Curious about BFS Age Onset

Curious...what age were most of you classified as "BFS". I came across some research that mentioned that BFS commonly presents itself before age 30. According to this particular paper, the onset of fasciculations after 45 should be considered more suspect. Concerned 42 year old.
 
Hi: I am 50 and experienced my first problem with twitching at 29. I went through the whole ALS scare at that time and then after my two children were born I became focused on them and didn't notice the twitching----and it probably wasn't a big deal. Last year, I began menopause and anxiety set in after my husband had a bout with his heart. He was okay but it took its toll on me. I was prescribed a variety of SSRI drugs, none of which agreed with me. Finally a doctor prescribed Prozac and the twitching exploded. So., I think we twitch from a variety of causes and anxiety definitely exasperates things. Now, after finding a good psych, my meds have been adjusted and the anxiety has gone from a level 8 to a level 2. In response, my twitching, buzzing, vibrating, etc., etc., has gone down proportionately. Do I still struggle with the fear of ***. I sure do---but I really don't think, after almost 6 months that anything terrible is wrong. (At least that my story right now :) )Hoping the best for you.Cindy
 
Oh, by the way, I have never been officially diagnosed with BFS, but I have been told by my docs that I do not have ALS. They didn't even recommend any followup with a neuro. So.....I have to choose to believe them.Cindy
 
Started when I was lets seeeee 27....went away came back at the glorious 28!!! FANTASTIC! :rolleyes: Doesn't matter the age huge twitch..thing is.. YOUR OK- You've been told that and as you said LOGICALLY YOU KNOW THAT!TOOTLES, Have a WONDERFUL WEEKEND!
 
Howdy, Mine started at age 37, There are a percentage of people who are diagnosed around age fifty with **s. It only goes to reason that they would be more suspect. I have read numerous posts from people who were older than 40 who have been diagnosed with BFS. I have been to two neuro's and had two EMGs and NC tests they all said BFS! Best of Luck! Twitching without weakness = BFS
 
Here we go again--trying to read the tea leaves about what possible sinister cause lies behind the twitching based on some "study" or, in this case, if someone is over 45. Guess I'm sensitive to that because I'm 48 and my twitching started nearly 6 months ago when I was. . . 48. The point here is that this kind of speculation gets folks wound up, just like those posts about "X seconds between twitches means they're bad" or "twitches that occur every second Thursday are clearly related to NMD." It is a fact that ALS strikes mainly people age 50 or 60 and up, but even then, it remains a rare disease, period. So, keep context in mind--weakness? No. Wasting/atrophy? No. Clinical/progressive weakness? No. Good clinical exam? Yes. Clean EMG/other tests? Yes. Doctors annoyed with your obsessing? Hell yes. If that's your situation, I don't care if you're 95 and twitching, your OK. It's benign. Stop looking for the Four Horsemen of the Apocalypse in that cloud overhead; looks like a freakin' rabbit to me.Let's get back to focusing on the big picture, not a paper or study that portends doom. That's not what this site is for.My 200 cents' worth.Mark
 
Hey neighbor--Glad I could make you laugh! Just back from my son's ballgame and felt a little "cranky." Guess it's my advanced age. :D) With the meds I'm on, one glass of wine or a beer renders me unconscious, so I usually have one right before the weekly staff meeting and save my lucid moments for the family. . . . ;) Good to see you back to your old self.Mark
 
Hahahaha!!! Again. I laugh! Your Great. I cant wait til I can go to my baby girls cheerleading things, gymnastics or dance what have you- Whichever she wants.Get uncranky. Its the weekend!!! Your age, PFFTTTT it has NOTHING to do w/ it. Because your more than A-Ok! ;)
 
NinaC2005, I apologize for "bringing the board down". While that is not my intent...I can see how my line of questioning and quoting of the one-off cases could spark more anxiety in fellow board members. Please realize that this all started relatively recently for me, and I have not even been to a neurologist. Hopefully, when I eventually get the seeds of doubt removed by a medical professional, I can switch gears and provide support to others with the same fears I have.Regards...
 
HugeTwitch4 we all understand the fear you have, especially since this is all new to you and it is very frightening at first when you develop this condition. You want to understand what you have and you start researching but all it does is bring heartache and fear because it doesn't reflect the most common cases seen by neurologists which is BFS. Little is written, studied or understood about BFS/BCFS/PNH and you will get different answers about the cause from different neurologists. The fact is though that BFS is the most common cause of twitching and that's what you have to focus on.Mark has been through a terrible time with this condition and has come a long, long way and we're really proud of him! :D) We all understand how you feel and what you're going through HugeTwitch4. I'm sure that if you leave the researching and diagnosing to your neurologist, it will really help you a lot. After a few months of twitching at any age you're pretty much home free according to the experts.
 
HugeTwitch-No need to apologize! (And thanks for the kind words, Sir_Trouserz. :D) ) Yes, even a month ago, this would have set my mind to wandering into dark territory again but my concern is more general now that we all avoid the need to suck up information from any and all sources, regardless of its validity or usefulness. That is key to your own journey through this; BFS brings enough bewildering (and disconcerting) symptoms with it that it doesn't need an "assist" from random bits of information we tend to pick up. I know you're at the start of this and some six long months ago, I, like you, sought information everywhere. That was, in a word, BAD. All that will do is deepen the fear as we see ourselves in every snippet, every article, every breathless "report." It also leads to the destructive practice of self-diagnosis (or it did for me); people self-test their strength, measure their arms and legs to see if one is smaller (and thus atrophied) than the other, imagine their pulse is a non-stop twitch and on and on. "Studies" like the one you mentioned feed the flames.DON'T search the internet and lurk at those other sites and above all, keep your perspective. Isolated bits of info--like twitches in folks over the age of 45 are "more suspect," will deepen the mental hole you may be in. This site is, however, a life-saver. I wish you the best in dealing with this physically and mentally--we're all in this together. But limit your searches (or stop them, actually), see and BELIEVE your docs and move on. Don't do what I did and convince yourself, despite common sense and all the "real" evidence that your life is in danger. Thanks for your note and hang in there. Twitches are, by themselves, indicative of nothing--certainly not ALS.All the best,Mark
 
Mark, Glad to see your "uncranky" today :p :LOL: Just kidding. I agree and concur with everything Sir_Trouserz and Mark has said...and if I missed anyone than I Agree w/ you too!!! Bfs is a cycle. You will have your UPS and you will have your DOWNS! My doctors told me the internet was FULL of misinformation when it came to certain diseases. All lets see 4? of my docs have told me the internet is the worse place to get information from b/c most of it has not been reviewed medically and the cases are done on very little study. Take Sir_Trouserzs word and Marks word. Go see your doctor. Then after you do.......and you hear your ok. Run w/ that. PLEASE I beg of you dont keep digging on here- You won't find anything. I learned the hard way. I got the all clear about 4 x's if not more. Then I'd come home and want t trump my doctors knowledge. Big mistake. All that makes me do is look crazy lol :rolleyes: You sound like a typical bfs'er to me and you've had this long enough "off and on" to worry about anything- as it was said to me. Als dont stop and reset itself. Its not how it works.Take Care. Have a good weekend- DONT RESEARCH! Please. Stick to this site. If you want..Go to the Advanced search on the TOP RIGHT HAND SIDE OF THIS PAGE...type in the letters NEURO SAID and look at all those posts. Most are return neuro visits. They are great. You will see that you are fine.X Lovely ;)
 
I am 48 ..started 9 months ago. I was 47 at the time. Mark we are the same age and we are fine! We need to believe it and get on with our lives. It's just annoying buzzing, twitching.. that's it ! Let's not worry about it. MC
 
I am 51 years old, 52 in July. It started 4 years + one month ago. ALS ruled out immediately, in a couple of weeks; BFS diagnosed in 2005. Suspected in Lyme Desease which is never confirmed. Metabolic disorder questionable.
 
Glad to see other "senior twitchers" are here on this board. MC, I couldn't agree with you more.Onescaredlady--it is indeed a small world! I also did my undergraduate work in your state of Kentucky, at EKU; that was about 26-27 years ago.Mark
 
In terms of age I am 26 now but honestly can go back probibly till I was about 23 with twitching that came and went and I really never worried about it. I guess I got my official "BCFS" diagnosis around March of 07 but had had symptoms for a long time before that. My doctors didnt really come out with the title of "BFS" for a while after several EMG's. I dont know if it was because of how frequent they were that they could see them or that I was having very bad tremors and cramps to go along. But it does not matter what age, all that matters is that you saw a neuro and had a clinical exam (or an EMG also) but after a few months and then seeing a neuro is all that you needed to be in the clear. We all find ourselves worrying. And to tell you the truth if my foot didnt twitch 24/7 for the past 2 years I would have been completely over this. The random pops dont worry me a bit. Its just that foot =) But anyways thats all....I must completely fit the pattern for BFS due to my age based on your post since I definately noticed them and I am not 30 yet! :D) Sean B.
 

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