Exploring Covid Symptoms Changes

I'm wondering how people were feeling physically and mentally. For me there have been valleys and hills(no mountains yet). This feels like a real vulnerable time, not being long enough to be confident of my health. My symptoms have changed so much in this short time as well. Early on the twitching was very intense but has now become much softer, sometimes felt and not seen, yet more body wide. I'm experiencing much more facial fascics but again the very soft kind. I want to believe this is a good thing but am getting mixed thoughts when performing a search. Really looking for some enlightenment. Was it simply time that brought most of the veterans out of this slump? Was it additional testing?

Hi there,I've been at this 6 months and I too have had my symptoms change from more intense to lighter - a lot of times not seen just felt. Hopefully this is a good thing that we can be thankful for! My symptoms are more widespread and weird now too. Just now I was holding the phone up to my ear and noticed my hand was trembling. What the heck? The only facial twitches I have involve my left eyelid - driving me crazy as it's been on and off for the past couple of weeks. I'm trying to maintain a good attitude and constantly check this site for affirmation. All the best to you!Amy

I was a mess at 4 months in. My anxiety was through the roof and I just couldn't get a grasp on this stuff. Now at 8 months I am doing much, much better although I still twitch everyday, all over. I'm starting not care as much as I did before. I think I just got tired of worrying myself sick everyday. I figure I could spend everyday worrying or just live so I decided to live. Sure I wonder what causes this and where it will lead but at least I'm not deathly afraid anymore. Also the thing that got me through this was making some very close friends on this board. Me and one other person are very close and e-mail each other everyday and speak on the phone. Our symptoms are identical so we can really relate to each other. My best advice as to moving on is just time. Time is the only thing that helped me. You will also get through this.~Leslie

By that time (4th month or so) everything was getting much worse for me. I had several hotspots lasting weeks (some lasted months), my tongue was twitching like crazy and I visited every hot shot neuro possible. I lost my job (this really destroyed my career), my appetite and even friends to this condition. I was a complete wreck. It took about a year or so to really feel comfortable with the benign diagnosis. So yes, I could say that it is mostly about time.

At month four I was a complete mess. Many up and down days....lost 15 pounds due to the stress of it all. It's a shame we can't listen to the many people who have been here before us etc... Although I try to not take medication, I finally went to a syc for the anxiety and he prescribed Lexapro....that seems to help a littleAnyway it appears to get better after a while...not meaning that the twitches go away...It has been 11 months and it looks like they are here to stay...but at least they go into the background somewhat...I think that it what the medication helps with a great deal...I found that for me, I could not break the anxiety without help...hope this helps...Steve

Mine started the beginning of september, so I'm about 4 months in now and i'm still a wreck.I'm still new to this, and I do NOT know if I have bfs. I am just a young boy who twitches every second whenever he flexes, uses or is at rest with the muscle.I am constantly shaking my legs back and fourth or moving. My chest twitches like popcorn everytime I go to wash my hair so I'm even scared to do so without twitching for hours nonstop there.So I'm still coping with this and I even destroyed my school life. I went from All A's and B's to 3-4 F's at the moment from missing school of making myself sick on anxiety and stress. No idea what it is or how to deal with it, but I cant sleep or do anything normal.

After 4 months I was a true wreck. Actually I was a true wreck for a year or so. After that it developed like waves with more and more lenght in between the total fear. The last year or so have been much better, and I know that I will be completely cured a year from now or so. I am really looking forward to get rid of the last drop of fear and uncertaincy. But I also know, itll take a while as the brain needs to be used in other ways:from:twitch=omg, its ALS, im dead, Im the rare exceptionto:twitch=oh, its my BFS, i better get some sleepActually I havent been to a doctors office for more than 3/4 of a year. Hehe.

I was a complete cot case at 4 months!Hang in there. You'll be fine!RegardsSimon

Obviously from all the posts the consensus points to alot of mental pain and anxiety. That pretty much describes where I am right now. Recently, I have been having way more down days. I continue to experience different symptoms and that is the real frustrating part. The twitches really seem to ramp up once the anxiety takes hold. I had a few weeks where the twitching really started to settle down. Not sure if that was due to being more relaxed, but now I'm popping like Orville Redenbacher. I certainly hope that at some point I can confirm the dx and settle down. Right now it is :crying: . I think most can relate.God Bless,Tom

Hi TomI feel your pain! I thought I would share with you my own ruminations on this.Although I don't pretend to have got my health anxiety under complete control, I am significantly better than I was at the 4 month mark. I now feel a bit sheepish and stupid for having wasted so much nervous energy on worrying about ALS. I now recognise that the anxiety probably exacerbated the severity of my fasciculations. Dont get me wrong, I still have moments when I am absoluetly convinced I have ALS and so forth and I still have good going fasciculations although they are less severe than they were (or it may be that I've just got better at blocking them out) - so I don't want to come across 'holier than thou' or anything - but hindsight is a wonderful thing, and I wish for you that you can succeed where I failed and that you can pull yourself out of the worry phase of this annoyinf condition quicker than I am doing/ have done.Good luck.Simon

Let's face it. It's scary. End of story. When you are not in control of your body and it is doing things it shouldn't be, it's scary. The thing I have found most helpful is time. I also think that you have to remind yourself that even though it isn't normal, it probably isn't deadly either. Something is going on, but medical science is just not advanced enough to let us know. So when you have an ailment and the doctor can't tell you what it is then you get a generic diagnosis like benign fasiculation syndrom. When I was experiencing vertigo and they couldn't find anything they called it benign positional vertigo. It's all BS, but means basically that nothing can be found. So rest assured your not crazy, it is NOT ALL IN YOUR HEAD. It is real. There is a real physical cause. You are just not going to ever find out what it is. At least not at this time in your life. So if you can, bring the worry to a minimum and try to do what you can. In time you will see that you are not dying and things will get better. Hopefully what ever is causing it will correct itself eventually and if not o'well. There are much worse things out there.

At four months in I was a mess. I was still convinced this could not be benign. Getting the health anxiety under control will make a difference. I truly believe that is what fuels this syndrome. I am 2 years and 4 months in and don't post here much anymore. But, I can tell you, it WILL get better. Hang in there. I am ok and doing better all the time!Btw, for any newbies out there...get your thyroid checked and your Vit D levels. Both these things played a huge role in initiating my twitching. My own anxiety kept it going.