Twitches Along Jaw, Cheeks, Lips Ominous?

So, I was on the other site....sigh, and there was a post in there about twitches along the jaw, cheeks, and lips being more ominous than other face sights. Is this true? My throat twitches nonstop now, has for 3 months, my neck is twitching along my collarbone, and now my cheeks and jawline. I have them everywhere else too, so that isn't different, but the other site also says a clean EMG won't pick up bulbar ALS anyway. So, I'm back to being scared silly. Any insight?

Any !! muscle can be affected. There is no muscle in my body that hasn't twitched yet. I have lip fascics, scalp fascics, legs, arms, but I am not startled by them anymore. Its part of who I am now.

But I also feel like I am going to choke on food, but never do, and that I'm going to gag, but never do, and that someone has both hands around my neck choking me. I feel better when I wake up, and I'm not drooling yet......but the twitches scare me less than the other stuff. So, what you're saying is that I wouldn't FEEL any different at all with ALS? This all started with symptoms in my right leg, which actually haven't gone away, just lightened up some, so I couldn't have bulbar ALS just like that when I went in for limb onset in the first place? I am just SOOOOOOO tired of the stress, the anxiety, the dark thing lurking around the corner.....ALL the time. How do I get passed the feeling that I won't get to see my kids grow up, or are you all a little more practical about this stuff than I am? Ny neuro says this is all WNV related, but I haven't been able to tell her about my throat, which has been going on for 3 months now......I'm sorry for rambling, thanks for listening. It's been a horrible couple of days.....Shauna

Hey Koopie-I can totally relate. The choking the hands around the neck, the lump in throat etc. ANXIETY! Its on EVERY anxiety website there- Check out. ! To further mention 3 months of "IF" (Which in NO WAY YOU DO) have bulbar onset...you would not be "almost choking, gagging, coughing etc"...You would probably have a PEG by now. Bulbar is the most horrific of the als family. Please trust your neuro. Have you had a EMG? If sooo even more reassurance, but what we all TEND to forget is the CLINICAL EXAM is the MOST IMPORTANT! EMG's are usually ordered to help in DX of ALS...to rule out ANY OTHER MND's , nerve problems etc. OR in MOST cases to RELAX the PATIENT and give reassurance.Koopie I know exactly how ya feel. I am just now over coming this with a minor set back (if you've seen my threads) today and yesterday and the day before..but it just wouldn't MAKE SENSE for it to be anything sinister...The more you FOCUS the worst your symptoms are!Its anxiety @ this point for you!I wish you well.I am taking leave again from this board after having my little set back the other day, just because I find I do better when Im not "dwelling" my twitching has almost diminished..PRAISE be to God!Get on with life honey. Your fine.Lovely