Muscle Atrophy and Pain Increase

Dear both, yes I agree, that hot flushes might be due do meno pause...what our age is concerned (I am heading 46) I think we are now in an age, where degenerating processes might start, too. People get cancer, rheumatism and more in our age...some people might get metabolic problems, too.. I think we have to pay the bill for our lifes now (healthy or unhealthy lifestyles...my one was more the latter). And hormone dysregulation might start. The body is a system (though Emilyomouse doctors seems not to like this perspective). And some processes might get out of regulation, too...This is my personal view on it. Today I was at neuromuscle ambulance. They took again some new antibodies...(I think the VGCK and stiff person...) My sulcus ulnaris syndrom was confirmed again. EMG did not change compared to last time (no spontanuos activity, no crams, no faszis, in general not much huge potentials). They did 2 muscles. I have to wait on the appointment. Bibi how are you doing in general? Are you a bit better? Leflea I keep my fingers crossed for your markers!! Please drop us a line...!

What my hormone situation is concerned I have too less estrogen. Did take an estrogen contraceptiva for one year, before giving birth to two children. During my pregnancies I felt like I alomst died...total fatigue..vomiting...nine month. I had hair loss before my pregnancies. There was a lot going on...My gyn told me I am far from menopause last time...but the hot flushes which I have since about 3 weeks...maybe I am there now. I think hormones have a lot of influence on the body...if not the most. I actually do not have any twitches. I can minimize em with MgHcl foot bath in the evenings. I had a flare up again and started the treatment. Actually none apart from my hotspot which is there since beginning.

I feel awfull , twitching , small cramps in feet every Day , stiff in my left leg , pain in left arm ( and twitches there too ) cronic heartburn and burning tounge. Sweating , specially in Nights and sometime i have could spells like i have fever , but i dont. In have an appointment in june with an Als neuro, but my GP Will try to get me in earlier. She is very sweet but old and she often forget to do things and i have not heard from The hospital so i have to check up on this. Just now i have a week off on vacation and i am just tired. I work as a laboratorie technisian and it is not easy with dystoni in Right hand and now pain in left arm...tomorrow i Will have akupuncture for The first time. I hope it Can help for my pain in arm. Thanks for asking !

I tried accupuncture for my legs last year. Kind of worked. ...I know how you are feeling. Both of my arms hurt very much. Skin burning, inner pain, I cannot put weight on my ellbows. Back pain, stiffness everywhere, feeling fatigued....This night waking up again wiht cannot raise my arm (for my muscles on my shoulder bladders have somehow reduced...or so..the neuro yesterday did not really know). someday I really do not want to face life. In the ambulance they told me I belong to a group of clients which they could not give a diagnosis for they do not know what is going on. They recommended me Pregabalin. But I do not want to take it...I am so frustrated like you...especially this morning..Next appt there is in a year. Hope my sulcus is not worsening since than..

Not sure if this is related to the more recent posts in this thread, but I wanted to chime in and say that for me the twitching is 100% related to (among other things) my cycle and hormones. In fact, when I get an uptick in twitching, I know that means my period is about to start in a week. Hope you all find answers!

Estrogen is what makes women get mnd less than men. Be happy for it! )

Back from immunology ambulance, Berlin, Charité´: Yes, could be Cchronic Fatiuge Syndrom. Some symptoms are typical, others not. They are sure I had it 17 years ago and then a complete remission (where I had my fist period of beeing sick, with twitches, fatigue and much more...). But: CFS does not change the nerve conduction space and sulcus ulnar nerve syndrom...No arms getting thinner and thinner feeling like raw flesh...So they suspected me to have something else now..ok. this was my final medical destination to go in Germany..They took a lot of blood to do PCR and more. It can be positive, but not necessarily to proove CFS. But they are not sure...Me either not. It is so exhausting. I was off home 2 days, sitting in train for hours...and no concrete outcome again...

leroy_blueHaha, but then again my estrogen is almost gone now. So, there we have it. I'm not worried about MND really at all any more. I'm more wondering if I should take any estrogen or not. My low estrogen related issues are pretty severe. Thank goodness I don't have such dramatic mood and personality changes, but everything else. I've heard taking the estrogen AFTER I'm done INCREASES different risks like dementia, but starting it in early peri is neuroprotective, cardioprotective etc. One of my symptoms is the brain fog. Its been bad. Really bad. Scares me. It has improved somewhat in recent months with acetyl choline and L-carnitine. Plan to really start up the coconut, fish, flax oils and turmeric. Nothing at all to lose with any of these things. I've been reading a lot about coconut oil, unrefined...my opinion is we should ALL be taking it.

I VE lost my first toe nail today. second is in progress to get loose..fungus is excluded already. Any ideas?..naill changes at hands . Small caves....

I had same two years ago, i lost few of my nails, they grew back slowly.practically this means poor blood circulation. Nails are very sensitive to blood supply and any problems with fine peripheral vessels usually causes nail loss. it is called oncholysis and, if mycosis is escludedm then the reasons are trauma, bloos circulation disorders, neuroregulatory issues (hormonal, in other words), antibiotic trteatment, allergenes (nail polish etc.)

Thank you for your reply..Well the blood circulation in my hands is bad, but in general my feet are ok...I have some other changes...waves and channel, and more...I think I have to wait and see how it all develops...the waiting game...my left arm has got worse. It is very thin and hurts after any effort. Ok, My Sulcus nerve conduction time is 37. NOt very much. But does that mean loosing muscle at the lower arm? On the bottom and below...? I don't thing so...But I think about a surgery just to give it a try. I know it can get worse...It is just the motoric part of the nerve which is damaged by the way..

the right arm, has the same symptoms but to a very lower extend.

legs usually suffer from bad circulation far more often compared to hands... so it is no wonder... I had mine after I had edemas on lower limbs due to bad circulation...massage and fintesss had helped a lot... but before that I lost two or three nails on my toes...

ok...I understand. So I will not go into it deeper. It is just time consuming. I will go to a rehabilitation clinic for neuromuscular deseases and MS for four weeks. They might help me with that problem. I hope they also have good diagnostic tools..This night I had my body joined with a computer to see whether sleep apnoe is the reason for my fatigue. I don't believe, but doctors think this is necessary to check..

sleep apnoe is a number 1 among reasons for chronic fatigue.That is called sleep study and it may be a valuable diagnostic tool by the way. Wish that would clarify your condition.

was a bit complicated tool... See what it reveals. Since yesterday I have a new episode with strong pain in lower ams. Not just constant soreness...but I can't really touch em. It hurts very much. Arms are like paralized...I really hate that all!!! Why can't it just stop or reveal the underlying condition....So I have s.th. at nerval system (including noise intolerance, indicating that cns is involved)with inflammatory periods obiouslywith blood circulation involvedwith immunlogical implication (TH1 Shift)selective ebv immune defectelevated ANA from time to time, last time homogene patternonce reduced C3 and CH50 which would point towards lupus but the cytocine profile does say the oppositesometimes lung involvmentsometimes swollowing problems and hoarsenessemotional instability...and chronic fatigue...Hope anyone can solve this puzzle in the reha clinic. The advantage is that they are specialized in very rare neuromuscle desease and that there are also physiotherapists with great experience. Not just lab medicine..

I just want to give an update.The pain in my lower arms drive me nuts..it is burning, stabbing and my arms are ice cold. My ellbows can't stand to lift a towel without hurting. I think because it is really not much mucle left. So I wear bandage around both of my arms.Actually I have twitching at my back ..and now stomach and have cramps in my stomach muscles. But still it is not a constant twitching. Just from time to time. Here and there...I have sometimes vertigo now...not every day. Fatigue hast got a bit better..Tomorrow I will go in a rehabilitation clinic for 4 weeks, neurology dept. Hope they can bring some light into darkness.Actually my panic attacks in the middle of the night are back. During day, I am ok with the situation, trying not to think too much, ready and prepared to manage whatever will come.But around 3 o clock in the night, my mind suddenly starts to have a problem with that..and I wake up in sudden fear and panic..I am also used to that ..already. It just had left me for a while...Those night attacks..I hate themThere is no other reason I can think of for my muscle decline in lower arms and the strong pain, making me more and more useless...And also my brain is leaving me..It is remarkable that I managed to fail with EVERY single diary entry in my schedule for April. There was NO single correct entry. So I really started to have a mental problem, too. As I lost my toe nails, I was at a podiatrist yesterday. She told me that's an orthopaedic problem. I would just walk on the outer edges of my feet...Yes, because my foot muscles had declined..I would say..I have a kind of hollow foot since the twitching started there. so tomorrow I will leave for "the cure"... / or maybe not..

Good luck at The clinic ! I hope You Will get some relieve and maybe an answer !

Thanks Bibi, but they told me, they are doing no diagnostics here. I had my first neurological examination yesterday:Flat reflexes and clinical weakness, left arm... I feel awful...strong vertigo, weakness and pain in arms getting worse each day...and the worst...amnesic aphasia...The words get stuck in my mouth for I cannot find..My first chat here in the clinic was with a grandma and her grandchild for her 41 year old daugher has ALS in final stage the topic haunts me...What does flat reflexes stand for? I had that several times....It gets hard to open doors due to weakness...

Sorry to hear ! I have pain in my left shoulder and arm and i have low feber since 25/2 . First i wasnt worried about fever , i had a cold at that time. Then i Was back to work 2 days and then fever again , Went to doctor , my crp Was 19. I Was put on penicillin wit no help. Then after a week crp Was 48 and i Got roxythormycin. After 7 days fever gone , but now it is back , still 2 days left with roxythromycin. I Went to a reumatolog and she Said a have a bursitis in left shoulder told me not to use my arm for 14 days and then come back. I feel awfull , i am so tired and also have sort of cronic heartburn and food getting stuck in throath. I fear that All this issues together with twitching is sign of neurological dissease .