Thank You Everyone - Anxiety Defeated!

I just wanted to thank everyone for their sweet comments last night when I had a mental break down. Today I am. I think its important to post our good days as well- My shoulder discomfort is GONE!!! I have been up doing laundry, cleaning the house, buying groceries etc. All good.Anxiety is a huge roll in this Game. Its the biggest defeat in itself. Anyhow- I just wanted to let everyone know Im good today and Im not gonna lurk EVER EVER EVER again- its just not worth seeing the "ONE" post that might set you back in doubt. I know all I need to know about *** and BFS. There's nothing more I need to learn. So why look! Thanks Guys and Gals, Have a WONDERFUL weekend!

Hi Lovely,I read your post and I understand completely how you feel. Yesterday was such a bad day. I think I cried most of the day :crying: I made the mistake of reading old posts and I found one where someone was diagnosed with bfs and 9 months later he or she was told they had ***. Yes right on this site!! I never finished reading the post. I was too afraid to continue. I shut down my computer and promised never to go on again. I took my ativan and went to bed!But today, like you I had a great day. I was alot more positive. I was like okay you want to twitch go ahead legs twitch - see if I care! My neuro said it benign! He said I shouldn't worry.He never mentioned bfs.. but I know its all the same. He actually told me "chances are you will live another 50 years in good health"...(I'm 48). So I promised myself enough with this site. I don't need it. The neuro said I'm fine and I am fine. The twitches are annoying ,nothing more. There is alot worse out there. I know I could learn to ignore the twitching, if I believed it was NOTHING but simple twitch. But its not that simple... I question everything and believe our bodies are trying to tell us something. Perhaps it just telling me to slow down, relax.. worry less, enjoy life and then the twitching will go. Hopefully thats it!Lovely what I don't understand is we don't accept what we have been told? The doctors tell us its benign(and I believe it is.. I believe we are just to much in tune with our bodies) yet we act like its going to turn into something sinister?I come on this site looking for encouraging posts.. I'm sure there are people out there who have had this annoying syndrome for many, many years. When I log in, its usually in search of a happy post about someone getting on with their life despite the twitching for x amount of years. But unfortunately that did not happen last night... so I took another neuro appointment. Will be seeing him end of April. I need to hear him say I'm fine!take good care!MC

MC,I am sorry you had a bad nite last night. I know how you feel. However. 2 things. The CAROLMARIE post about her having ALS was a HOAX. If you look further- she has NEVER been diagnosed she has been told Benign NUMEROUS times by neuro's AND ALS specialists. She diagnosed herself. The thread in my opinion should have been deleted, but...in retrospect..I am glad it wasn't cause it just shows you how many people out there want to SCARE other people for the sure fun of it. She later came back and apologized for doing that and admitted what she has was infact and is benign. She got called out on a few sites.The second one is a Guy that is 22. He got caught real quick in lies. He was simply here to scare people. So if you run across him...Be sure you read ALL of it BECAUSE you will see how he got CHOPPED AND DICED all about his inconsistent post. I just wanted to forwarn you before you stumbled across that post.Sweety- what you have is benign...what you have that is a disease is ANXIETY. Just as I do. Today has been a awesome day. No twitches, no pain, no nothing- I feel completely normal. All though, I did measure my calves, arms and feet lol I just thought I'd do that...All were fine. (i dont suggest it doing that tho). lol I hate saying this because THIS SITE HAS BEEN MY STRENGTH along w/ God and doctors but sometimes even this site can bring anxiety. A lot too. Because anxiety feeds off of other peoples anxiety. Know what I mean? What I cant believe..Is I am a hospice nurse..I dont know WHY I cant handle this at times. You'd think I'd be a rock. You wont do this the rest of your life. I've had it twice. I first had my round of thumps lets seeeeee October 06 to about Feb07. It went away til 4 months ago. Its now going back away- My mind just found something else to focus on last night and it attacked me when I was already down from a death in the family. After you go to this neuro, who is going to tell you that you are fine again.....promise yourself and family to see therapy AND shut yourself off from here and the internet world awhile. Were young girl. Yes your YOUNG TOO! Your in my prayers- KNOW that you are OK and these highly skilled neuro's and docs that have told us were OK know what they are talking about- they arent in the business of malpractice and misdx's...ok.- I am trying to limit myself from this site again. But if you need me, feel free to e mail me and I can "pm" u my address!!!! Your ok hon. I promise. Twitches should be totally DIVROCED from ALS b/c thats NOT what the disease is about hon....its A LOT OF OTHER TERRIBLE PROFOUND things.With Love. Find Peace. Your ok, I promise. Lovely

Glad you are much better today i had many days like that in the beginning,days when i thought i was doomed i would breakdown and cry, it wasnt until my own body shouted out aloud at me and said "LOOK YOU HAVENT GOT ALS" that i realised i had nt ,i wouldnt listen to the doctors or my own family but eventually seeing is believing. keep the good days rolling cause you havent got it too.

Thanks Paul! Let the good days begin! Lovely

Thank you Dee! Like I said I never finished reading it .. I felt like I was going to pass out! So I had to close the computer.You're wonderful... again thank you for the kind words. I know deep down we are all fine. I think we do have one thing in common and that is "anxiety". We are worried about our symptoms, when we shouldn't be. If we weren't anxious and worried, we wouldn't be internet reading on muscle twitching. We wouldn't need this site. We all know anxiety fuels stress, and the symptom.. twitching!!! I read somewhere that 70% of people twitch. The mistake we made was to google it and then focus on the twitching and get sick over it. I know I did.... I was off work for 6 months! Even after the EMG, I still can't get on with my life. But today 9 months later, I'm really trying hard. I love spending time with my 3 children. I find when I'm with them I hardly notice the twitching. So distraction is good. I'm also thinking of trying acupuncture. If I do I will let you know how it goes.take good care MC

MC, Great to hear. No problem w/ the comfort. You are right. The illness were really fighting here is ANXIETY. I am 95% better then I was 3 1/2 months ago. Were both past the time line for anything "sinister" as far as twitches are related. . but the thing is our twitches are not consistent w/ that disease. Right now I can't try acupuncture because Im pregnant, but I will definately keep that a option. Somehow, last time I twitched like this..It stopped and I dont even know why or how. I guess because I didn't google...and I didnt "care" b/c I didnt know that twitching had ANYTHING to do w/ ***. Sooo I have to be the ones that agree that anxiety fuels the fire. Keep reinforcing in your head that your ok. The EMG I am sure was for your peace of mind. The clinical is all ya need in fact, but most neuro's as you see on this site offer the EMG for patients peace of mind and to rule out nerve issues (of any kind). Your way past the time line hon. Believe that. PLUS! You've been told your ok. Keep positive.Lovely )

Hey DeeI didnt realise you were back posting again, i dont look on this forum that much now, i played five a side football today and after my calves were twitching like a *beep*, i swear mice have taken up home in there sometimeshope alls well with youtake care ,stay happyRichEdit: a beep?