Anxiety Returns: Struggling to Sleep

TheShadow

Active member
I type from phone so can not made proper text.I will put it tomorrow.Anxiety and affraid of S.. back this evening.I was so calm long time i used to have fasciculations and its stops affect me with worries.And today all worries back because i was read something.Its night now and i will not sleep.*beep* it!
 
Yes The_Shadow, don't read stuff in internet!! If you love yourself and want to get out of your fears just don't check anymore about your symptoms in internet. Help yourself, dont feed your mind with scary stories and when you doubt about something that is happenning to you come to the chat, im sure that someone with experience would give better reassurance than google ;)
 
Thanks all for kind words.I really fell scafed again.So there is case.I bought book "Healing codes" and author said in book he was diagnosed with A..And about this he type only 2 pages in book. He said his simptoms was fasciculations and weaker voice.He dont say nothing about weakness in body. And also he said he had this simptoms 1 year before diagnosis.So conclusion is:a) he had fasciculations, not mentioned weaknessb) he was 1 year with this and after 1 year still he dont mention any serious weakness Doctors said always that in A.. there is first weakness then eventually fasciculations and after 1 year for sure symptoms will strong. And story in book said different version.Also on net i found people diagnosed with A.. and said first they had fasciculations then weakness, also one man confess he have A.. 10 year and still can drive car.But then i thought- ok its net, ok maybe this people remind wrong or whatever and there was weakness first then fasciculations.But now its book.Seriously again i am in nutshell. Please all share Your opinion i will aprecciate.
 
Hi The_Shadow, sorry to hear you're so scared at this moment but try to relax and think rationally.Stop with googling stuff, because you will find exactly what you are looking for and it will make things only worse.Regarding the story of Dr. Ben Johnson, we don't know it's true or it's a fake. But if it was true would there not be many more people healed from ALS? One person on an ALS forum gave his opinion on this book:Regarding to his symptoms: we don't know the exact symptoms, because weakness is not mentioned it does not mean it wasn't there. Being said that you cannot conclude anything from this kind of stories in my opinion.
 
Just for the record...you said the guy stated that he had twitching with a weak voice for his symptoms...That tells you rite there he DID in fact have weakness...His voice was weak...you have muscles there too you know..." IF " the story is true..sounds like a bulbar onset case..which nobody here has just as no body here has ALS...So not even sure why this stuff gets posted here. But I just wanted to point out that he did have weakness as one of his first symptoms.ML
 
As LeAnne said, he clearly describes his weakness as being with his voice, a well known symptom of Bulbar Onset. If someone complained of having a weak voice , not a hoarse voice, or a croaky voice, but being one where they had problems projecting their voice, raising their voice, to the point where it sounded like a whisper, accompained with widespread fasics, I'm sure a Neurologists interest would be at least peaked, and possibly thinking ALS from the outset, as a possibility. It's not a secret that fasiculations can occur prior to weakness, at the end of the day, its why everyone of us has been worried, or continue to worry, but the fasics are occur for a specific reason that would be picked up by an emg, clean emg - no reason to worry.I have no reason to doubt that Dr. Ben Johnson had ALS, he was diagnosed by two doctors, there are a very small minority (almost non existant) of cases that do a) stop or b) stop and go into remission, a very lucky few.
 
Let's not sugar coat it, people. We all know the rare stories of people that twitch for months on end and then develop clinical weakness, or who have 'clean' EMGs and then get diagnosed with ALS. It happens and we shouldn't try to throw a veil over it. The point, however, is that this kind of scenario is almost as rare as rocking horse sh*t, and that is what we should bear in mind.
 
I'm not trying to sugar coat *beep*....the fact is this isnt even a "rare" story or "exception" to the rule....The guy had a weak voice...which is a clear indicator of damage in the Bulbar region...in layman's terms..."Clinical Weakness"...which again..nobody here has...There are rare events in every physical disease known to man...But if the incidence is as rare ( as Colin stated so eloquently above) as rare as "rocking horse sh*t", then why even bring that crap up?? Whats the point...all it does is cause people to sit around and spend their days worrying, needlessly, over a disease they dont have and may not ever even get....Just so I'm not accused of sugar coating *beep*....I will throw out there how ridiculousness it is to be wasting time worrying about having ALS, when the majority of us here will die of a heart attack, cancer, or just plain ole "old age"....so whats the point ??ML :D)
 
Hi all!I am very thankfull for all answers.Fjordian is sad to hear this story from man who tryied healing codes and it was not work and also for other people :( Its good to hear again that its really rare that fasciculations occur before weakness. I know that this few cases anyway still make us worry.About how mind trick us i saw now. Because after read this part of Healing Codes which said about A.. i never wanted read this words again. And today i was sure author said "changed in voice" then i saw my first message on post and i saw i clearly said "weaker".Is sad to hear this all story of people who lost work and all because scared of A.. Made 100 test at day about weakness. I also was in this place in past when i was checking in home did i have weakness.Then i get really calm and just now worried start again.I hope one day we all will calm.Anyway your answers make me fell better now. I had EMG in December and it was clear. I had 3 muscle checking and in one answer was wrong but reaction was opposite to A.. Doctor said its more like "myogenic" but i should not worry because it was from only one muscle.Wish You all good health and fasciculations gone.
 

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