Investigating Possible Neuro Muscular Disease

Hey all, had another neuro (different hospital) yesterday. Basically went through all my sx's. I did call from more bloodwork and looking for possible neuro muscular disease....He thought there may be a problem since I told him that I get cramps in strange places such as the palm of my hand. Results back next week. Dizzy tonight. HAving a tough one, so took a clonopin. Hopefully all is ok. Search my past posts for my story if you don;t know yet, but I am kinds freaking out tonight....Thanks guys.

hi there, i read a few of your posts...why did u go to see another neuro is it because of the dizziness?? i will keep my fingers crossed and hope everything works out ok for you my friend...remember this new neuro might just be covering his own butt by running more tests...good luck with everything..shanny

Nytfurry, I have read your posts and seriously ...not one second I thought it would be something else than the crap we all share. The dizziness without reason is one of the most typical somatoform things, if you cannot remove it with those statolithe exercises. See, our nerves are in a hyper state, which means that the filters and inhibition of nervesignals does not work well. Your sense for balance gets all kinds of nput, from your neck muscles, from your eyes, from your vestribular organ and one more I forgot.. Usually all this is filtered and brought together to make sense in your brain, and the brain is only satisfied if all the input fits together well. If only one signal of those sources does not fit, our brain starts a rebellion making us feel light-headed, dizzy and sometimes even nauseous. Very often any fast movement of our head can cause this, so we start to avoid hings that make us dizzy, which increases the problem. I will now go to youtube and search for some of those vertigo exercises I did, they worked so good for me. And for the rest...hmm. twitching, tbuzzing, tingling and cramping....guess what, BFS. Or hyperventilation,or somatoform disorder or spasmophilia or cramping type of fibromyalgia or whatever......but for sure not killing you. See, when you go to a neuro, he only concentrates on neuro diseases. He picks out the symptoms he can fit into a diagnosis like twitching and cramping and then tests for it. Spezialists never look at the whole picture. Not even GPs do. It is really bad but it is the truth. The huge load of symptoms you have are even more a proof of a benign course.

I cannot find any online But I will keep on searching

Because everyone is different suggesting complex psychological conditions such as Somatoform disorders over the internet could be inaccurate at best. A diagnosis of such disorders requires clinical assessment. Even then it is a psychological perspective open to interpretation that exhibits physical symptoms.Regards

Hi Nytfury I am really sorry to hear you are going through this. A lot of people on here go through similar stuff that you describe. Me included. Generally overtime, it has been the experience of those on this forum, that it turns out to be benign. But saying the word 'benign' almost en-sights, no problem!! Well; we know that benign can be really uncomfortable. That is why there are very good people on this forum to chat to about how this affects you on a day to day basis. My neurologist sign posted me to this site. Maybe there is something in there for you. , she is based at 'National Centre For Neurology' Queen Square, London. It is the most respected centre In our Country. There are many theories as to the cause and treatment of these benign disorders, many overlap within different disciplines. Sometimes using different diagnostic description, but essential saying the same stuff. I can provide PDFs on somatoform and somatoform autonomic dysfunction, it was a module I done at Birmingham University as part of a psychological therapy course. Within somatoform there are 3 main theoretical models of causes and therapeutic approaches. It is essentially a psychological disorder. CBT has been used to effect as part of a therapeutic approach in managing somatoform's umbrella of disorders, along with desensitisation techniques. CBT is used to look at dysfunctional core beliefs and childhood experiences and trauma. One theory is psychological overload from primary experiences spilling over into a physical expression. ie. this crap!! They are theories only But whatever fits for you is what fits, but one size does not fit all.Regards Martin

Hang in their nytfury. Many of us have had these experiences with the doctors. This is one of the harder things, but we empathize. Once the doc gets back to you time will jump forward. Keep us informed, as now we are with you.

Thanks a lot for the support guys. Just waiting now. They have an emg scheduled for august, so that's a ways away lol. Just trying to relax for the time being. Went jogging last night...about 1.5-2 miles so that felt good. Way out of shape from what I used to be though lol. I used to run6-8 miles a night with a fast pace lol!!! Hope it is all in the norm. Don't want my wife to deal with a nasty disease...

There has been suggestion that some people can bring a lot of this stuff on through over exercise. I used to get up at 5.30am every morning run 5km at the gym then cross trainer for 30 minutes and weights. I done that for years, 5 days a week before work then a Saturday or a Sunday I would run 10km. Then I started to get bout of what felt like flu. This lasted a for a few days, which would put me in bed. Strange thing is no one else in my family would get whatever it was. I am not saying it was the cause but I might have just compromised my immune system with over training. Who knows ? I know one thing no matter how tired I felt I couldn't let myself off the hook.Regards Martin

I never diagnosed him with somatoform disorder over the internet I wrote: "And for the rest...hmm. twitching, tbuzzing, tingling and cramping....guess what, BFS. Or hyperventilation,or somatoform disorder or spasmophilia or cramping type of fibromyalgia or whatever......but for sure not killing you."