Seeking Reassurance for Unusual Symptoms

Hi All Things are so bad for me at the mo and I have my neuro appointment next Tues so hope that I get more reassurance that this isn’t anything bad.Don’t know whether I’m paying too much attention to my body lately but it seems to be in over drive.Last night my whole body felt like it was buzzing/vibrating while in bed like an electrical current was going through me!My elbow keeps buzzing when I lift it or bend it.I keep feeling like I have sat in something wet and cold but when I check my cloths etc they are dry! I also have a vibration in my bottom as well as my privates now!!I know I ask so many questions on this site but I feel so scared all the time and can’t ask anyone else because they think I’m going mad, maybe I am!! Does any of this sound similar to anyone?? Any feel cold/wet patches of there bodies?

Dawn,I buzz-vibrate-shake (internally) all the time. It is most noticeable at while in bed at night and in the morning. I felt buzzing all over including my neck and head. Sometimes I will feel it in tips of my fingers. I can totally relate to what you are going through. I can tell you that I've had these sensation for almost a year. Some days they are worse and some days they are a little better. My doctors have no answer for this. I am going for a second opinion tomorrow (Thursday) with a new Neurologist and I plan on asking lots of questions about this symptom. I do trust my first Neuro. Actually he was the one that encouraged me to see another doctor. He felt it would benefit me to hear that I don't have "it" from someone else. Anyway, the main reason I am going is the hope that this doctor may have some explanation of these strange sensations.I will keep everyone posted on my visit.CDC

Hi CDCI have read some of your other posts and have seen similar symptoms to mine. Only people like you know what I'm going through!What tests have you had done?I have only had a Brain MRI but want a spine one done now.

Dawn,I've had a MRI of the brain and c-spine with contrast. It was completely normal. Except for some buldging discs in my neck which was considered "normal". I've also had a normal CT-Scan of the head. Normal EMG/NVC. Lots of bloodwork - all normal.I would like a MRI or X-Ray of my thoracic and lumbar spine too. I've had various levels of back pain on and off for over 12 years.CDC

Let me know how you get on with your second opinion.I'm just so scared that I have MS, I do sometimes worry about MND but not so much as I know it's rare and heard from medical services here that it really starts with weakness and wasting along with dropping things etc. With Ms I know it's more common. My symptoms are so widespread though, surely that would be weird with MS wouldn't it? I mean I buzz and vibrate everywhere and like you sometimes by whole body feels it.Did you first Neuro say you had BFS or just that he couldn't find anything wrong?

Dawn,You are right. It would be very unusual for MS to present so widespread. My doctor (very qualified) told me right away that he didn't think I had MS. I don't think you have it either. He ordered the MRI just to be sure. I was very concerned about MS early on and so I can totally relate to your fears. I had an increase in eye floaters along with other very strange symptoms. I am not sure what I have but I know something isn't right. It's as if my whole CNS has just gone haywire.CDC

Hey Dawn - It doesn't seem like this stuff you're experiencing is all that weird - but hey, what's weird to a bcfser is a far cry than what's weird to a normal person. If you get my drift. So many symptoms we get we can't do anything about but this is one that I actually had success with. I've had the vibration/buzz thing and it really did help me to do some deep, slow breathing to calm it down. Like yoga or qigong breathing - not forced but more meditative. Try it or get a tape from the library to do it with and see if it helps you. There may even be some stuff you can download online. Good luck.

Dawn,I've been told by many neuros through the years that MS sensory or other symptoms would not be widespread. I've had all of the symtoms you mention as well as many more, i.e. feels like drops of water falling on me or splashes of water, feelings of drips all over my body that feel like you'd imagine little drips of battery acid, etc. As I said, I've been told by many neuros that this is not indicitive of MS (all over), apparently the lesions cause symptoms in a particular area. Over many years, my sensory symptoms have lessened, although the buzzing and internal shaking ones have stayed about the same. I've had these widespread sensory things for over 30 years and I'm fine. I know quite a few women who have had similar sensations for years but w/o the fascics. Please try not to worry. It's all part of BFS. Denise

Thanks for the further responses, I'mOK and Denise. It really does help. I know you guys are the only ones who understand my worry and know what it's like to feel all this weirdness. I have got another Neuro appointment on Tues so will post how I get on.Thanks againDawn

Hi Dawn,I, like you, have had a massive fear of MS for about 15 months now.Not suprisingly, I have had most of the symptoms you describe, including the neck bending thing you mentioned in another thread.In fact this is the one symptom which has caused me the most distress, why? well I commitedthe cardinal sin of googling this symptom and coming up with what is called L'hermittes sign.Now when you read about this it states that L'hermittes sign is very common in MS, moreso than anything else. So, I put 2 and 2 together and came up with 5.From here I was completely convinced that I had MS, despite my symptom (faint distal tingling in small patchesanywhere on the body when bending my neck) being dismissed by my neuro and hearing of others on this site who've had this symptomand were also told that there was nothing to worry about.I then managed to read the research on L'hermittes that linked in so stongly to MS. It basically described a "MS" L'hermittes in veryspecific terms and actually dismissed the sensation we experience as caused by other things, nerve impingment etc.At the end of the day, I still am not convinced I don't have MS, despite what I've been told by experts and a clean brain MRI, but I'm slowly begining to accept that a lot of this is anxiety/stress related aswell.It's probably a good idea if you push for a neck MRI, just for peace of mind, or when your neurologist tells you that there is nothingwrong with you, you believe them. Easier said than done I know Steve

Dawn, After about a year into my symptoms and they where progressively getting worse, I decided to journal them, anything sound familiar?12-07-06- Lower forehead and most of my nose is numb, almost all the time. Numbness also around my eyes, feels like they are swelling shut. Every morning, when I wake up, the left side of my body is numb/vibrating type feeling. Throughout the day, lower legs are always tingling, feet hurt with shots of sharp pain, left forearm tingle/vibrates almost all day long. When walking I lose my balance a lot, especially when turning a corner. General feeling is as if bugs are crawling on my body.12-11-06- Legs feel as if they are wet, or I am wearing wet pants, bottom of my feet have shooting pains or burning sensation, numbness in forehead and nose getting annoying12-22-06- My head feels more clear, the pressure at the base of my neck has let up quite a bit. I have not drank alcohol in a few days. My balance when walking is really bad, I am constantly bumping into things and tripping. I tend to have to shuffle my feet some to make a turn. My legs still feel like they are under water, they are very uncomfortable. Muscle spasms/twitches have not been quite as bad for 3 or 4 days, it is my opinion that the day after drinking alcohol greatly intensifies the spasms6-09-07- Twitching in my calves real bad, especially my right calve, worse I have seen, still taking Requip, not working to well right now, also twitching or quivering of left thumb muscle almost constant, did a little research, could be carpal tunnel, do not know. My legs feel like they are under water, buzzing feeling in both legs and feet, they are strong strength wise in regards to weights, but they feel real awkward when I walk, numbness and tingling around my eyes driving me nuts. Have made an appointment with Dr. Chin, going in on the 13th. ( result of this where Chin said neurologically there is nothing there, he said BFS does not exist, and told me to stop focusing on the twitching so much, everyone twitches. Nice !) Old Dr. Chin was a pleasure to do business with, he has no clue to what we are all suffering. Actually, his arrogance it one of the things that I really fell back on some of the darker days, because he was so sure of himself. He is right about neurlogically nothing being there, he is wrong about BFS, it exists, big time.

Hi TomDr. Chin is just about par for the course. I asked the neuro for an EMG and he said no because he didn't "want me to worry about it". So although I have a good clinical exam, I don't have the reassurance of having a clean EMG. The reason he didn't give me the EMG is because in Canada where health care is free for everyone, you can only have a test if you meet the criteria for having that test. So at least I know that I did not meet the criteria for having an EMG. But what I find disturbing is that we all go to neuros because of our fear of *** and the neuros tell us we don't have it and send us on our way without any attempt to get to the source of the symptoms.Sandra

Tom, the comments about Dr. Chin got me thinking as I had the same response from my acupuncturist. Part of it because he looks at the body as a whole and in away - he is right in this - we are not parts, we are a sum (as so often discussed with the stress issues brought up here). But both may be right in that there is no BCFS from their perspective because it is not a disturbance in the body that is easily followed from A to B like some are. However, you can't say bcfs doesn't exist because you don't understand its catalyst or its causes. It exists because it is the way our bodies are telling us something - or several things - are not functioning or having trouble and is being expressed by our symptoms. Saying bcfs doesn't exist is like saying that there is no blindness if you can't determine the cause of it even though you can determine that the person can't see. It was not that many years ago that people didn't understand, in all instances, how sight was lost - sometimes chaulking it up to 'old age' or 'bad luck'. I am sure, bcfs is caused from many different and sometimes interacting dysfunctions and infections/contaminations in our bodies and you could not point to one cause and see that all bcfs is the result. For each one of us, the catalysts and systems involved may be different. We have indications that how many systems & causes are involved? Immune, metabolic, emotional, stress(all kinds), neural, nutrition, viral, bacterial, hereditary, thyroid, etc. etc. It would be interesting to write all the suspects down just from this forum alone. Somewhere in each of us, these join and give us all the same symptoms.Anyone want to weight in on this? Anyone got the time to go through this forum and list all the suspects? This should probably be a separate post, huh?So Dawn, this is a puzzle and a maze but it is not one you are in alone. Hopefully we can help each other heal in some way. About your upcoming neuro visit - I read an interesting article by a doc....he said to ask questions that keep the doc from pigeon-holing you into easily known diagnoses. Like; what else could be causing these symptoms? Are there any other known symptoms and diseases that we haven't talked about that could overlap my symptoms? Could I have more than one thing? Wish I would have started out with these questions.....

Hi steve, I have just read your other posts and can see are symptoms and fears are so alike. like you i wake up thinking about it and go to bed thinking about it. The fear is taking over my life more then the symptoms. have you had a cervical spine Mri done.? Also were you the steve that posted on medhelp? I have been there and done that too.

Thanks for the info Steve, i will prob pay for a private one as i can't take the wait on the nhs. I had posted on your thread on medhelp funny enough. I really wish i had come to this site first as i think i would have got over this a long time ago if i had. Keep me posted on how you get on and I'll do the same. Take care for now.

Thanks for the info Steve, i will prob pay for a private one as i can't take the wait on the nhs. I had posted on your thread on medhelp funny enough. I really wish i had come to this site first as i think i would have got over this a long time ago if i had. Keep me posted on how you get on and I'll do the same. Take care for now.