Twitching Worries: Yesterday OK, Today Not

*beep* it !Yesterday was a pritty good day, yea i was still twitching millions of times, and yes i was still worried sick but yesterday seem to be ok for me....today has not started so well. My calfs are going like mad again, probably the same as in the video i did. As Lovely said to me once that with all this twitching going on i would have surely had some other issues if it was nasty...i am not really asking any questions here it just helps me to put this down on a forum, kinda get it of my chest if you know what i mean. I think my wife is getting sick of walking in the bedroom and seeing me measuring my calfs I hope i look back at this in a years time and chuckle to myself.Chris

Chris,I understand your relationship issues. My lady is aso totally *beep* of somedays with my self-testing, measuring, and the other crazy things we all do.Kiss her and promise that on the 18th everything will change (it will change!). Every neuro visit is a placebo effect of happiness and self-assurement. I am on mine, but this time I will try to keep this feeling for years to come.And I quote my neuro "people that worry too much, usually have nothing to worry about".Hang on there!Mich

Hi MitchThats the only thing keeping her going is that on the 18th i might finally become me again!I really really really hope this will change for the better....i keep getting this nagging doubt in my head that everyone gets the all clear, surely satistics must suggest that someone is going to be unlucky...and ofcourse i keep thinking that, that someone is going to be me.I mean obviously someone must go for a neruo exam with twitching and then find out that they do infact have A*L. isnt it something like 6%?I keep thinking that i am going to come back here after neuro and tell everyone bad news and that i will be the one case that everyone will talk about on here for years to come !! oh just ignore me the closer my appointment the more negative thoughts creep into my head!Chris

Chris,She asks me the same thing. To become me again. That´s sad indeed. I told her that in worse case, I believe to be 100% me again in one year. But I am today 95% back me There are two statistics I saw on older posts... one study says 3%, and the other says 7%, in which 4% did not notice weakness (old age, etc).But now, something good. My neuro said that ALS under 30 is very very rare and usually the inherited type. I try to keep that in my mind. You probably also read about the 7% under 30, but then I ask myself, if most of these cases aren´t the inherited type one and it probably is.Anyway, statistics are lovely when they don´t include you, but are *beep* good for reassurance.Don´t be negative, don´t waste your life on imagining a disease. Yesterday I heard that a friend, about my age, 30, is dying of brain cancer. Really dying, no more treatment, no hope, just wait to happen in the next weeks. I realized, how much time I wasted (3 months) depressed about something I don´t have the key symptoms. Go enjoy life, take your wife out, go drink a pint. Time does not come back, and anything can happen at any time.

i know mate your right...can i just ask one thing can you please say that A*L is very very rare in people under the age of 34, i am 33 and i do intend to have lots of pints IF i get good news on tuesday !Chris

ok!let´s say, under 35 good luck and go hard on the pints

"I mean obviously someone must go for a neruo exam with twitching and then find out that they do infact have A*L. isnt it something like 6%?"I realise this is a somewhat old post, but I would just like to point out that while a study might claim 6,7% of those with ALS first noticed twitching, this certainly does not mean that 6,7% of people with twitches have ALS.