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Hey thanks everyone! Yep, you are right Brian. It is harder not to worry than it is to worry for some reason. You would think when you get the BFS dx after a year and have no weakness, the twitching would slow down a bit simply from a HUGE stressor removed. BUT NOOOoooooooooooo. Would you...

I guess because the first one which was a year ago was pretty early in the twitching. Also, twitching got worse lately and I complained to my PCP who happens to be the PCP also for my uncle who died of ALS. I think he knows I worry about ALS and was nice enough to schedule a follow up EMG to...

As you can see by my post on my EMG, my neuro thinks BFS is quite hereditary. We should do a poll to see how many of us are aware of relatives who have had BFS.

Hey all! First, thanks to everyone, especially Brian who has been so supportive. I had my second EMG and NCV today, one year after the first which was clean. Today's EMG was clean too and I got the official BFS diagnosis. Fascicualtions did show up on EMG, though not as many as I thought I...

I just got back form my second EMG (will post that part later) and laughed my gigantic butt off reading Flash's essay. It was so pathetic and yet insanely familiar. I suggest Flash become a stand-up comedian if at all possible or maybe even write a book. I almost hacked up a lung reading the...

John or Moderator (Aaron) I have noticed that when anyone types in Y E D, the "Beep" thingy comes up????????? Like stayed or played! Kim

I like you Grym. Simple, articulate, and right on the money. Do stay around.

What a load of crap. That's all I have to say. A big fat load. Monstrous. Sorry to be so blunt but the truth hurts. I hope if I lose it and go see a Shaaman you would all tell me the same.

I agree wholeheartedly. Uber is right. Kerri, you are a nice and caring person. That is obvious. The problem is that when you work yourself into hysteria, everyone else goes along for the ride. Perhaps you have a hobby you have been ignoring because of the stress you are under. Maybe you...

I don't smoke fwiw. Would the blood test you refer to be carboxyhemoglobin?

Hi all! Last time I tried to ask a poll question I did something wrong. Hopefully this will work. I would like to know how many of you smoke cigarettes? I know some of you do. I have the nasty habit myself and I am curious if this may aggravate BFS. Actually, I am sure it does. When my...

I have a huge dent in my upper right thigh. About 5 years ago I noticed it and freaked out. Went to a neuro for that (neuros love me). Turns out it was a dent from a childhood injury that just showed up as an adult in the form of a dent. Whew! Seems to me with atrophy, you wouldn't have one...

I don't know near as much as you all (especially Alonzo) but I can tell you I can SEE large twitches and mine didn't show up on my first EMG about a year ago. Since I am so freaked out and VERY twitchy I am having a second EMG on Aug. 6th. I am positive I will see twitches then so if the EMG...

David, Out of interest, could you describe your myokymia? I would so appreciate it. Lisa

Hi to all the wave-like twitchers-----those who have large highly visible twitches or rolling twitches like I do. Let me say I have not had my second EMG yet and I know nothing about my first one which was labeled "normal." I say this because at this point I don't have a name for the kind of...