Sensory Evoked Potential Test: Experience?

I am going for a sensory evoked potential test on the 14.03.

For those of you who have had this test done, what were your results??


Thank you

Joanna

Hi Joanna,
Yes, I had visual and somatosensory and mine were both negative.

Both tests are very relaxing and quite boring, lol.

I'm assuming all of your other stuff has come out negative?

Blessings,
Sue

Hi Sue,

Thanks for your reply.

I have had a negative brain MRI, negative bloodtest for lyme, B12, calcium , thyroid etc. That is all.

at the moment I am waiting for my fullspine MRI results. I had the MRI last Thursday.

Sue, I have problaly asked you before but did you have a spinal tap as well? This will probably be the next thing for me., uugh

I was thinking of asking for VGKC tets as well...? hmm...
I am so determined to find out what is causing these symptoms, but I also want to get it over with...all these tests, waiting etc...makes my mind go crazy..

Thanks for your support as always.

Joanna

Yes, I had a spinal tap.
Why would your doctor want to do one if everything else is negative?
Honestly, my neuro very reluctantly tapped me, and it was only because I insisted on it.
I, like you was tired of wondering what was causing my symptoms, but at the time I hadn't realized bfs could be at the root of them all. Had I known then what I know now, I would never have put myself through all that.

Blessings,
Sue

You are right Sue..I see your point. I just havent quite reached the level yet, where I can stop worrying an dlooking for reasons.

My neuro talked about an autoimmune desease of a kind, and that is what he will be looking for with the spinal tap.

I also discussed he paraneoplastic possibility with thim, I guess he is also checking for those kinds of things, which is apparently an autoimmune process as well,

Sue, as far as I remember you have had this for years and years?

Have you had pins and needles in various places all these years as well?

I REALLY REALLY am looking forward to the day when I can rest my mind....!!

blessings and thanks
Joanna

Yup, I am now at eight years and holding...

I initially had a viral infection eight years ago that caused weakness, internal tremors, vertigo and some numbness and tingling.

Then throughout the years I developed twitching (only I didn't know it was twitching, I thought I was having strange 'pulses' throughout my body from some form of auto-immune vasculitis) and along with the "pulses" I would get tingling and numbing.

Then last year I got the weakness, vertigo, numbness, tingling, and tremoring all back. I've had three ms work ups in the past 8 years, and really 4 if you include this past time I was worked up twice with two sets of mri's.

All of this and the lovely anxiety that accompanies it all, but I'm doing just fine, better than great, really, now that I've accepted it is all just bfs. I don't even have symptoms anymore, and if I ever have a twinge of a symptom, it simply doesn't ruffle me.

I've been where you are, and I understand. You will have to reach a place in your life where you just aren't willing to give this any more of your energy.

I pray for you that you will find peace with all of this very soon, if not immediately.

Blessings,
Sue

Thank you so much Sue.

I am so happy for you that you have reached the state where you are now. Stay there!

seems like this could be a life long companion for some of us.

Hugs
Joanna