Fearing Early Parkinsons Disease

Arkansawyer

Well-known member
I know this one is kinda out there but I spent most of last night outside my mind to the point of tears afraid that I had early Parkinson's disease. I don't know how to link to them but in my other threads I mentioned my tremoring and the ratcheting thing my muscles do when tensed. Over the past year I was so afraid of AlS that Parkinson's never occurred to me.But last night I was reading a comic book, and as I was holding it I noticed one side of it trembling and when I looked the pinky and ring finger on my left hand were tremoring. Then I did the next logical thing ... I panicked. My original symptoms last year started with some twitching and then the tremoring and ratcheting of my left wrist and arm whilst washing dishes, my left tremors worse and more consistently, it is also stiff sometimes and why I open and close the fingers the motion is not smooth. The funny thing is I went through a spell where it was my right hand. Anyway it seems like doing much of anything with my left causes the muscles near my pinky to fatigue to the point of pain. Also even the weight of a framing comic book caused the tremoring, which is worse in certain postures of the hand.I also have had tremoring in my lips for a while now, though it varies from day to day. The funny thing is with the tremoring I often don't notice it unless I am holding a book with my left hand. Well I panicked most of the evening, though my wife and mother managed to talk me down, my mother shows me that her muscles do the whole tension ratcheting thing to and her right hand tremors in a similar fashion to my left. Whilst talking to her about it my symptoms got better oddly enough even the stiffness in my left seemed to.Oh and on top of all this I am still twitching, having this internal buzzing, and my right knee cap is stiff and the leg feels funky someways to walk on, though no one seems to think my gait looks any different. Oh I also have pins and needles feelings all over and something like an electric sensation. I have also found that when hitting the focus mitts for awhile that my hands, the left at the pinky and ring finger in particular, tremble and tremor like crazy for a bit afterward. Since I have started boxing again I have noticed a lot of muscle pain in my left hands.So I am just losing it by thinking about Parkinson's? I should also mentioned that I only got 2-3 hours sleep the other night.
 
Stop it. There's a reason why out of the 1000's of neuro visits we have experienced, Parkinson's is not something specialists ever think could be the culprit. PD doesn't look anything like BFS, so reverse your thought process ASAP. You're letting your health anxiety get the best of you. Every symptom you described has happened to me and many others, and I promise you Parkinson's is out of the question.
 
I have had every single symptom you describe. If you have ever seen my fingers video and I now tell you that my whole body was tremoring, buzzing and vibrating just as intense, you will understand why some people called me the " tremor queen". The face and lip tremors are embarrassing and even caused me problems with drinking. Not to speak about the ratcheting that made me look like a freak at the gym. And the fact that I was shaking so bad at night, that I woke my hubby up. You might have noticed I am talking in the past form. This is because this has passed and is not parkinsons. My doctors said it is not even close to how PD presents.
 
I have had every single symptom you describe. If you have ever seen my fingers video and I now tell you that my whole body was tremoring, buzzing and vibrating just as intense, you will understand why some people called me the " tremor queen". The face and lip tremors are embarrassing and even caused me problems with drinking. Not to speak about the ratcheting that made me look like a freak at the gym. And the fact that I was shaking so bad at night, that I woke my hubby up. You might have noticed I am talking in the past form. This is because this has passed and is not parkinsons. My doctors said it is not even close to how PD presents.
 
Thanks for the input guys, I guess I just needed a reality check. Anyone else ever have their tounge feel fatigued when and their jaw feel sorta tight when you eat or talk? I have this somedays, it is more annoying than anything else. I also had another question, the muscle pains I have both dull and sharp, could those be what some call a spasm or cramp? I thought so at first but when I described them to my wife and mother they said that wasn't it as spasms and cramps typically cause some difficulty in movement or a feeling of tightness. Neither of which happens when I have these pains, if fact I can move the affected area freely and without difficulty, it just feels like a deep tissue pain.Gah... All of this is a lot for someone who has been prone to health anxiety all their life. How do you guys deal with it? My mother says to go see a neurologist to get some peace of mind but I know myself well enough to know I may still be this anxious over it anyway. I also know that I will over examine anything they say.
 
So I screwed up and googled tingling and pain along with PD and apparently those can be symptoms too. Does anyone else tingle and sometimes burn in hands and feet. Mine is fairly constant. I also have deep muscle aches and sometimes sharp pains. Can these things be BFS?
 
I checked your post and wow are our symptoms much alike. Here is one I have that my mother who does not have BFS has as well, for instance if I extend my arm to my side and move it up and down I can feel the muscles in my shoulder "jerking" is the best way I can put it. My wrists, neck, and legs do this in certain ranges of motion, any one else know what I am talking about or experience this? This one is a major cause of anxiety for me and it would be nice to know that others have this with no scary disease involved.
 
This is ratcheting I think. It is when moves are not " fluent" but the muscles jump from one position to the next in little jumping steps. I had this especially on my arms when I made certain movements. It was clearly visible to others. It passed.
 
That symptom was awkward. Honestly I totally understand that those symptoms scare you. And I.so totally understand that it is hard to realize that those severe things are no serious neurological disorder but "just" BFS. But they are. After my initial freakout I did not care too much about the twitches anymore, but the tremors and ratcheting and the pain were very bothersome to me. But they proved to be benign for me, for many before you, and will be for the ones after you and of course yourself.
 
ALS seems to be the big fear around these parts. Anyone else here ever struggle with this particular fear? Little things set it off, like for instance when I use a spoon, I notice that it tremors. BAM, and we are off to the races again! I am even checking my handwriting for any zigzagging in the letters, and of course search and you shall find. I have also noticed that my hands move some to my pulse which also freaks me right the heck out. My hands tremble/tremor some constantly it seems like, more noticeable when holding something but no one I show it too seems to think much of it. Here is the other big one that freaks my out, some days one of my wrists, typically my right, will feel I don't know, off? Like sorta tight, but somehow too loose. I will also have pains in them when I am asleep that seem to dissipate shortly after waking. Also when I close my fist I can watch it move very slightly up and down, it is a pretty fine movement. Surely someone else has gone through these symptoms too? Am I just reading too much into stuff, spending too much time in a state of hyper awareness? Believe it or not it really does help when you guys answer. Makes me feel a little less scared and a lot less crazy. I was having a good day, but something set me off and I am working back toward full blown paranoia again, posting here sorta acts like a pressure valve that helps me not reach full blown freak out level.
 
Thanks for replying Johnny, I didn't know the wrist thing was common in BFS. Your posts always help, thanks for taking the time. I guess now I just need to get busy keeping my mind occupied.
 
Well im with ya on this one...I dont have a fear of ALS/MS... all my fears are on PD. I have a lot of the same things going on you do as wel las a lot more...my big thing right now is this internal feeling in my right hand...feels like it should be tremoring but when I look down...nothing...this feeling kept me up all last night and I don't know if Im having dreams about twitching or its really happening at night hahaha!! I also watch my hands all the time looking for the smallest twitch/tremor, when I hold a mouse and and move my index finger over a little it moves out fo control...and what do you think happens....PD fears start back up
 
I'm with you guys on this one too. I got such great advice from this site and my neurologist called yesterday and literally told me I don't have pd and I have to accept that. Problem is, same as you I have read many stories and worried myself sick over this. My symptoms that bother me most I'd very frequent vibrating in pelvic area, tremors, throat problems and stiffness. The twitches don't bother me at all anymore. I'm working on getting over this and worry that I will be the first person on this board actually diagnosed with something sinister.
 
Let's try a little reverse psychology. What is the point in NOT having it if all you do is think about having it? What are you fearing that you will lose? Precious time with friends, family, and loved ones? Opportunities to make happy memories? Look at what you are doing to yourselves now by wasting time away worrying and googling... Nothing will change until you decide to take a different course of action. So what is stopping you? You already know where the path you are on will lead you. More fear, more pleas for help, more doctors visits and tests. If that's what you want to keep doing then by all means carry on, but if you're tired of that then why don't you act on it and make a change. Einstein's definition of insanity was to keep doing the same thing over and over again each time expecting different results. Keep that in mind.
 

Users who are viewing this thread

Back
Top