Can't Escape Twitching/Vibrations

Hi GuysTried to stay off this site for a couple of days but just can’t!! I went to my neuro again last week and he listened to everything I said about still having widespread twitches and buzzing /vibrating body parts and sometimes whole body, also tickly feelings down arms like fine hairs keep touching me and light headedness. He basically again said I need to go on anti-depressants but not because I’m depressed, which I am over all this, but because it can help me breath better and therefore stop some of these feelings. He said I’m suffering from Hyperventilation syndrome, which causes light-headedness and many neurological symptoms. I really want to try and believe this but it’s so hard when I am getting so many things happen to me!! Can BFS really cause so many symptoms? Also my neuro said the twitching was normal in high times of stress and anxiety.My private parts are still buzzing/vibrating and a little in my lower back now, still so scared and just don’t know what to do next!! My Neuro said no need for Spine MRI as MS nearly always shows up in the Brain first or at the same time. He said that he really doesn’t need to see me again. I think this is good but also I feel scared that I’m now still without answers.Does any sit in a chair and feel like it’s got and electric currant going through it or it’s vibrating slightly?Any light floaters that look like little flashes of light in your vision floating down?Sorry guys I know I ask a lot of questions!

Hi Dawn,Most important thing is nothing bad is going on! I think we are the same, if you only knew what my body expierences all the time- twitching 24/7 in calves- electric shocks- buzzing- vibrating-numbness- numb cheeks- sore jaws- shaking, whole body- burning legsand the list goes one. It's also difficult to believe there is nothing really wrong.best regardsBart

Thanks Guys.Bart - YOu have a lot going on like me! Do you ever get the Buzzing/Vibrating in your bottom or groin though? I'm geeting this so much lately, feels like a mild electrical current or like I'm sitting on a moter. It's bothering me more then the twitches which like you have 24/7 in my calves and big ones in my thighs!

I got the virbating , buzzing - electric wire thing EVERYWHERE, sometimes I wake up at night an whole my body is shakning inside out. It's like you said, the twitches I got used to bbut all the other things are horrible!

Bart - like you I have woke up with my whole body buzzing! It's horrible and scares the life out of me! My neuro said that this was because when we get anxious we over breath without realising and it causes chemical changes in our Brian which then brings on all the neuro symptoms!

Dawn this will be more beneficial with the breathing advicemore stuff if you type in breathing exercises in youtube etcmore info here Do the exercises everyday and you'll feel the difference in more ways than one ATB

I have very very similar symptoms and my neuro offered hyperventilation as a possible explaination. Although I don't feel like I hyperventilate, I have read that some chronic hyperventilators do it without noticing it. I also wonder how long the effects can last from an episode of hyperventilation. For example, if you hyperventilate at night will you have symptoms the next afternoon from it? My most scary symptoms right now are this tighting, pulsating/twitching feeling I get in my nose and face near my nose. I have also had tiny electical shock like twitches in my lips, jaw and chin area ( just a few a day ). I even think I have felt an electrical shock sensation a few times in my tongue area (on top and underneath). I fear these are the dreaded tongue twitches. I am in the process of trying to get my local neuro to refer me to a specialist at USC. I wish this had be happening to me for longer than just a month and a half. As I've said before, I feel like the longer time passes with no weakness or other more serious symptoms the more reassurace you have. It is somewhat reassuring to know however that others have had similar symptoms to mine for long periods and they are fine. I will pose my questions to the next expert I see which will hopefully be soon. Thanks everyone for continuing to share your experiences.Krackersones

Dawn,I can relate to what your going through in so many ways. I went to a Neurologist about 2 weeks ago for a second opinion. I will give a more detail summary on another post. Anyway, I am just a few weeks away from my 1 year mark with this wonderful condition. I have a great Neuro who is very qualified and whom I trust. He says I'm healthy. No MS, ALS or Parkinsons. Normal MRI and clean EMG. He's suggested at previous appt's that I get a second opinion (only because he thinks I need to hear it from someone else). At our last appt (April) he encouraged me to go to the Mayo Clinic (for reassurance only). Well ,I never did but in July I decided to seek a second opinion from another Neurologist. So this guy listens to my story and then gives me an exam. He says you're "stone cold normal". No ALS, so get it out of your mind. I continue to list this symptom and that symptom and say what about etc, etc.......He replies you're not telling me anything that is going to make me change my mind about you or your diagnosis.My main symptom is the internal buzzing-shaking-vibrating. I twitch but do so moderately compared to others here. Some days I twitch more than others. The buzzing symptom is what I asked him a lot about. He said that everyone has a tremor. He believes what happpened to me was that stress has caused this tremolous activity to become hyper and what I'm feeling inside is a result of this. He indicated that my "make up" has been changed. He says you're not depressed but rather anxious. He expressed concern and said that I don't what this to become the "new you". He suggested a method to treat it. Excercise, psych therapy and meds. I chose the excercise option. Too proud for therapy and I've never taken any meds. Heck, I just started taking vitamins a few months back. He then said I want to see you back in 3 months and if you're not better I am going to push you to see someone (therapist) and get on some meds.So at the end of our appt. I asked the doctor if he has had any experience with ALS patients. He looked at me kind of funny and said "I run the ALS clinic here in town". This makes me 2 for 2 with insulting my local Neurologists. My first Neuro reacted similiarly when I asked him the same question. He did a fellowship in an ALS clinic and is board certified in electrodiagnostic medicine (EMG's).The hyperventilation theory is interesting. Earlier this year I say my GP. Of course he said "you're healthy". He went on to say that you are probably hyperventilating. According to him, a lot of times you won't know that your doing it. What happens is you are reducing the amount of oxygen that your body is getting. This can create all kinds of probelms. He wrote me a script for Xanax which I never filled.I am still a skeptic when it comes to the stress/hyperventilation theory. However, I do understand that these docs are a lot smarter than I am and maybe, just maybe they know something I don't. I am excercising, which I've been doing for awhile, but my condition remains the same. I anticipate in November when I see this doc he will want to prescribe me some sort of psychotrophic meds. I also have my 6 month follow up with my regular Neurologist in October.CDC

Dawn, everything you described is conisistent what we on this site are going through. Bart is right the list can go on and on. Some doctors will tell us we are focusing to much on our bodies and picking up on things that have already been there, I think this is BS, what we have is real, and it is intense. In the end we will be ok, we all have to find our indiviual ways of dealing with it. I do not like the fact that others are burdened with this syndrome as well, put it helps a hell of alot to know I am not alone in this. You have to believe in your doctors when they tell you nothing sinister is going on, they are all right, I have never heard a story to the contrary with BFS. Good luck

Thanks TomA and JRO for the further replies. It’s the best piece of mind knowing that you know people out there know exactly what your going through and can share their experiences too!CDC – Thank you, I have replied to your other message.

Dawn,When you're in a chair and feel like it’s got and electric currant going through it or it’s vibrating slightly? Probably in a chair, but REALLY notice it when I'm lying down in bed. I'll then put my arm or leg against my husband and ask if he feels it---he never does. Any light floaters that look like little flashes of light in your vision floating down? I've had a lot of different types of floaters, but the ones that come to mind by your description are lots of them floating down around my visual field almost like little sparklers. I can remember the 1st time this happened, I was in my early 20's and think I turned my head fast or sharp and it happened. After that it's happened several times over the years. It's nothing I've ever worried about---just found unusual. I've gone to an opthamologist on and off since my early 20's. They can also spot anything unusual due to MS. They never have with me. That might reassure you though to have an annual eye exam with an opthamologist (not optomistrist). A couple of years ago I had a dilated pupil (wouldn't react to light) and went to the emegency room concerned that I was having a stroke. They did a CT scan and MRI, (they said to r/o both stroke and MS). Both were fine, but I did mention it to my opthamalogist, who heads the eye center at our hospital and he checked my eyes and said that he would have been able to spot something if the pupil was due to MS. We both just kind of laughed it off and it hasn't happened again, thank goodness! Later, I found out it's happened to my sister a couple of times in the past few years and she's completely ignored it, (she's a nurse---go figure!) I try and encourage my adult children to keep getting an annual eye exam---this might help you to alleviate some of your worries as well, I know you're fine....From everything I've heard from the neuros is that an MRI of the spine isn't necessary in MS---I've never had one although I've been offered one by an orthopedic doctor due to some back issues. Seriously though, the brain MRI's are good enough for ruling out MS. Take care, Denise