Questioning Undisclosed Answers

I think if I read between the lines that you are not telling the whole story.

"Said didn't want to refer me to a neuro as there was no point, and then said even if I did have ***, wouldn't it be better not to know about it as there is no cure anyway. He said he didn't know if I would go on to develop it, and for all he knew he could develop it"

He said no point to refer you to a neuro why? Probably because he is convinced it is nothing nasty. Why did he say there is no point.

I assume you were proding him to tell you thayt you don't have ALS and that you will never get it correct? Becuase of course he would never say you won't develope it because it could happen to anyone. How does he know whats going to happen to you 10 to 20 years down the line. Just like he said it could happen to himself.

Fact of the matter is that he didn't send you to a neuro. He also said your strength is fine. Muscle wasting in the hand is also a VERY common sign of carpal tunnel, arthrits, injury, etc.,etc.,etc..

Doesn't sound like a very scary visit to me. Sounds like he brushed you off again. And although I understand that can be frustrting, wouldn't you rathe him brush you off than say "Oh my God, you have ALS!" He is brushing you off because he doesn't think there is anything seriously wrong with you.

Not trying to mock you but I think there is more to this story than what you are providing. Am I correct? Sounds like you are performing selective hearing.

Good grief, what sort of doctor was this?

I'm certainly not impressed with his bedside manner. Excuse me, while I sneeze..."A-sshole!" Gezundheit.

First of all, since your strength was fine, it is NOT atrophy. Atrophied muscle does not test normally on strength exam.

Secondly, you very well MAY have had some mild carpal tunnel with your pregnancy. Just how were you supposed to know the answer to that question, exactly? Unless you'd had a severe case, you could have had it and never even realized it. It is quite common to develop CTS while you are with-child. Instead of ASKING you if you had it, why didn't the dim-wit TEST you for it?

Thirdly, lots of folks here have written about prominences on one hand or the other, particularly at the base of the thumb. Do a search and you will see that this is a common spot to be asymmetrical. It is not cause for alarm.

Fourthly, did he REALLY type what you thought he typed, or were you filling in the blanks? It would be awfully hard to read type-written (or even hand-written) notes, particularly since doctors are known for having cr-appy penmanship.

I would find myself a better doctor. Not because there is anything wrong with you, but because there is clearly something wrong with HIM. Who is HE to decide what you should or shouldn't care to know about your physical health, or future? While I'm certain he would refer you to a neuro if he thought there was something really going on, that doesn't excuse him from having NO sensitivity or compassion for you, his patient.

I would not be concerned at all about this. It sounds to me like another kiss-off, dismissing you because you are just an "hysterical woman." Been there, done that plenty of times myself. Don't waste another minute worrying about this, or spend another dime (or English monetary equivalent,) on this jerk.

Blessings,
Sue

Thanks for the responses, guys. I pretty much told it like it happened. I guess in his mind he thought it was nothing nasty 17Wildcat17, but he did say you had to wait months to see a neuro, so might as well see if any other symptoms develop. It's the waiting I can't stand.

Because he knows I am very anxious about this disease and this is the second time (only second!) I have been to the surgery to raise my concerns, he probably does think I'm some sort of over-anxious hysterical woman (think you hit the nail on the head LisaLM).

I know no one can rule it out outright, but can't help seeking reassurance.

I am with Sue on this one, he is an AS*hole..and I know exactly how you feel when you have a Dr. telling you that because mine did that to me for 8 months. he told me it was all anxiety and in my head...well the day I got dx with BFS I made sure I called him and told him how much of an As*hole he was.. sorry but this does make me so mad...Of course we have anxiety, are fri**in muscles are twitching, we feel vibrations, have tremors and they say it is anxiety. Like I said before Dr.'s have no clue sometimes.

When the Dr. said you could get it and I could get it he just meant anyone can get it and he cannot give you a guarantee on anything..but of course his bedside manner sucks so this is how he said it to you..Other then that I think you had a good appt. with good news. but I understand how you are feeling. I just finally went to another Dr. who got me a neuro appt. I would suggest you do the same, not because you have something sinister but because one he is a jerk and two you do not trust him now or trust anything until you see one.

My bones and veins are sticking out alot more since BFS..I think I have arthritis and varicose veins. I think my body did something altogether to cause all of this at once. I really would not worry, you have great reflexes which would be uncommon if something was wrong and you have strength which would be uncommon if something sinister was wrong...You are ok hon, hang tight...God Bless..Jenn