Twitching for One Year: A Story

Hello all,
I started twitching in my calves just about one year ago, and it's been constant since then (in different places, but always somewhere or in multiple places). A few months later I noticed it on the top of my hands between thumb and forefinger (especially when using the computer). Though these were my two main places to twitch, I could get a twitch basically anywhere.
My scary hot spot now is on my chin, just below my lip. It's been about 4 1/2 months and it still twitches from time to time throughout the day (especially when using that area, such as eating or grimacing when lifting weights).
I have experienced no weakness during this year of twitching.
My question is: besides calves where it seems a lot of you have had long term twitching, have any of you had other parts of your body, besides calves, twitch for this long? I also have had a shoulder twitch for about the last 3 months)
Thanks so much, and God Bless!
Nick

Nick, BFS hits EVERY muscle in your body. You will twitch in places you didn't even know had muscles!

Hot spots can (and will) occur in ANY place on your body where there's fiberous muscle tissue. Some hot spots last for days, weeks and even months on end, non stop.

Calf twitching is common, but not in everyone. I think since my BFS started, I have had maybe 10 calf twitches, and that's pushing it, BUT I have had hot spots for weeks and even a couple of months on-end in my thigh muscle just above my knee, in my eye lids, on my shoulder and several other places here and there have twitched for days and weeks on-end.

There is a poster on this forum right now that is complaining about inner ear twitches that have been going on non stop for a LONG time. People get hot spots sometimes for a year or more and then suddenly they disappear just as fast as they appeared.

There is no rhyme or reason to BFS. It does what it does at total random, although a lot of us can induce a twitch simply by flexing a muscle.

Anyway, what I am getting at is you have VERY "normal" symptoms of BFS. Chin twitches are VERY common with BFS. I have had them too for hours at a time. I really wouldn't worry too much about it. Your symptoms are so in line with BFS and so inconsistent with ALS that it doesn't even warrant any loss of sleep, or even giving it a a second thought, what so ever

Nick, I totally sympathize. The longer the fascics last in my hotspots, the more they terrify me. I get them in my face a lot, especially around my lips and in my eyebrows.

The way I deal with those when they last long is to remind myself that ALS doesn't really start in the face muscles. Imagine someone complaining about their eyebrows feeling weak.

So when I get hotspots on my face, I try to enjoy them as the most benign of any fascics I get. I think to myself "this lip fascic can't be ALS, so as long as my lip is fasciculating, I know I don't have ALS! woohoo! twitch on, lips!"

Hope that helps.

(also, it helps me to show my facial fascics to other people because they think they are funny and I get some sympathy.)

You crack me up Erika! "Woohoo! Twitch on lips!" he he he...

I agree with everybody NoraFL....one year twitching without weakness....you may twitch on your chin for the next two years...it just means the nerve and muscle is irritated, not that you have ALS. Do you spend a lot of time testing the muscle there? Flexing, using unnecessarily just to make sure it's nothing ominous? I do that if I get a hot spot, and it's not until I stop obsessing that it will go away.

Good luck!

Jen