Right Shoulder Twitching & Fastics

So, I've been reading everything here and of course all over the Internet, which has now caused me the usual anxiety. More concerning is my twitching or fasics because it seems to be isolated to one spot, my shoulder.For the past 4 1/2 days, I've had twitching in my right shoulder. No weakness, not that I notice, but seemingly almost non stop fasics. After a heavy workout Monday mor ing, an hour or so later, I noticed my should popping like crazy. My clothes jumped and it was very visible. I could also feel every jump. No pain, no other issues. Then it basically never stopped. It did vary in intensity. The one strange thing I noticed was when I deep massaged my right forearm, it seemed to make the twitches stop, or best I could tell. I also seem to have radial nerve entrapment from lifting weights right forearm. In also noticed that on Wednesday mor ing after I woke, the twitches were gone for about the firstnhour awake. Same thing today (Friday morning). But then they start right back up after about an hour or so. The twitches have different intensity, from not feeling them but being able to see them slightly, thn back to feeling every bubble like twitch. Right now it's steady, like a bump bump bump bump every second. Everey so often th steady beat has 1 beat then 2 fast.I did notice I had the same type of thing in the same shoulder in the past, but it nevere lasted for more than a few hours. My caught said she remembered in June, 8 months ago, that I points out my should jumping out. I also believe it happened o ce or twice prior to that and also once or twice after last June. My wife had the same shoulder jumping as well, a few months ago. We do th same workout, which is a lot of shoulder work and leg work.I have also had in th pat, twitches in my eye lid, a few hours for a day or two here and there. But the eyelid may have no relation.I haven't noticed twitching anywhere else, except for today I noticed a couple twitches on my right lower tricep/upper elbow and a couple on my right bicep. I also think the shoulder twitching stopped for a while when I laid on my arm last night while tying to go to sleep, but when I rolled over it was thumping like crazy.I'm scared ****less right nowThanks(I wrote this on my iPad, sorry for any auto correct I didn't catch or poor spelling)

So, oddly enough, I was reading some older posts a few seconds ago, and all of a sudden I feel two "twitches" or jumps in my LEFT bicep and then one in my left tricep

GD13,Welcome to the Board. I think you'll find a lot of reassurance here. The good news is that twitching alone is NOT concerning. Everything you've described is very common among people on this board. I've twitched for 9 months now, all day everyday. All I have to do is lean on my arm and my bicep or triceps will start twitching. If I close my eyes hard, my eyelids will go. This is BFS and LOTS of people have it to varying degrees. Feel free to PM me if you have any questions or visit the chat room. There are lots of fellow BFSers on the chat room 24 hours a day and we always welcome new people to the forum who may have questions about their symptoms. Take care and please don't waste any time worrying about anything you read on google. -Matt

mmmmmmmmm ....My BFS "twitching" started like your twitches.One twitch one day, nothings for long, twitch again elsewhere, nothing ... etc ...then ... twitches everywhere.So ... relax, it can only be BFS or transient twitching from workout.In the last case just don't do any workout.Don't google this ... it is not ALS.Relax, relax, relax ... and read old posts.Good luck

Thanks PrickLedPin. The only thing is my twitches were all in my same shoulder. I did have eye twitching before though, just never thought them to be the same thing, thought they wewre totally uncorrelated

The funniest thing is after we got off the chat tonight I developed a hot spot that was easily twitching over 60 times per minute ( more than one per second) in the same fiber of my right shoulder non stop for the past three hours. On the same spot! Unreal. I kid you not.This is completely benign and it is so hard to wrap your mind around it. It's hard because you think your twitching is so unique but it is not. You are just one of us fortunately (or unfortunately depending on your view of life :> )Once that unnecessary neuro doctor tells you you are fine next week just put this all behind you. Stay in touch. G

Ha. Thanks. Now I know I have the power to transfer hot spots. I've been up for about an hour now and don't think it's twitching. I can't feel it if I put my hand on my shoulder but I haven't looked in the mirror to see if it is or not

So it was not twitching for almost 2 hours after I woke this morning and maybe while aslepp, not sure. Then started fast and furious at breakfast, still going strong. 1-2-3-4. 1. 1. 1-2-3-4. 1-2.

Sounds like you need reassurance that nothing serious is going on. A neuro visit will go a long way to provide that, but ultimately you have to do it yourself. Twitches, spasms, and other forms of fasciculations are all common in BPS/PNH. Assuming you're not deficient in a mineral like magnesium or have a nerve entrapment issue, radiculopathy, or muscle overuse (all of these are readily treatable), you'll just learn to view the problem as minor and get on with your life. Eye twitches are common; you'll find more than a few threads on that subject here.Keep us posted on what happens.

I do have Radial nerve entrapment on my right forearm, from overuse/working out. I don't think it twitched in the past hour or so either

Thanks. I worked out today and it went crazy twitching very strong. Hasn't twitchd for a couple hours now

My twitching started similar to yours. I started with eyelid for a couple of days. Then, all of a sudden, a string of muscle in my right thigh started thumping about 30 times a minute. It was like yours how when I wake up, for a while its quiet, then for whatever reason it starts up again, and I feel like Im gonna die cuz I looked up the internet.After a couple of days of the thigh, it quickly spread to my stomach, then to my right arm, left arm, fingers, shoulders... The systemic twithing stopped after about a week, but the original thigh twitching never ceased.I kept testing my strength, went to a neuro, did an EMG, twitches were benign, relieved for a second but started to worry again, and so on.This true story of mine that I have told was about a year ago. Ofcourse, untill now, no loss of strength or ANY sign of the disease were all afraid of. I have been reading peoples story on this forum for a long time now, and WE ARE ALL SIMILAR, WE ARE ALL BENIGN!! Just as GMayes20 said, you think your twitching is unique. You think you must have it. Thats what I though too lol. But after couple months, you get tired of worrying.So, GD13, I know how scared you are right now. And nothing what we say, or a neurologist say will completely ease your mind. You just have to wait it out. Time will heal. Just dont drive your wife or your family crazy, cuz thats what I did lol. After a year, youll be giving good advice to a newbie to calm down, just like Im doing.Best of luck!

Thank you, I appreciate it.Going to the neuro tomorrow. Good thoughts and prayers are always appreciated. )

Back from the neuro. Feeling a little better, but my EMG is scheduled for march 14 and then after the results I'll know how to feel.She was very good and throurough. She also scheduled a blood tag to check my Ck levels I think and other stuff. She said my shoulder twitching as I described, since I wasn't twitching in my shoulder in her office, weren't the type you'd see in ALS. She did se the twitching on my tricep and upper elbow and she said those types are the ones more common in general fasiculations that are benign and also the kind that they look for in ALS. Because they warrant popping, but moving lightly. I also had a neck twitch while in here offie. She saw a small one on my calf was well, and I saw one there this morning before I went to see her. She ran strength tests, like grip and toe and wrist resistance type stuff and tested my reflexes. She said that I was strong and that my reflexes were 100% normal. She said because I'm strong and have bigger muscles that her reflex and toe tests she did would show here if there was a concern and used to check in case my strength held up only do to muscles. She said a huge red flag is over active reflexes and also the toe and finger tests she did. I asked her about my twitching in the shoulder and she said it w likely due to over working my mules and she asked if if I trained the day my shoulder started up.She id the distal muscles is where they go to look for ALS really and I had no issues showing there. She said, if you were my brother, I would have no concern that you have ALS, but since I can tell you're stressed we will do an EMG and blood work so you can have piece of mind and we can make sure we tested everything. She also said I probably have been having these twitches for a long time and never noticed,but now I notice every one now due to th Internet and seeing th Gleason story. She said she totally understands and it makes sense I would worry after seeing that, but that she doesn't see anymore flags or anything to make her think it's anything more than benign.She said forearm calf and thigh would be places she would look for concern, along with having weekness, drop foot, nasally different speech, ring and or wrist weakness along with the twitching.Of course I'm still worried until i see a clean EMG. Can't believe I have to now wait 2 weeks.

Greg,Please try to relax. The clinical exam is JUST AS IMPORTANT as the emg. She did not notice anything concerning in your clinical and is sending you for an EMG for YOUR reassurance, not hers. Without weakness, fasciculations are not concerning. There is no reason to think that your emg will show anything scary. Also, I want to point out that brisk reflexes are very common on here. They are a sign of anxiety and hyperexcited nerves. I had them, as did many many others. And I don't have ALS.. I have BFS. -Matt

Thanks Matt. I tell myself to relax, but of course the mind is hard to control. My wife told my daughter yesterday Lyou know better to let daddy near the internet when he thinks something is wrong"Its just the way she looked at my tricep twitch had me nervouss, thst and now my twitches are spreading.

This is excellent news. A standard and useful question to ask a doctor is "what would you do if the patient were your brother, sister, spouse, child?"" Since your neuro said she wouldn't be the least bit concerned if the patient were her brother, you've basically got nothing to worry about. Even if somehow your EMG showed some abnormalities, there are lots of reasons can happen, most of them clinically insignificant.I hope you can put aside concerns about the EMG, ALS, and other medical nasties, and get on with doing what you enjoy.