is not a force field that keeps ALS away. So can people with BFS...

Well today marks 9 months of BFS. So to celebrate i saw my neuro for the third time. First time was once month into this....then at 3 months where he did the emg and then this follow up visit (6 months after the emg). I have seen some minor changes in my twitches. They have come down SLIGHTLY...

I edited my post. Sorry if I put something up that was insensitive. I was just trying to make a point that the twitching was not a precursor. Sorry if I made anyone uncomfortable.

wow really good advise everyone. This bulbar fear is new for me. Since the twitches were mostly in my legs i was focused on them. Since being on the meds the legs are a lot better but now the tongue is acting up. (I hate this). I am eating and drinking fine. My mouth is sore but i my guess is...

This week marks my 30th week with these symptoms. I person would think that after countless hours reading about this stuff I would be more rational. For the past two week I have been on propranolol and have notices a 50% decrease in my twitches. My legs have gotten a lot better and I can...